patientlibrary.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

New episode of The Lancet Voice podcast where I talk about the rapid expansion of the global gambling industry and its profound public health implications, drawing on our Lancet Public Health Commission on Gambling podcasts.apple.com/gr/podcast/t... @thelancetph.bsky.social @uofgsocsci.bsky.social

submitted 6 hours ago • 0 comments

I don’t mind my information going to the Moon, but I don’t want any letters from Mars: a qualitative exploration of the challenges with secondary use of health data in Ireland Tina Bedenik, Caitriona Cahir & Kathleen Bennett archpublichealth.biomedcentral.com/articles/10....

submitted 9 hours ago • 0 comments

Our peer researcher Sue has learnt a lot working on a project about severe mental illness & physical health, exploring 'how we could best support people living with SMI to...live well in a way that works for them'. Read it here! 👉 bit.ly/3QwZJ7h @dansteward.bsky.social @ejoliver.bsky.social

submitted 11 hours ago • 0 comments

Have you read this great blog on @careopinion.org.uk from NHS Greater Glasgow & Clyde's Pulmonary Rehab Service? Its a brilliant example of what you can learn from the public if you actively seek feedback www.careopinion.org.uk/blogposts/12... #PatientFeedback #HealthcareImprovement #PublicFeedback

submitted 1 day ago • 0 comments

Just in case you missed it, we have a great blog on @careopinion.org.uk from our friends at South Lanarkshire University HSCP, about "The power of lived experience in Justice Social Work Services" www.careopinion.org.uk/blogposts/12... #JusticeServices #ServiceUserFeedback #Feedback

submitted 1 day ago • 0 comments

Remarkable feedback on @careopinion.org.uk from a non-verbal patient with cerebral palsy. #Craigavon www.careopinion.org.uk/1325024

submitted 1 day ago • 1 comment

Check out my latest article: Queues, not demand are the biggest problem in NHS A&E departments www.linkedin.com/pulse/queues...

submitted 2 days ago • 0 comments

It’s weird that KF can do a whole long read on #NHSadmin /NHS communications being insufficiently joined up (true, obv) without mentioning a) much of it has been outsourced (Capita etc) b) much of the rest got dumped on clinical staff to do as admin teams & office space slashed in “lean” reforms?

submitted 4 days ago • 4 comments

World Obesity Day brought to us by..... #DisclosureIsNotEnough, (True) #IndependenceNeeded #COI #CDoH #Obesity #Pharma www.worldobesityday.org [And this is not to discount the need to better support people of higher weight, however they wish this support to be provided (if at all)]

submitted 6 days ago • 0 comments

How British people think about health has changed frameworksuk.org/wp-content/u... Instead of… starting with health inequalities Try… explaining how resource inequalities give rise to health inequalities

submitted 7 days ago • 0 comments

Carers and patients with long-term health conditions are significantly more likely to experience issues with NHS admin and communication that impact their care, according to a new report from the King’s Fund. www.learningdisabilitytoday....

submitted 6 days ago • 0 comments

Exploring Public Member Experiences in Health and Care Research webinar 27 Feb, 2-3pm Does public involvement in health and care research differ across geographical settings and disciplines? Insights from those directly involved in NIHR funded projects in the UK and Lower/Middle Income countries

submitted 6 days ago • 0 comments

#EpistemicInjustice #philsky

submitted 6 days ago • 0 comments

The direct evidence of the bereaved should not be squandered. ❤️ #CovidInquiry

submitted 7 days ago • 2 comments

The his is cool! My erstwhile colleagues from @nationalvoices.bsky.social are in the Guardian. With a story about bad NHS admin - my favourite topic... well done! www.theguardian.com/society/2025...

submitted 8 days ago • 0 comments

How can care home staff support people with dementia to be meaningfully engaged in activities? Building on her PhD, Dr Kat Strick worked with care homes to develop a workbook & ideas cards to support this. @penarc.bsky.social @ecehh.bsky.social @jog13.bsky.social arc-swp.nihr.ac.uk/research/pro...

submitted 8 days ago • 0 comments

New research using @careopinion.org.uk: "Analysis of patient narratives reveals complex relationships between solidarity and dissatisfaction" with the NHS. @uofglasgow.bsky.social www.tandfonline.com/doi/full/10....

submitted 11 days ago • 0 comments

We love @careopinion.org.uk when services listen to patients and act on their feedback. Although this patient had a great experience of care, they couldn't find where they were supposed to go! The service listened and planned to make a change based on their Experience! www.careopinion.org.uk/1312458

submitted 13 days ago • 0 comments

People with lived experience of mental health challenges should be at the heart of transforming Scotland’s mental health system. Here's what you told us you want from Scotland's #MentalHealth & #Wellbeing Strategy. Report scottishrecovery.net/resources/a-... Animation youtu.be/sTHJJ4ffkF4?...

submitted 13 days ago • 0 comments

"Now is the time to strengthen our systems for addressing conflicts of interest, separating harmful industry funding from science, & acknowledging that public health research should seek to serve the public good, not the profit motives of vested interests" academic.oup.com/heapro/artic...

