maremmamother.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Now I've had #MyalgicEncephalomyelitis 36 years (since age 16), 30 years with #SevereME🙁 We need more public & private* research money to speed up progress Here's my story in Irish Independent m.independent.ie/life/health-... *List of research funds phoenixrising.me/myalgic-ence... #MEcfs #CFS

submitted 10 days ago • 6 comments

Good advice ⬇️

submitted 10 days ago • 507 comments

DISEASES ERADICATED OR DECIMATED BY SCIENCE: 1. Chickenpox 2. Diphtheria 3. Measles 4. Pertussis 5. Pneumococcal Infection 6. Polio 7. Tetanus 8. Typhoid 9. Yellow Fever 10. Smallpox DISEASES ERADICATED OR DECIMATED BY RFK JR. OR PRAYER: 1. 2. 3. 4. 5. 6. 7. 8. 9. 10.

submitted 10 days ago • 1247 comments

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC

submitted 15 days ago • 10 comments

I don’t think people could fathom living how people with my disease live. I haven’t seen the sky in 3 months. I only see it when I get wheeled out for appointments on a stretcher which is every 3-4 months. I have eaten the same 6 foods for almost 3 yrs now. EVERYTHING I do is in bed. This is MECFS.

submitted 14 days ago • 10 comments

Please stop telling people to wear masks at protests to "hide" their identity. A. Scientifically, it doesn't. B. It undermines the argument that we're doing it primarily to protect our health. C. It invites more mask bans. D. It makes life harder for vulnerable people just trying to live.

submitted 14 days ago • 6 comments

MAGA trolls are starting to show up here. Don't engage with them. We've seen how that turns out. They only want engagement. You will never convince them of anything.

submitted 26 days ago • 3 comments

Trump will overplay his hand. Be ready for when he does. open.substack.com/pub/robertre...

submitted 30 days ago • 0 comments

Health Rising: “An Explosion of ME/CFS in the US + The Real Difference RECOVER May Make In Long COVID” “..it’s a good time to take a new look at what’s happening with the $1.8 billion RECOVER long-COVID Initiative” www.healthrising.org/blog/2025/01...

submitted 30 days ago • 3 comments

Long C-19 is very LONG☠️‼️ journals.plos.org/plosmedicine...

submitted 30 days ago • 11 comments

Pin this, save it, we’ll need it. “When a prison camp opens in your town…when a DREAMer is disappeared from your classroom…when the President destroys what’s left of the Constitution…They will all say they didn’t know this was coming. And I want the American people to know that they did.” AOC 🔥🎯

submitted 32 days ago • 2387 comments

ABC: 'Women aged 40 to 55 at 'significantly higher' risk of long COVID than men, new research finds' '..according to research published in the Journal of American Medical Association (JAMA)' www.abc.net.au/news/2025-01...

submitted 31 days ago • 3 comments

With thanks to @harryspoelstra.bsky.social Long C-19 sufferers... Get your Bone Mineral Density done please! www.mdpi.com/1999-4915/17...

submitted 31 days ago • 5 comments

Neuroscience News: 'Long COVID Impairs Exercise Capacity and Cognition for Years' 'The findings underscore the long-term impact of PCS and the urgent need for research..' neurosciencenews.com/long-covid-c...

submitted 31 days ago • 5 comments

BW Healthcare: 'Study Links Covid-19 To Surge In Chronic Fatigue Syndrome Cases' 'A recent US government-funded study has uncovered a substantial increase in cases of ME/CFS among individuals recovering from COVID-19' bwhealthcareworld.com/article/stud...

submitted 36 days ago • 2 comments

There was never any need for a TikTok ban. Our politicians don't care about protecting our data. They wanted to manufacture another crisis, anything other than dealing with our real problems.

submitted 36 days ago • 6 comments

"Economic growth could fall 50% over 20 years from climate shocks, say actuaries" Story: www.theguardian.com/environment/...

submitted 38 days ago • 14 comments

NEW: Meta has quietly dismantled the system that prevented misinformation from spreading in the United States. Machine-learning classifiers that once identified viral hoaxes and limited their reach have now been switched off, Platformer has learned www.platformer.news/meta-ends-mi...

submitted 39 days ago • 1426 comments

submitted 39 days ago • 5 comments

theconversation.com/mounting-res...

submitted 44 days ago • 0 comments

NEW: 2024 has just been confirmed as the warmest year on record, and the first to breach the 1.5C threshold. We used a ridgeline (Joy Division inspired) chart to visualise daily temperature anomalies since 1940. 2024 clearly stands out with 100% of its days above 1.3C and 75% above 1.5C.

submitted 44 days ago • 221 comments

youtu.be/wmUhGBTszl0

submitted 46 days ago • 2 comments

"The models show statistically significant evidence that higher indoor carbon dioxide concentrations, altered by ventilation and occupancy, are associated with lower divergent creative thinking scores." ( www.sciencedirect.com/science/arti... )./

submitted 46 days ago • 4 comments

Medical Dialogues: “Extended Paxlovid may help some people with long COVID, finds study” medicaldialogues.in/pulmonology/...

submitted 46 days ago • 1 comment

Paper of reference www.cell.com/cell-host-mi...

submitted 46 days ago • 0 comments

The combined net worth of America's twelve wealthiest people passed $2 trillion last year. 12 people. $2 trillion. Meanwhile, U.S. homelessness increased 18% in 2024. Our problem isn’t an issue of resources. Our problem is ever-expanding wealth inequality.

