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sarah-swan.bsky.social
9 posts 100 followers 578 following
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The Rest is Politics podcast posted a questions request earlier today and I asked for their take on the ME Delivery Plan not being funded. It would be great if anyone else who has the energy could ask too. This would give it a fighting chance of being included in the podcast! @thereforme.bsky.social

submitted 1 day ago • 0 comments

🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it.  We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️

submitted 2 days ago • 2 comments

Our co-founder @karenlhargrave.bsky.social quoted in @thetimes.com today on news this week that no additional funds are planned for the new ME delivery plan. www.thetimes.com/uk/healthcar...

submitted 4 days ago • 2 comments

Support for ME isn’t just for Christmas! Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today. www.thetimes.com/comment/colu...

submitted 4 days ago • 0 comments

To everyone with #ME who has been unwell since long before the pandemic, knows they not getting any better, and feels as if they have been forgotten: I may not know you by name but I think of you every single day. 2025 is going to be different. Hopefully better. With love and respect from me to you.

submitted 53 days ago • 9 comments

Word of the Day is one I keep posting at the end of the year, hoping its time will come. ‘Respair’, from the 16th century, is fresh hope, and a recovery from despair. Here’s to a few drops of respair in 2025.

submitted 54 days ago • 208 comments

I post a lot of good news about dogs on Twitter but A lot of people asking to also post here now. Struggle to find the time but if I get over 20k followers here I'll find a way to post daily. 🎤 Mic check. Is this thing on?

submitted 102 days ago • 1140 comments

A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️ theconversation.com/ignored-blam...

submitted 125 days ago • 17 comments

A timely reminder of how members of this "ideological sect" were key players in the culture wars in recent years www.theguardian.com/commentisfre...

submitted 128 days ago • 4 comments

Thinking about the issues listed in this thread, it seems to me that there's a strong case for a public inquiry into the chronic mistreatment of people with ME/CFS.

submitted 128 days ago • 13 comments

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...

submitted 128 days ago • 49 comments