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siobhangaynor.bsky.social
Metastatic Breast Cancer patient and researcher. Stage 4 Cancer advocate for better care, research, epidemiology and clinical guidelines. Irish. #oncsky #bcsm
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Did you miss #SABCS24 last week? No worries! Here's my @fredhutch.bsky.social SABCS24 wrap story w/insights into #cancer treatments & #cannabis; #ctDNA; #obesity & #epigenetics, #FES-PET & much more. #cansky #oncocsky #medsky #bcsm @thankscancer.bsky.social www.fredhutch.org/en/news/cent...

Message from Mand 👇 She lifted it from another social account; not sure of its origin but we love the message. #IamStillHere #MetastaticCancer #Cansky Mand is a #CancerDinosaur

Now, on to liver mets with Dr Peter Vermeulen: not all liver mets are equal. #SABCS24

Congratulations to DR Steffi Oesterreichs @oesterreichs on her AACR Award. She has done sooooo much for people with ILC, not just through her brilliant research, but through her embrace of and collaboration with advocates. @metavivor is so proud to have funded her! #SABCS24

#SABCS24 Day 1 Highlights #CommunityOnc: 1. @FDAOncology Reviews recent approvals: #Ribociclib & #Inavolisib 2. #PADMA: HR+ ET + CDK4/6i vs Chemo 1L 3. #DB06: HR+ TDXd 4. #KN522: biomarker analysis #OncSky #CanSky @sabcs.bsky.social @drsarahsammons.bsky.social @dr-rshatsky.bsky.social 1/5

Next up, @fredhutch.bsky.social's Dr. Sara Hurvitz moderates a packed panel on clinical approaches to ER+ #metastatic #breastcancer. Happy to see patient advocates on so many panels! #AmyBeumer will be bringing in the patient voice here. #bcsm @oncoalert.bsky.social #sabcs24 #cansky #oncosky

I’m so glad I listened to the oncologist on this. It felt counterintuitive to go for a walk when I was so fatigued from chemo. But it really did help. 1/2 #graphicmedicine #cansky #breastcancer #lifewriting

The food you eat may be affecting your body's ability to fight cancer cells. MSK's gastroenterologist Dr. Robin Mendelsohn explains what may be the cause (via @cnn.com ) ⬇️ #cansky

Remember for my YAs out there particularly…. More and more advocacy work is needed to show that with a YA #Cancer diagnosis there is much more at play. -time off work -fertility -financially planning -social circle pressure Just some of the things🫶🏻 #Cansky #Oncsky

How chemotherapy has an impact on #ovariancancer and the potential for maintaining its efficacy with immunotherapy. Still early stage research but potentially very promising. #cansky #ovcasky #medsky #TCells healthcare-in-europe.com/en/news/chem...

Managing cancer care (appts, meds, messages, billing) is often a full-time job. This survey shows how admin burdens like #PriorAuth make people delay/forgo care. While most (gen non-elderly population) don't encounter billing, >1/3 who do delay/miss care because of it. #CanSky #OncSky #MedSky

The holidays are stressful. The holidays with cancer are especially stressful. I wrote a blog/made a vlog about some ways to manage this. Easier said than done, but well worth attempting. Blog: mantacares.com/blogs/newsle... Vlog: www.youtube.com/watch?v=VQVk... #thankscancer #cansky #oncosky

Top reasons #BreastCancer patients gave CancerSupportCommunity.org for not following their treatment plan 👇👇👇 Erica Fortune, PhD, presented findings about treatment tolerability & adherence at #SABCS24. Full poster: bit.ly/3VwuXyq #bcsm #GRASP #SABCS #cansky #oncsky

Disinformation and Misinformation shared by Steven Bartlett in his so-called health podcast has multiple dubious claims, debunked ‘experts’ including Malhotra and people with stakes in wellness including the host who also makes £££ from the podcasts. 😡😡😡🧪

www.irishexaminer.com/news/arid-41...

Can precision cancer care become accessible to all? In this talk, Dr Benedikt Westphalen explores the challenges of access, expertise, and infrastructure and how AI could unlock its potential. 📺 Watch now to learn more: bit.ly/3ZvtlpH #PrecisionOncology #AI

A commonly inherited human PCSK9 germline variant drives breast cancer metastasis via LRP1 receptor. #Cell www.cell.com/cell/abstrac...

National Cancer Registry Ireland Annual Report 2024. ‘Cancer in Ireland 1994-2022’. www.ncri.ie/sites/ncri/f...

