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sarahwestonrd.bsky.social
Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume. Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍 Facilitator PACE program 👣🫂🌈
30 posts 502 followers 1,006 following
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Posts 23 Comments 27

We need medical research funding for long covid and ME. We need NHS services that can manage symptoms and prescribe experimental medications. We need care, understanding and health professionals to be trained in ME. www.bbc.co.uk/news/article...

submitted 4 days ago • 2 comments

At the heart of every attack on disability benefits is the myth disabled people “get perks”: a free car, loads of cash, a life off work. It misrepresents the reality of disability, whilst exploiting low wages and high living costs to make the public envy people in daily pain.

submitted 6 days ago • 70 comments

🚨1/11. NEW: #LongCovid services are failing patients!! A joint report from us at Long Covid Support & @longcovidkids.bsky.social reveals: 🔴 There are clinics closing 🔴 Care is inconsistent & often falling short of NHS commissioning guidelines More & link below!! ⬇️ #ClosingClinics

submitted 7 days ago • 2 comments

Our study on the prevalence of #LongCovid analysing data from over 750K people in England. Will do a thread of main findings later today. Watch this space. www.euronews.com/health/2025/...

submitted 7 days ago • 3 comments

1/3 Considering new research from @long_covid & @LongCovidKids yesterday which shows 1 in 2 people with #LongCovid now consider themselves to be disabled by the condition, wonder where this sudden, staggeringly huge, entirely novel group of disabled people fit into the #GreenPaper?

submitted 6 days ago • 1 comment

If you’re interested in a crash course from the beginning in chronic issues with COVID I recommend this excellent interview with David Putrino. Perhaps the least well understood consequence is the damage every infection likely causes everyone, symptomatic or not. www.cbc.ca/player/play/...

submitted 9 days ago • 13 comments

Five years on from the COVID-19 pandemic, almost one in 10 people are unsure if they have Long Covid. Read about the latest research from @nisreenalwan.bsky.social and colleagues. www.bbc.co.uk/news/article...

submitted 6 days ago • 5 comments

Our research shows that almost 1 in 10 of people in England are not sure whether they have #LongCovid www.dailyecho.co.uk/news/2500763...

submitted 7 days ago • 7 comments

It’s been a while since we’ve published a report on @independentsage.bsky.social but the issue of DEI in science is hugely important. We cannot let the political and ideological motivations of the Trump administration undermine robust, rigorous and inclusive science. Please share.

submitted 7 days ago • 3 comments

Proud to have co-authored a new @longcovidsupport.bsky.social @longcovidkids.bsky.social report on Long Covid clinics in UK. #LongCovid services must a) not close & b) meet the needs of people with Long Covid. Please share🙏 #ClosingClinics

submitted 7 days ago • 1 comment

It was lovely to contribute to the @long_covid textile banner recently. I'm not an amazing sewer but I volunteer for them and wanted to help! This had elements of tracking, acceptance and hope. The day I sent it I'd had #LongCovid 1500 days, the number of tallies in the piece.

submitted 31 days ago • 1 comment

📣 Some of the work we do is in #LongCovid research. Several of our charity members have been involved in an array of research and have co-authored many significant papers. Take a look at some of them on our website - Link below! ⬇️ #ResearchLongCovid

submitted 53 days ago • 2 comments

Well done people, such great and very impt work. 🙌🙌🙌🙌 Let us not underestimate how much work that would be for anyone - and you've all achieved this and have Long Covid. I hope you're all back home safe and have somewhere cosy to hunker down and rest up after an exciting and intenso day xxx

submitted 104 days ago • 1 comment

5 Recommendations for #Journalists reporting on #LongCovid in #children Please share this infographic 👇 New publication investigates how #LongCovidKids are portrayed in #media reports. Co-authored by @nisreenalwan.bsky.social and @sammiemc.bsky.social Source: journals.plos.org/globalpublic...

submitted 109 days ago • 2 comments

🚨ANNOUNCEMENT🚨 We are assisting Jo Platt MP setting up a UK #LongCovid APPG & need your help!! ⭐️Please contact your MP now & ask them to get involved. They have an official invite but let’s get our voices heard!⭐️ See link in comments below for suggested content for your email. ⬇️⬇️⬇️ #WeWillBeHeard

submitted 111 days ago • 7 comments

A new BMJ review claims that #LongCovid can be treated using CBT and physical exercise As ever, the devil is in the detail TL; DR the authors' own risk-of-bias analyses show that their own conclusion is unwarranted (Too bad they hid the crucial deets in an online supplement!) cc #pwME #MECFS

submitted 116 days ago • 27 comments

The #LongCovid community have been saying the same. #LongCovid is the elephant in the room & we need leadership in govt & healthcare to acknowledge the let it rip strategy has been an unmitigated disaster for all generations alive & the harm needs to stop. We can all see it, why can't they say it?

submitted 118 days ago • 0 comments

The #LongCovid community have been saying the same. #LongCovid is the elephant in the room & we need leadership in govt & healthcare to acknowledge the let it rip strategy has been an unmitigated disaster for all generations alive & the harm needs to stop. We can all see it, why can't they say it?

submitted 118 days ago • 0 comments

🚨 Huge political disconnect between UK employment reforms & UK #LongCovid prevalence/devastating impact klaxon 🚨 'Inactive' 'Long term sick' - think #LongCovid illness & disability 'CYP left behind' - think #LongCovid illness & disability www.gov.uk/government/n...

submitted 118 days ago • 1 comment

Very happy to help anytime @katha1970.bsky.social 😊😊😊

submitted 122 days ago • 1 comment

My first post has to be about #LongCOVID 🔹 400 million individuals affected worldwide 🔹 $1 trillion in annual economic costs 🔹 Countless lives & communities shattered The time for a comprehensive policy and research response is now! Details in our review here www.nature.com/articles/s41...

submitted 156 days ago • 111 comments

Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment. Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...

submitted 123 days ago • 12 comments

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 1/

submitted 124 days ago • 68 comments