Profile avatar
misanthrope-lapi.bsky.social
Formerly functional human being. Covid long-(eternal)-hauler. Lady’s maid to a 3-pound chorkie. Anime, SFF, video games.
140 posts 125 followers 408 following
Regular Contributor
Active Commenter

Avec Daphné, on découvre des choses 😋

Meh #chronicpain #chronicpainmemes #chronicillnessmemes

THE GAUNTLET As sick leave costs spiral, European states move to cut benefits Across France, Germany and the UK the story is the same: people are sicker, and governments are blaming the sick open.substack.com/pub/thegaunt...

Die más. Poem in the Shape of the Poet Beating Henry Kissinger to Death with Their Bare Hands by Felix. tacobellquarterly.org/poem-in-the-...

I don't think my body realizes how healthy my labs say I am

As of today, Long COVID is no longer listed in the U.S. Department of Labor Directory of Disabilities Pages re other diseases/disabilities remain available “It seems like LC has been targeted”

Amazing response by Rob Wust et al. that makes the response by Ranque et al. seem painfully silly. One way sad we still need to refute these nonsense claims, but on the other hand an awesome document why the deconditioning claim by the BPSers is nonsense. www.nature.com/articles/s41...

Super excited to announce we won ELEVEN Vega awards for www.notjustfatigue.org. We hope this will spread our message and educate the general public on ME/CFS

“Despite current popular belief, the immune system is NOT a muscle, and does NOT benefit from being repeatedly challenged with disease-causing microbes. In fact, its finite resources are depleted with each new infection.”

Another day.. another reason to wear the shirt.

This is so important right now. Journalists, your images need alt text so we can search for keywords, so people who use screen readers can understand them. When your images are accessible, people who desperately need this information can access it. Use the OCR tools on your phone. It's so easy.

Apropos of everything, this is the text of the speech I gave when I was one of the guests (with Rivers Solomon and Ryka Aoki) at WisCon in 2023. (It was a great con except for the fact that I'd just found out I had cancer) marthawells.dreamwidth.org/620264.html

“However, during the Omicron era, protection was robust only for those recently infected, declining rapidly over time and diminishing within a year.” No herd immunity! Shocking I know. www.nature.com/articles/s41...

"Techniquement, c'est pas qu'on est POUR l'intolérance. On se demande juste si c'est pertinent d'enseigner la tolérance." - Le PQ presque littéralement

*sigh*

Are you a disabled person who has been affected by the federal funding freeze? Have you been unable to access services, benefits, or care? Share your story with us tonight, February 4, for a Congressional hearing tomorrow. Email your story to [email protected]

Yes! Yes!

"Psychiatrists in Denmark STILL plan to forcibly detain a severe ME/CFS patient." Imagine this happening, repeatedly, around the world, with any other life changing, potentially fatal disease.. 💔 #pwME #ME #MEcfs www.thecanary.co/global/world...

Since I've been ill with #LongCovid I've had so many people wanting to give me advice on what I can do to get better. Most of the time this is coming from a good place. People want to help me and I understand that. But I can find this difficult at times. Short thread on why.

This is my new favourite t-shirt and I will wear it every day until further notice. If you want one it’s here : www.teepublic.com/t-shirt/7120....

On vous a demandé de porter un masque durant la pandémie et on est rendu avec les camps de concentration.

Getting into the practice of using alt text as a gateway to understanding more about digital accessibility has also helped my irl practices too and i hope to just keep becoming better at it. When i say all of us i mean it.

"Resist the urge to think of your own past as a simpler time. The truth is, you were a child with a child’s understanding of the world... Do not make the choice to regress, no matter how much you wish things could be simple again."

Google are a bunch of stupid cowards www.reuters.com/world/us/goo...