mfairma.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

👩‍⚕️CDC and Disability Rights 🦼 Before we talk more about disability, we need to address the history of eugenics, ableism and racism that haunts US public health work.

submitted 1 hour ago • 9 comments

The House could vote next week on drastic cuts to Medicaid that would gut critical programs that protect the civil rights and dignity of millions of Americans — including people with disabilities. Contact your member of Congress: No cuts to Medicaid.

submitted 1 day ago • 130 comments

"The data also shows that once displaced, 21% of people with disabilities say they never return home, nearly four times the rate for those without disabilities." www.nbcnews.com/data-graphic...

submitted 4 hours ago • 1 comment

Statement from the Musk-appointed head of SSA celebrating the deletion of research grants studying the financial security of the older adults and the disabled. Just one way that the richest man in the world is dictating societal priorities. www.ssa.gov/news/press/r...

submitted 2 days ago • 54 comments

The City of Fremont, California votes 6-1 to ban camping on public & private - including residential - land for >3 nights. Also prohibits anyone from “permitting, aiding, abetting or concealing” camping on those lands. A violation is punishable by a fine of up to $1000 or up to 6 mos in jail.

submitted 8 days ago • 3 comments

Telehealth made therapy accessible after 10 yrs of suffering from a debilitating, deeply marginalized chronic illness. It makes medical care possible now that I can barely leave the house and helps me prove I’m still disabled when Social Security comes knocking. We cannot lose it.

submitted 19 hours ago • 8 comments

Jeffries: hey the GOP controls the government, absolutely nothing i can do, gonna work on my personal book tour Sanders: brb i am going to personally barnstorm strategic GOP house districts and try to peel off 2 votes so we can block Trump's cuts to Medicaid www.commondreams.org/news/bernie-...

submitted 23 hours ago • 123 comments

Someone please primary CT 2nd district’s Joe Courtney. He is not showing up for this moment.

submitted 21 hours ago • 0 comments

It may not be cool or hip in some circles, but we legitimately do need a massive amount of people to run for office. Flood the school boards, councils, county seats, state legislatures, Congress, etc. Big changes at the top happen when the ground shifts at the bottom. And that can start now.

submitted 1 day ago • 2065 comments

Scientists have found enormous columns of methane gas leaking into the atmosphere from Antarctica, with the potential for further leaks amounting to the sum total of what humanity emits over two years. By @manuelansede.bsky.social for El País…

submitted 23 hours ago • 1 comment

Telehealth isn’t a luxury—it’s a necessity. For many of my patients with Long COVID and disabilities, in-person visits are exhausting, inaccessible, or simply not feasible. Removing telehealth coverage means denying care to those who need it most. We must protect access to virtual care.

submitted 1 day ago • 21 comments

Politico: “Musk says all federal employees need to explain their work immediately — or be let go” Federal employees received an email Saturday afternoon, and gave them a deadline of Monday night. www.politico.com/news/2025/02...

submitted 1 day ago • 1 comment

I wrote my first poem since March last year! About dissociating in my bedroom whilst the visiting nurse was taking 15 vials of blood from my arm. About how nothing is the same as it was, and how life before seems like a mere mirage. I’m normally shy about sharing, but I’m so happy! #pwME

submitted 1 day ago • 2 comments

BBC: 'Please don't abandon our long Covid support' Long Covid patients using a specialist service have said they feel abandoned after being told it will end in March www.bbc.com/news/article...

submitted 1 day ago • 0 comments

Always always always listen to Ed Yong. One of the smartest and most empathetic humans out there.

submitted 1 day ago • 5 comments

Science: 'I’m an NIH-funded researcher, drowning in uncertainty' 'For now, my NIH application portal remains filled with blanks. I’ll keep checking. I’ll keep writing. I’ll keep doing what I can...' www.science.org/content/arti...

submitted 1 day ago • 0 comments

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan

submitted 2 days ago • 2 comments

Nominations for Merryn's Smile Day 2025 are now open. You can nominate a Severe or Very Severe ME sufferer for a special Smile in Merryn’s memory by completing the nomination form on our website. Nominate and find out more: www.smileforme.org.uk/merrynsmileday #MerrynSmileDay #SevereME

submitted 1 day ago • 0 comments

@pausedME @PaulRKeeble @swastrosarah @CraftyMissB @NoHealthNoFun @c4newsteam @guardiannews @MEAdvocatesIre @actionforme @MEFoggyDog @MEAssociation #ChronicIllness #ChronicIllnessMemes #PEM #ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease #PostInfectiousIllness

submitted 2 days ago • 2 comments

Huge thanks to @scishow.bsky.social for warning all the new folks out there dealing with early M.E. as a result of Covid: Exercise makes ME/CFS worse. Big props to @diatoma.bsky.social for proposing this topic! REALLY wish I had seen this a decade ago 😭 youtu.be/wxSwYUennBA?...

submitted 3 days ago • 0 comments

This week's episode of Still Here will land on Tuesday, instead of its regular Friday night drop. Make sure you're subscribed on Spotify, Apple Podcasts, Pocket Casts, Amazon Music, iHeartRadio, or whenever you listen to your favorite podcasts!

