pearlavery.bsky.social
Grandmother mother wife and PhD candidate @BU #IBD #GASTRO #ANP #Medsmanagement #DigitalHealth views my own #NHSCEP @CrohnsColitisuk Nurse @BJNursing GI/IBDNurse 2018 #NHS đ
52 posts
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339 following
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Read more âŹď¸ #RCN25
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Thank you Helen xx
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Your experience is why the campaign to improve and speed up diagnosis matters so much. !!!
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I hope that you recover soon !
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Such a horrible feeling not being able to do the things we expect of ourselves and that society expects of us !
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So important to share the truth that some people live with!!! #IBD #Crohnâsdisease
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So sorry to hear your journey has been so difficult
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Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
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My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
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Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
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Hello FNF
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âĽď¸
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Okay thatâs useful to know
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Me to feels nicer hoping more will follow us over Paula x
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Literally flying high !!
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Hello FNF đ
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Hope youâll have future events this looks interesting
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Thatâs a great mindset and bit of advice
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The truth I found is; no matter how bad it gets IT WILL IMPROVE, it might take a while, but it will improve. Trust me, I've been there
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Thanks Harry đ