tylerwharding.bsky.social
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@fungrandpa6.bsky.social
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I agree with that then! I just feel there should be expansion of care and services for other reasons…support of the family caregivers and enhancing quality of life for LO. There are more important goals for families dealing with this than more time. support system for dementia in the us is pitiful.
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I mean caregiver as in family which is often the deal unless there is wealth. Would argue few families are striving for more time in end stage. They are just trying to survive and take care of/keep lo comfortable as possible. Not sure what fixation on more time is. By end stages LOs are mostly gone.
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Ya again I don’t think the focus for many caregivers at this stage is to get more time. I can only say that from personal experience with loved one who went through all the stages. The end was the absolute roughest. This is such an under-resourced area. I’m happy the studied that all.
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When loved ones are at this stage I’d argue caregivers and family are not necessarily looking for “more time”. They need support and focus should be improved qol. Respectfully your take is coming across a bit insensitive imo @altfda.altgov.info
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I don’t think this is the takeaway. Reduced ED visits. That is a big deal for patient and caregiver quality of life. Know this from firsthand experience.