submitted 14 days ago • 1 comment

Have a read of this fabulous blog from our friends @careopinioncanada.bsky.social. Its from a Healthcare providers experience and titled "A Journey Of Coordinated Care" www.careopinion.ca/blogposts/6/... #PatientExperience #PatientFeedback #HealthCare #HealthcareJourney

submitted 14 days ago • 0 comments

Meanwhile, this side of the Atlantic, it’s not any better. Though the UK isn’t quite suffering the acute turmoil seen in the US, we have sustained inequality and harm. MBRRACE data from 2024 makes for stark reading and tells us that there is much work to be done. www.npeu.ox.ac.uk/mbrrace-uk

submitted 16 days ago • 0 comments

Read our latest issue in full ➡️ tinyurl.com/2rz7b357 bsky.app/profile/thel...

submitted 15 days ago • 4 comments

Commendable leadership from the Editorial of @thelancet.bsky.social 👏👏👏 "Equity - treating according to need - is fundamental to what medicine is. And that to care is an act not of weakness, but of strength." American chaos: standing up for health and medicine www.thelancet.com/journals/lan...

submitted 18 days ago • 0 comments

Excellent article on impact of loneliness on recovery of older people leaving hospital. @nihr.bsky.social www.southamptonbrc.nihr.ac.uk/post/lonelin...

submitted 19 days ago • 0 comments

We need your help - have you supported someone in hospital/care/nursing home or mental health unit since April 2024 - if the answer is yes, please do take our very very short survey on visiting/being able to support them - thank you #GloriasLaw #RightsForResidents docs.google.com/forms/d/e/1F...

submitted 18 days ago • 0 comments

Adolescent girls’ explanations of high rates of low mood and anxiety in their population: a co-produced qualitative study bmcwomenshealth.biomedcentral.com/articles/10....

submitted 19 days ago • 2 comments

@patientlibrary.bsky.social Many thanks for including our paper on commercial influences on #PPI in your latest newsletter; hope it's useful to your network Paper: academic.oup.com/heapro/artic... Report: www.patientlibrary.net/cgi-bin/libr... @jameslarkin13.bsky.social @healthpromint.bsky.social

submitted 20 days ago • 2 comments

Join us on 7 March for 'Pregnant in exile: asylum seeking women’s experiences of maternity care'. This webinar will discuss and showcase the issues women in the asylum system face during their pregnancy, birth and postnatal period. Learn more and book now:

submitted 20 days ago • 0 comments

Super interesting. Have shared with the young woman and young man in my life. Various things have reminded me recently of how bewildering it was to be a young woman, working class, smart, confident, and yet so much craving for approval from people who didn't have my interest at heart.

submitted 20 days ago • 0 comments

Retweeting this because I think it is important: if openness means anything in the NHS, it must include making problems more visible. Increasingly, critical reports (of which these are just an example) are not coming to pubic boards for discussopn.

submitted 20 days ago • 0 comments

As of April 2024 over a million people were on waiting lists for mental health services, with 345,000 waiting over a year. That's why @commonshealth.bsky.social launched an inquiry into community mental health services. Today is the last day to submit evidence 👉 buff.ly/3VPB7d9

submitted 21 days ago • 3 comments

"The use of @careopinion.org.uk as an accessible and meaningful mechanism for providing feedback on Justice Social Work Services has required a thoughtful and tailored approach." Encouraging blog from South Lanarkshire HSCP www.careopinion.org.uk/blogposts/12...

submitted 21 days ago • 0 comments

Often when I’m talking ppl through potential research impact, I ask who has power, or what power they themselves have. And almost always ppl want to complain they don’t have any power. But digging usually shows that means they don’t have total authority, and neglect things like influence, legitimacy

submitted 21 days ago • 1 comment

"Patient feedback is intervention, not just information" - my new blog on @careopinion.org.uk highlighting recent US research ☺️ www.careopinion.org.uk/blogposts/12...

submitted 22 days ago • 0 comments

A relatively short piece of guidance, a huge work programme ahead for the health and care system to put the Neighbourhood into the NHS (the Neighbourhood Health Service, that is). @nigel-edwards.bsky.social & I assess the scale of the challenge for @pplthinks.bsky.social ppl.org.uk/neighbourhoo...

submitted 22 days ago • 1 comment

📣 New publication: Designing inclusive & trusted digital health services with people Why: -Darzi report:dire state of NHS partly due to not listening to patients -people excluded from digital health because of poor design -greater opportunity to better know patients & improve services with digital

submitted 26 days ago • 1 comment

Twitter (X) and the Commercial Determinants of Health: Characterizing the Most Amplified, Influential, and Connected Voices Driving Twitter Discourse About Tobacco Regulatory Policy From September 2019 to July 2021 journals.sagepub.com/doi/10.1177/...

submitted 26 days ago • 0 comments

Lovely story this week on the @careopinioncanada.bsky.social platform. And the title says it all! 😊 www.careopinion.ca/145

submitted 27 days ago • 0 comments

Important point from @nhsconfed.bsky.social. www.hsj.co.uk/policy-and-r...

submitted 27 days ago • 0 comments

Will do a proper thread on this when I can, but HURRAH you can see a summary of the Youth LIVES mental health coproduction work here sites.google.com/york.ac.uk/y... Summaries of what young ppl asked professional researchers about, our methods, and fantastic summaries of the projects they designed

submitted 27 days ago • 1 comment