submitted 2 days ago • 0 comments

If there's one thing to call about for the next several days, it's this: early next week the house will be voting on a budget resolution that decimates Medicaid. This is an immediate life-and-death issue for so many, and the GOP House majority is razor-thin. Call early and often. And pass it on.

submitted 2 days ago • 0 comments

Medicaid is the main source of funding for aging and disability care, including home and community-based care. Medicaid is critical to the well-being of many in our community. Check out this Protecting Medicaid Toolkit organized by energy levels. docs.google.com/document/d/1... #pwME #Medicaid

submitted 2 days ago • 2 comments

Have you watched this excellent intro to #MyalgicEncephalomyelitis #MECFS #PEM by @scishow.bsky.social ? It's only 8 minutes long & jam-packed with important info (including helping folks with #LongCovid that matches mild #ME identify #PEM & prevent harm 🙏🏻) www.youtube.com/watch?v=wxSw...

submitted 2 days ago • 10 comments

Wow—terrific work by @scishow.bsky.social explaining why exercise can be harmful in ME/CFS! Even gets into the scientific scandal that’s misled doctors for years on this point. Wonderful thing to share w/anyone who’s newly ill, uninitiated family members, or even docs who might not be up to date!

submitted 2 days ago • 4 comments

New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video. Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.

submitted 73 days ago • 2 comments

"REALLY wish I had seen this a decade ago" was my thought precisely! (A decade ago my #ME was mild.) Seeing comments below the video saying "Whoa- I hadn't heard about PEM and that sounds like me" (as well as notes on feeling validated) has made my day/week/month. Gracias @scishow.bsky.social ❤️

submitted 2 days ago • 0 comments

I've been processing the termination of the HHS Secretary’s Advisory Committee on Long COVID, of which I was an unpaid volunteer member. This decision doesn’t just eliminate a committee—it diminishes the voices of millions suffering. 🧵

submitted 2 days ago • 3 comments

Sci Show just dropped a good overview of ME/CFS, and the issue with the PACE trial. Give it a view and a like so that it will get more visibility by the algorithm: youtu.be/wxSwYUennBA?...

submitted 2 days ago • 0 comments

Please read and share. But especially share with folks that might not realize how critical Section 504 is to so many people. I tried to write a simple clear explanation at the break. Gift link here: www.startribune.com/why-are-repu...

submitted 2 days ago • 14 comments

PBS survey about Covid below. It can be used as an opportunity to talk about Long Covid if you take a different perspective on the questions.

submitted 13 days ago • 0 comments

Shoutout to @diatoma.bsky.social who connected to a writer on here awhile back and pitched the idea!!! 👏👏👏

submitted 3 days ago • 1 comment

Scientists are now organizing events, called Stand Up for Science, on 7 March in Washington, D.C., and state capitals. So far, they have attracted more than 100 volunteers from some 30 states who are hoping to rally support for research as a public good. scim.ag/4328LAD

submitted 4 days ago • 2 comments

The court ordered that NIH grant funding be unfrozen, so The Regime found a way around it. For NIH grants to be funded, a review panel must rank them. In order for a review panel to meet, they must post it on the Federal Register. Submissions to the Federal Register are now on hold “indefinitely”.

submitted 3 days ago • 34 comments

SciShow covers #mecfs and #longcovid, explains PEM and some prevalence data. It criticises graded exercise therapy. Not great on the diagnostic criteria or PEM description but it's otherwise supportive and informative from a big YouTube channel. youtu.be/wxSwYUennBA

submitted 2 days ago • 1 comment

This is madness: Kash Patel confirmed as FBI director. Trump is completely dismantling our government and filling it with sycophants and bootlickers. Every warning sign from history is blinking red. If you'd like to see the playbook...

submitted 3 days ago • 3 comments

#MEAction’s Town Hall is February 25th at 2pm PST/5pm EST. Speakers include #MEAction staff members, volunteers, and Omar Wasow (MEAction board), Kehsi Iman Wilson (MEAction Board & NDS), AJ Link (New Disabled South), and Rabbi Elliot Kukla. RSVP: ow.ly/NNYn50V3OZR

submitted 3 days ago • 0 comments

A letter to Cochrane requesting withdrawal of its flawed, outdated 2019 review of exercise therapy for chronic fatigue syndrome, in the wake of the organization's abrupt Christmas decision to abandon a planned update. virology.ws/2025/02/20/t...

submitted 3 days ago • 3 comments

Good to see a popular educational Youtube channel (SciShow) make a concise video on #MECFS and why exercise makes it worse (8 mins). Also includes a brief section on the PACE trial. youtu.be/wxSwYUennBA?...

submitted 3 days ago • 4 comments

@scishow.bsky.social thank you so much for making this excellent video on #MyalgicEncephalomyelitis and #LongCovid! @abrokenbattery.bsky.social youtu.be/wxSwYUennBA?...

submitted 3 days ago • 0 comments

This tweet is about a friend of mine with very severe ME ❤️‍🩹. If you have any ideas, please let me know! #pwme #MECFS

submitted 3 days ago • 0 comments

"the infrastructure around Altadena and the Palisades lacks accessible emergency services attuned to disability needs and coordinated responses to evacuate those who are not independently mobile." By @zacariasm.bsky.social for @prismreports.org prismreports.org/2025/02/19/d...

submitted 3 days ago • 2 comments