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mrsspinster.bsky.social
she / her. Mother. Engineer. I just need twenty minutes where no one comes near me. Wear a mask. Long COVID parent.
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@cjcregg227.bsky.social Happy birthday!! Hope you had a great one!

As I sit here on my second round of antibiotics and oral steroids due to secondary infections from the flu after a MILD infection because I was vaccinated, I'm pretty sure I will die if I can't get a flu vaccine.

New Lancet study shows extremely low, 2%, recovery rate from Long COVID. However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID. www.thelancet.com/journals/lan...

“The Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID”

1000000 times this. If I had listened to the first cardiologist we saw and not fought for appointments and dug my heels in that this was not normal and not anxiety, we would have never gotten a diagnosis and my kid would be labeled lazy and dramatic. And so many places are NOT near a LC Clinic.

COVID was an opportunity to adapt & be a more inclusive society. We could have learned about airborne spread & adopted clean air standards. Improved ventilation. Made more outdoor spaces. Normalized masking. Instead we’ve politicized infection control & made society less safe for everyone

Something you can do to stand against RFK jr’s attempt to make us all sicker is wear a mask when you share air with others. Resist mask bans. People who cannot afford to get sick have a right to exist in public. Masking will protect your health from him too.

I always find it interesting how expensive film shoots still mask up (hint: covid is airborne) to protect the talent and thus budgets. And... well.... no other employers do.

Why is prednisone the best and also THE VERY WORST. I have been up since 1:45 am and I am skeptical I'll be able to sleep any time soon. I am both desperate to wind down and also I'M SO EXCITED.

"As of February 11, Long COVID is no longer included in AskJAN’s directory of disabilities. The website’s Long COVID resources — which previously included information about the disease’s legal status, key symptoms, and suggestions for accommodations — are also unavailable." #LongCovid #pwME

not to be that guy but sorry ... not a majority

Join us on February 12 at 9:30 AM PT / 12:30 PM ET for a Disability Community Briefing on #TexasvBecerra — a lawsuit that threatens #Section504. Section 504 is a crucial disability rights law that ensures equal access to schools, healthcare, and more. Register: dredf-org.zoom.us/webinar/regi...

Respectfully, you need to stop doomscrolling and get enough rest so you have the energy you need to deal with any new national garbage fires tomorrow. Plus normal life stuff. And don't forget to charge your phone outside of your bedroom.

brilliant advice from @broadwaybabyto.bsky.social abt coping with, well, the shitstorms. www.disabledginger.com/p/spoon-savi...

Sunshine and i have moved on to our secondary infections from the flu. PLEASE GET YOUR FLU VACCINE EVERY YEAR.

Everything is terrible, but the national parks talking shit about each other on tt is making my day.

There’s a direct line between academic “leaders” being willing to tolerate the misinformation in headline #1 5 years ago and headline #2 today. I don’t know if anyone predicted all this, but many of us tried to warn them these were bad faith actors.

The way this news has me spiraling since we only just figured out WHAT Long COVID in kids is, and now we have to still wait longer to figure out what to do about it.

By Julia Marie @julia_doubleday "Worked hard on this, and I hope it will be a useful resource for many." A beginner’s guide to Long COVID, with a discussion of mechanisms: X source: x.com/julia_double...

I just climbed out of bed, got the thermometer, and climbed back in bed and my fitbit was like, "awesome! Are you exercising? Your heart rate says you are!!" SOME OF US ARE JUST STRUGGLING TO BREATHE, OKAY. 😂 (Get your flu shot so fewer vulnerable people end up sick. Please and thank you. )

If you are ever tracking symptoms or meds for someone, no matter the age, I cannot recommend the Baby Connect app enough. I've been using it since Bug was born and it's so helpful for tracking things so you don't have to try to remember them. Also? GET YOUR FLU VACCINE.

BREAKING: The Household Pulse Survey, a key source of Long COVID prevalence data, was among the CDC pages taken down today following Trump's order to remove “gender ideology” references. More @thesicktimes.bsky.social: thesicktimes.org/2025/01/31/b...

My relationship with @mrscrankiepants.bsky.social in a nutshell.

youtu.be/qnGXcKQ7rHo?...

there were 76 days between election day and trump's inauguration day. him taking the presidency was not a surprise that suddenly happened on jan 20. and yet, right now, the democratic party is STILL SAYING it wasn't ready for this and that it is STILL getting its footing.

If you’re not familiar with the Nazis Aktion T4 program, please look it up. Too many folks forget that Hitler targeted disabled people first. No one spoke up, and rampant ableism means little has changed in 80 years. Centre disabled people in your resistance planning. We can help.

Here’s what Democrats should do: Oppose. Oppose all of it. In every way. Anything less is compliance. I don’t want to hear the mealy mouthed excuses.

Please note that almost 2000 people died from Covid in the US last 2 weeks alone. I presume testing and surveillance is lacking, so the death toll is likely higher. The Covid pandemic isn't over. (data reported from BNO News; my original thread on X/Twitter)

Y'all. It's only Wednesday.

You won't see a better 7 minutes today....