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🏅Our Tammy Prescott public and patient involvement award goes to the team behind the Victoria and Stuart Project! The project was a codesign of a toolkit of resources for advanced care planning for those at the end of life with learning difficulties.

submitted 12 days ago • 1 comment

'Dads' Takeaway nights' - most effective in engaging fathers of children who have died suddenly - Sarah Hodkinson and Lisa Dennis from Shooting Star Children's Hospices #MCResearch2025 on their bereavement support model. Very moving and available on catchup www.shootingstar.org.uk/news/shootin...

submitted 17 days ago • 0 comments

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

submitted 18 days ago • 1 comment

Most carers of people at the end of life are significantly older, most aged over 65 years, 20% aged over 80 years - striking findings that chime with my experience of my mother caring for my father for > 2 years, aged 84+, Clare Gardiner Sheffield #MCResearch2025 www.sheffield.ac.uk/palliativere...

submitted 17 days ago • 0 comments

Really important new data on unpaid carers from Clare Gradiner, Sheffield #MCResearch2025: between 150,000 and 180,000 people every year are providing unpaid care for someone at the end of life - around 4% of household carers in the UK @mariecurieeolc.bsky.social www.sheffield.ac.uk/palliativere...

submitted 17 days ago • 0 comments

Always shocked by the number of people dying in poverty in the UK - 111,000 in 2023, up from 90,000 in 2019 - higher risk for working age people, women, black minorities, North East, Wales @drjulietstone.bsky.social @helenbarnard.bsky.social @mariecurieeolc.bsky.social #MCResearch2025 bit.ly/42UPfpK

submitted 17 days ago • 0 comments

Last day of the @mariecurieeolc.bsky.social Research into Practice conference - another great line up of interesting presentations! I did not manage to catch all sessions live yesterday and Tuesday but will watch them all on catchup #MCResearch2025 mariecurie.ivent-pro.com/events/resea...

submitted 17 days ago • 0 comments

Session recording from @spbowers.bsky.social @felicitydewhurst.bsky.social on palliative care for people with multiple long-term conditions #MCResearch2025 now live-this is addressing priority 5 of the new @jameslindalliance.bsky.social Peolc research priorities healthopenresearch.org/documents/7-2

submitted 18 days ago • 1 comment

Very interesting abstract session #MCResearch2025 - great to hear from Lynne Partington from @eolp.bsky.social about the @mariecurieeolc.bsky.social impact grant on involvement of activity coordinators in care homes to improve identification and management of depression

submitted 18 days ago • 0 comments

Great to be finally able to share the refreshed research priorities identified+prioritised by people with lived/professional experience, a partnership with @jameslindalliance.bsky.social @mndassoc.bsky.social, ESRC @mariecurieeolc.bsky.social Report here: healthopenresearch.org/documents/7-2

submitted 18 days ago • 0 comments

🏅Congratulations to all the Marie Curie Research into practice conference 2025 prize winners! We'll be posting about each individual winner soon. In the meantime, check out this conference booth to explore the winning research - mariecurie.ivent-pro.com/events/resea... #MCResearch2025

submitted 19 days ago • 0 comments

I'm one of over 70 people tuned in for Stephanie Crawford from @qubelfastofficial.bsky.social School of Psychology's presentation on #deathliteracy at the Marie Curie annual conference #MCResearch2025

submitted 20 days ago • 0 comments

Great to hear about the partnership approach to discussing and researching end of life care for people with HIV by @mariecurieeolc.bsky.social community team and @thtorguk.bsky.social @brionyhudson.bsky.social great to see the use of the Life Cafe in the first stages #MCResearch2025

submitted 20 days ago • 0 comments

How do you say "I don't know" whilst maintaining trust? Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out. Register here: www.mariecurie.org.uk/research-and... #MCResearch2025

submitted 27 days ago • 1 comment

Delighted to be presenting 2day at Marie Curie 'Research into Practice' conference. The conference is online and free for all to attend. Join us as we give a voice to those with incurable #HNC, sharing key priorities for transforming complex care. #MCResearch2025 @sheilapayne1.bsky.social

submitted 20 days ago • 0 comments

At the @mariecurieuk.bsky.social Research Into Practice Conference these days? 💡 #MCResearch2025 Then check out our @dappleproject.bsky.social poster booth! 🔍 It's called: Developing effective service models for Adult Palliative and end-of-life care for People with a LEarning disability: DAPPLE

submitted 20 days ago • 2 comments

Such interesting insights from the session on the NI School Bereavement Programme on embedding grief education on the school curriculum #MCResearch2025 - young people are so much more open to talk about grief than adults seem to be www.mariecurie.org.uk/research-and...

submitted 20 days ago • 0 comments

Most people that ambulance services encounter who are at the end of life have not been previously identified as such - often people with frailty @edwardobrian.bsky.social @mariecurieeolc.bsky.social #MCResearch2025 - we need better recognition of the end of life for this population in primary care

submitted 20 days ago • 0 comments

There is an urgent need for more and better routine service data on people at the end of life and social and community care @sarahscobie.bsky.social #MCResearch2025 -the report presented in the first session of the @mariecurieeolc.bsky.social conference is here www.mariecurie.org.uk/document/pub...

submitted 20 days ago • 0 comments

Our new report on with the Health Economic Unit and @mariecurieuk.bsky.social 👇

submitted 26 days ago • 1 comment

The Marie Curie Research into Practice Conference is finally here, starting today at 10am #MCResearch2025 mariecurie.ivent-pro.com/events/resea...

submitted 20 days ago • 0 comments

I'm so excited - It's almost time for the annual @mariecurieeolc.bsky.social Research into Practice Conference - it's online, it's free and attendees can dip in and out to view sessions of particular interest. All posters now live! (click on compass sign) mariecurie.ivent-pro.com/events/resea...

submitted 24 days ago • 0 comments

REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care. The results will help shape research funding - so have your say, especially if you are have a social science or humanities background!

submitted 52 days ago • 1 comment

"Wes Streeting is right. No one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change." 💔 Read more from Dr Sarah Holmes: www.lbc.co.uk/opinion/view... #FixEndofLifeCare @rthonwesstreeting.bsky.social @lbc.co.uk

submitted 52 days ago • 0 comments

There's one more week to nominate someone, or even yourself, for the Marie Curie Prizes for Research Impact or PPI involvement! A great opportunity to highlight your work and win £1,000 - deadline is 10 January 25. Scroll down to the prize section here: www.mariecurie.org.uk/research/ann...

submitted 59 days ago • 0 comments

UK-based researchers in palliative and end of life care: please take part in this important survey identifying the current #palliativecare research workforce.

submitted 76 days ago • 0 comments

Registration for the Marie Curie Research into Practice Conference is now open. Online and free and open to everybody interested in palliative and end of life care evidence. 11-14 February 25, 4 sessions per day. Registration link: mariecurie.ivent-pro.com/events/resea...

submitted 80 days ago • 0 comments