naomidharvey.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

How to support your child with Long Covid : the importance of the family danilobuonsenso.substack.com/p/how-to-sup... If you find it useful, please like and share it wifely! free access. Next episode will be on role of schools and teachers

submitted 12 hours ago • 1 comment

Spotted a queen bee 🐝 through the window today. She was feeding on the winter clematis flowers. Love that something I chose and husband planted to provide food in winter for pollinators is doing exactly that 🥰

submitted 1 day ago • 1 comment

A tumultuous 24-ish hours since our preprint was released yesterday. I mentioned that this was a fraught issue and I genuinely do understand that people have mixed feelings about the work. I wanted to take some time to respond to some of the concerns and comments that have 1/

submitted 3 days ago • 3 comments

Two medical education wins to share! The Anki Flashcards we created about ME/CFS & infection-associated diseases have been recommended by CDC on its new ME/CFS page for medical students! We have upcoming Reddit live Q & A on Feb. 24! H/T to #MEAction GA! Article: meaction.net/2025/02/20/m...

submitted 2 days ago • 1 comment

To put this in perspective: I don’t believe they’re saying 27% of those infected now have the severe, disabling condition many here have. US estimates say 1 in 22 (4.5%) of infections become ME/CFS within 6 months. 27% is very high & captures any worsened health

submitted 2 days ago • 1 comment

Good to see a popular educational Youtube channel (SciShow) make a concise video on #MECFS and why exercise makes it worse (8 mins). Also includes a brief section on the PACE trial. youtu.be/wxSwYUennBA?...

submitted 3 days ago • 4 comments

🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it. We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️

submitted 2 days ago • 2 comments

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan

submitted 2 days ago • 2 comments

Migraine is more than a headache — a radical rethink offers hope to one billion people H/t to @ceomomco.bsky.social for sharing this the other day. Reposting ICYMI. #MigraineChat

submitted 4 days ago • 2 comments

I wish this were less bad, but here we are. Mask up, folks. You do not want to find yourself living my life.

submitted 3 days ago • 2 comments

New Lancet study shows extremely low, 2%, recovery rate from Long COVID. However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID. www.thelancet.com/journals/lan...

submitted 3 days ago • 11 comments

Reminder that along with having children with #MECFS thrown in swimming pools, obstructing biomedical research for decades (leaving millions chronically and debilitatingly ill) Simon Wessely also fabricated claims that the community sent him death threats. retractionwatch.com/2016/08/17/u...

submitted 4 days ago • 0 comments

#EmotionalSupportSpood #FingerSpood (Young Phidippus clarus lass, grooming a foot) Goodnight y'all 🤎

submitted 4 days ago • 2 comments

New drugs targeting Epstein-Barr virus (EBV) show promise for cancers and autoimmune diseases. Therapies focus on EBNA-1 inhibitors, G-quadruplex disruptors, and somatostatin receptor blockers, offering new hope for EBV-related illnesses. www.sciencedirect.com/science/arti...

submitted 4 days ago • 1 comment

Years ago, after the Cambridge Analytica scandal, I interviewed a former fb employee, and I remember her continually emphasizing that these tech bros weren't evil geniuses, but were, in fact, dangerous because they were utterly clueless, totally reckless, and had too much power.

submitted 4 days ago • 296 comments

I spent weeks looking at the transmission dynamics of H5N1 in California and came to exactly the same conclusion, namely that the scale of transmission could only be fully explained if long-range airborne transmission was a factor. www.ctvnews.ca/health/artic...

submitted 4 days ago • 10 comments

Brushed my hair and now I can’t grip a glass or cutlery and even trying to type hurts my hands. This will be a problem for the rest of the day and maybe tomorrow now. That’s life with #MEcfs for some of us (and no, it’s not deconditioning).

submitted 4 days ago • 7 comments

2025. Experiments show wild fish can recognize individual divers phys.org/news/2025-02...

submitted 4 days ago • 0 comments

We’re now on Blue Sky! Hoping to make new connections here and further support all the awesome #LongCovid and #MECFS charities and advocates in the community. For those who don’t know us we’ve attached some of our work! Billboards, leaflets and car stickers. The latter two are free! DM us!

submitted 5 days ago • 4 comments

People with ME, what meds have helped you most with sleep? I'm not having trouble, it's for something else. What meds for sleep were you offered that really didn't help and/or made sleep worse? If you'd rather DM just ask :)

submitted 5 days ago • 50 comments

Is premenstrual syndrome (PMS) a uniquely human phenomenon? Possibly not! Let's take a look at a 2018 study by Nadia Bellofiore and colleagues, who found evidence of PMS symptoms in spiny mice, the only rodent known to menstruate...

submitted 5 days ago • 1 comment

Today’s #ThereForME blog is from an anonymous healthcare worker She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like. www.thereforme.uk/p/designing-...

submitted 5 days ago • 0 comments

I started eating real food again in 2024!…I have now stopped the Peptamen food formula completely, and get all my calories from real food!...And I want to tell you because I want you to hear this story!...what will 2025 bring? #MECFS New post on my blog: www.whitneydafoe.com/mecfs/?post=...

submitted 6 days ago • 37 comments

We had some sleet recently and I tried my microscope-phone lens on a snowflake. You can see it was sleet as it was already part melted (the flake was caught by landing it on a frozen Tupperware container to keep it from melting)

submitted 6 days ago • 1 comment

Taking a look at some seeds under the phone-microscope. These are dried Allium seeds sitting in their pods.

submitted 7 days ago • 1 comment

Here's a link to Part 2 in this webinar series in case you missed it earlier today! @renegaderesearch.bsky.social Roundtable Q&A with Dr's Azola, MD and Peter Rowe, MD - part 2 youtu.be/WNviezRXUWY?... #research #webinar #mecfs #longcovid #event

submitted 8 days ago • 1 comment