‘Ireland’s midwest has lowest survival rate for common cancers, report finds.’ www.irishtimes.com/health/2024/...

If I’ve learned anything, it’s that our sense of identity (and how we feel other people perceive us) is crucial to our ability to heal. #graphicmedicine #cansky #breastcancer

Patients always ask what they can do to improve outcomes. Meta-analysis shows exercise improves fatigue, QoL and dyspnoea in advanced lung cancer https://buff.ly/3ZHjNcD Found with researchbriefing.com

View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24! Let’s do this! #bcsm @oncoalert.bsky.social #metastaticbreastcancer #PatientAdvocates @sabcs.bsky.social

#journorequest - looking to talk to people in Ireland who will be working on Christmas Day - perhaps in hospitality, healthcare, travel, emergency services etc. DM today if any thoughts. RTs appreciated. @dublinairport.bsky.social

📰A commonly inherited human PCSK9 germline variant drives breast cancer metastasis via LRP1 receptor #CanSky #OncoSky www.cell.com/cell/fulltex...

#MedSky🧪 #OncoSky #publichealth Could #breastcancer survival rates be improved simply by timing treatment to a specific stage of the menstrual cycle? 🐁 & human data suggest sensitivity to #chemotherapy is affected by fluctuations in ovarian hormones. www.nature.com/articles/d41...

Re: SONIA results (CDK 4/6i 1st or 2nd line). Post-hoc analysis of lobular v. ductal stuck out for almost favoring 1st line in lobular. Small numbers, tight line in the forest plot --> even more intriguing. Follow up needed and/or consider this in decision making? Thoughts? #lobmob #oncsky #bcsm

I see things like this and I can't help but think that giftedness was a nice way to tell wealthy American parents that their kids were autistic

🌐 Looking for in-depth information on rare disease research? Our website is packed with resources, from ongoing clinical trials to patient involvement and much more! 💡 Explore all that we have to offer 👉 www.rarediseaseresea... #RareDiseases #ResearchMatters #HealthInnovation

The holiday season can be magical, but for those of us with cancer or other challenges, it can feel overwhelming. Feeling rattled, I revisited my 2019 blog post. I hope it helps others navigating cancer during the holidays. https://buff.ly/3ZsZsGL #Cansky #oncsky #ThanksCancer

This is the best explanation of breast cancer in men published to date. www.mdanderson.org/cancerwise/m... #Cansky #Oncosky #CancerBS

Men get breast cancer too . Please give this a read #cansky#oncsky

For #FollowFriday this week we suggest @ash-hematology.bsky.social - the American Society of Hematology They are very active on @bsky.app ahead of #ASH24, their major annual conference Check out this custom feed: bsky.app/profile/did:... #Oncosky #Cansky (Plus poetry via the #ASHaiku hashtag!)

You are going to be hearing a lot about this book.

Want regular insights into #raredisease research and collaborations? Our newsletter is packed with the latest news, upcoming events, and stories from the #raredisease research community. Subscribe now and never miss an update! eepurl.us8.list-manage.com/subscribe?u=...

I blamed myself so much when I was diagnosed. This was a) a waste of time and b) entirely understandable, from an emotional perspective. But it wasn’t my fault. And if you’ve been diagnosed it’s not your fault, either. #cansky #breastcancer #lifewriting #graphicmedicine #booksky

"I needed to find a way to get myself back in control. The 1st step I took is a tip I would give all cancer sufferers – #findyourtribe!" Kate is one of the many amazing people who took on our Nov Squat Challenge to support breast cancer care. Read her story - www.materfoundation.ie/mater-storie...

“Your podcast is funny AND sad” (Feedback on Laugh Before Death) Our podcast is for our #CancerCommunity. We also want family and friends to become the best #CancerAllies they can be. Have a listen and share with your people 😁 open.spotify.com/show/4L343Uh... #cansky #onsky #cancer

In today's @belfasttelegraph.co.uk I spoke to a woman about how she has finally distanced herself from the 'toxic' friendship she had been putting up with since childhood and how, thanks to her husband & good friends, she now feels confident and happy. m.belfasttelegraph.co.uk/life/feature...

I have a great way for you to donate $15 to METAvivor this #GivingTuesday AND get a gift for yourself or others!! Ageless Zen has put together a sampler pack of their yummy skin care products for only $45, of which $15 is donated to METAvivor!! azcommunitypartnership.com/metavivor-co...