submitted 52 days ago • 698 comments

Question: Does COVID-19 damage the brain? Answer: "We now know that, unfortunately, COVID can damage the brain in many ways." Harvard Health. And people keep ignoring the truth hoping it will go away. www.health.harvard.edu/mind-and-moo...

submitted 52 days ago • 56 comments

sleepreviewmag.com/sleep-treatm...

submitted 51 days ago • 0 comments

In no surprise to anyone who follows me, I follow COVID news closely. So I can say that it’s rare to have pieces of such scholarly quality & interest on the topic in MSM. Here’s another well-researched long-form installment from Hayley Gleeson that needs bookmarking. www.abc.net.au/news/2024-12...

submitted 56 days ago • 7 comments

As 2024 winds to a close, I wish you peace, comfort & connection. In spite of the dysfunctional state of the world, I still hold hope for a better future for all of us. I still believe there are so many things to love. guinesspig.ghost.io/so-many-thin...

submitted 59 days ago • 7 comments

Yeah so basically, in the top 3 discovery highlights from the NIH for 2024, there is a study investigating Post-infectious Myalgic Encephalomyelitis. This type of study will not exist anymore next year with the new government. #MECFS #LongCovid #NeuroCovid

submitted 59 days ago • 14 comments

Number of dairy herds infected with bird flu in the country where you can <checks notes> feed chicken waste to cattle: 876 Number of cattle infected with bird flu in countries where it is illegal to feed chicken waste to cattle: <checks notes again> 0

submitted 61 days ago • 9 comments

Some people might miss the symbolism of the date of this attack. Ukraine only started celebrating Christmas Day on 25th December in 2017, moving out of alignment with the Russian celebration on 7th January... www.theguardian.com/world/2024/d...

submitted 60 days ago • 4 comments

STUDY: Post-Covid cognitive impairment affects daily function and quality of life. “89% of patients have impaired attention, executive function, processing speed on novel tests.” www.sciencedirect.com/science/arti...

submitted 60 days ago • 5 comments

I don’t want a lot for Christmas This is all I’m asking for Let me wear my respirator Or my ass is out the door I don’t want to breathe that Cov I’m broke & out of PTO Make my wish come true Baby save that deadly SARS shit For YOOOUUUU #CovidCarols

submitted 59 days ago • 2 comments

US: "No one knows exactly how many U.S. nursing home residents died due to COVID, since the data is unreliable... Estimates that it was at least 152,000 during just the first year of the coronavirus outbreak." fortune.com/well/article...

submitted 62 days ago • 3 comments

The Mirror: ''I'm a doctor - this might be why you're dizzy, lightheaded and having chest pains'' 'In a recent video (TikTok) that has garnered over 743k views..the doctor shared the symptoms and courses of treatment for POTS..' www.mirror.co.uk/news/health/...

submitted 62 days ago • 0 comments

The Cardiac Output–Cerebral Blood Flow Relationship Is Abnormal in Most Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with a Normal Heart Rate and Blood Pressure Response During a Tilt Test www.mdpi.com/2227-9032/12... #MECFS #CBF #PwME

submitted 62 days ago • 2 comments

Did y’all know that COVID was found in clots in the coronary arteries? Totally safe virus right… no problems living with this one at all… #CovidIsNotOver ccforum.biomedcentral.com/articles/10....

submitted 62 days ago • 27 comments

How to improve memory and cognitive function in aged mice Fix the mitochondrial EC (excitation-coupling) @science.org representing a new potential path for replenishing neuronal energy reserves to counter brain aging www.science.org/doi/10.1126/...

submitted 65 days ago • 5 comments

I decided to look at the literature on mitigation vs economic impact and this paper is interesting. They determined that “Precise control” which included contact tracing, quarantine and remote flex work offered the best balance of public health vs economic outcomes. www.nature.com/articles/s42...

submitted 67 days ago • 5 comments

“Long COVID affects 8.4% of U.S. adults, with income and geography shaping impact” ‘Millions of Americans struggle with long COVID, as new data reveals how income, geography, and gender amplify its debilitating effects’ www.news-medical.net/news/2024121...

submitted 67 days ago • 0 comments

Australian Actuaries Mortality Working Group released paper for the first 8 months of 2024. Cv19 mortality 70% higher than prediction. 5 times as many deaths from cv19 than the flu. And more.... Please #WearAMask this Christmas

submitted 68 days ago • 14 comments

Here's the latest variant picture for Australia. XEC.* appears to have taken over dominance from the DeFLuQE variants in mid-November. XEC.* grew to around 40%. #COVID19 #Australia #DeFLuQE #XEC 🧵

submitted 69 days ago • 1 comment

New article on Westray Law. www.cbc.ca/newsinteract... : 'Law requires businesses and individuals to “take all reasonable steps to prevent bodily harm to the person performing the work or task, and to any other person.”' ** Relevant to hospitals failing to protect staff during ongoing covid too.

submitted 69 days ago • 0 comments

WA: People urged to protect themselves amid new COVID wave. By John Flint "A new updated COVID booster vaccine is now available to all West Australians with infections in the State currently surging." #COVID19WA @flinty01.bsky.social Source: archive.md/Kmwwj

submitted 69 days ago • 7 comments

Fun polio fact: it is asymptomatic in 70% of cases. In 29.5% of the cases symptoms do appear, they are gastrointestinal distress, normal enterovirus stuff. Polio only displays neurological symptoms in 0.5% of cases. You don't remember polio, you only remember longpolio

submitted 71 days ago • 66 comments