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malkag.bsky.social
Writer/editor. Chronically ill. Slowly working on setting up this account. Hoping to reconnect with #NEISvoid, #DisabilityTwitter, #CovidIsntOver, #StillMasking, etc.
185 posts 464 followers 2,120 following
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Posts 24 Comments 25

Disability is not a moral failing. Health is never a guarantee. Instead of judging those who are sick, help them. Fight for better social supports. Wear a mask. Push back on ableism. Give to mutual aid. Give help freely & without strings and don’t make people beg.

submitted 8 days ago • 5 comments

Also yes project 2025 was always the plan.

submitted 30 days ago • 443 comments

All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!

submitted 40 days ago • 55 comments

FYI for anyone else in Montgomery and Prince George's counties: WSSC Water urges limited water use due to increase in breaks and leaks | wusa9.com search.app/pF7btWW7yJ32...

submitted 42 days ago • 0 comments

It’s an inconvenient truth: if we claim to care about EQUITY, we must protect people from COVID at work, schools, health settings, etc…the most disadvantaged are among those disproportionally impacted by acute & long-COVID. We need courage to speak up, clean the air, mask up in the name of EQUITY.

submitted 73 days ago • 1 comment

Scary stuff. "Should this project succeed, our ability to make collective sense of the world will be further fractured. We will no longer inhabit one of several competing filter bubbles; each of us will be in our own private filter bubble."

submitted 73 days ago • 0 comments

There’s so many benefits to wearing a mask: You protect yourself Your protect those around you You send a message that you don’t believe people are expendable You have peace of mind that even if you get sick - you won’t have infected or harmed anyone else You make them harder to ban!

submitted 74 days ago • 4 comments

Action item! #SignalBoost #NEISVoid #CovidAware #medsky #seattlesky

submitted 73 days ago • 0 comments

WHO Director, Dec 10 2024: “We cannot talk about COVID in the past tense. It’s still with us, it still causes acute disease and “long COVID”, and it still kills.” www.who.int/director-gen...

submitted 74 days ago • 3 comments

I’m going to tag @regenceutah.bsky.social every day until they approve my friend’s chemotherapy This is day 6 She is scheduled to start chemo this Friday The numbers listed on their website don’t work Instead we are emailing their CEO and also the governor and senators!

submitted 74 days ago • 6 comments

We're hiring 2 new roles! These are 6-month contracts with possible extension, and can be between 25-40 hrs/week. Deadline Dec 31! 1) Partnerships & Advocacy Coordinator 2) Fundraising & Operations Manager Please share widely! patientresearchcovid19.com/job-opportun... #LongCovid #neisvoid #pwme

submitted 74 days ago • 4 comments

Study from Germany seeking people with fragrance allergies, including to essential oils, to complete this survey. evaluationen-thu.limequery.com/689193?lang=en #MCAS #MCS #NEIsVoid #LongCovid

submitted 76 days ago • 0 comments

#pwLC #pwME #NEISVoid Propublica request for feedback on barriers to care in US

submitted 75 days ago • 0 comments

If you’re newly disabled - you may find one of the toughest battles you’ll have is with yourself. Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do. But they are critically important for survival.

submitted 76 days ago • 23 comments

(US) Urgent Call to Action: Medicare Telehealth Benefit From Massachusetts ME/CFS & FM Assoc massmecfs.org/newsletters/... Links in image www.congress.gov/bill/118th-c... actionnetwork.org/letters/pres... actionnetwork.org/users/sign_in #chronicillness #Spoonies #ChronicallyIll #LongCovid #MEcfs

submitted 76 days ago • 1 comment

Docs, Just because you’ve found a possible cause for your patient’s symptoms, doesn’t mean you’ve found the most likely cause. If the case isn’t cut-and-dry, search for possible cause 2 and 3, *then* decide which is most likely. #MedEd #NEISvoid

submitted 80 days ago • 0 comments

friendly reminder that you didn't waste your year. any moments of happiness or comfort, any small accomplishments, they all matter. this has been a really hard year, and simply surviving is something to be proud of. #2024 #2025 #spoonie #disabled #mentalillness #chronicillness #bpdfam #bpd #neisvoid

submitted 80 days ago • 0 comments

If you have #POTS and #MECFS and are affected by the #IVfluids shortage, this thread is for you. Did you know a proper Oral Rehydration Solution is proven to be as hydrating as IV fluids? And even more beneficial for than IV fluids in some ways? Not regular electrolyte drinks. Let’s talk. #NEISvoid

submitted 81 days ago • 4 comments

It's a lonely feeling when you feel like you've lost years to being in survival mode. Especially when it used to be a communal thing, before everyone decided to ignore facts and embrace constant sickness. Now you watch the normalcy farce on social media and feel empty.

submitted 81 days ago • 10 comments

Unless Congress acts in the next three weeks, Medicare will stop covering telehealth. For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare. Please sign this petition urging your representatives to act

submitted 81 days ago • 79 comments

One of the single best things you can do for us on #InternationalDayofPeoplewithDisabilities is to wear a mask. Make public spaces safe for us again. Join us in demanding masks in healthcare. Refuse to leave us by the wayside.

submitted 81 days ago • 8 comments

Telehealth was something disabled people had spent years begging for. It’s a game changer when you have an energy limiting chronic illness. It’s hard to imagine any legitimate reason to remove it - it will cause harm. Let patients access care in the way that is safest for them.

submitted 81 days ago • 19 comments

Unless Congress acts in the next three weeks, Medicare will stop covering telehealth. For patients like me, too sick to leave home for months at a time, that would mean losing all access to healthcare. Please sign this petition prodding your representatives to act: actionnetwork.org/letters/pres...

submitted 81 days ago • 6 comments

Source: thechronicallyhonest on Insta chronic illness symptoms #chronicillness #chronicallyill #autoimmune

submitted 82 days ago • 9 comments