yvonnediaz.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

As my friend and fellow @alkpositive.bsky.social Board Member Summer Farmen says at @iaslc.bsky.social #TTLC25: We are your reminders of why quality of life matters and why we can’t be complacent even in the face of great clinical trial data. 🤍👏👏 #LCSM @sunonmyhip.bsky.social

submitted 7 days ago • 1 comment

We need to be sure #cancer patients understand the risks of and are monitored for cardiotoxicity. Six years after chemoradiation + IO for her lung cancer, Heidi suffered a heart attack thought to be related. It’s important to monitor patients for potential effects of our treatments. #lcsm

submitted 13 days ago • 1 comment

Did you know that some cancer treatments cause cardiotoxicity? These include some chemo, radiotherapy, immuno & targeted therapies (including some ALK, EGFR & HER2 inhibitors). The 🔑 is learning more & integrating cardio oncology into your care team👇 www.oncogeneresearch.org/cardiotoxicity #lcsm

submitted 20 days ago • 0 comments

Lung cancer patient community: Great opp for anyone diagnosed with lung cancer age 45 or under to contribute to research. Go to: younglungstudy.org #LCSM @danafarber.bsky.social @massgeneralbrigham.bsky.social

submitted 20 days ago • 0 comments

Last year the spaces for our ALK Summit were filled in just 5 days. We've got another great line up planned this year. Encourage our patient and caregiver community to register now. Link below 👇

submitted 21 days ago • 0 comments

Many of us w #lungcancer report being under extreme stress before our diagnosis. Is there a link? Study in @jama.com says maybe. Finds "those genetically predisposed to stress sensitivity were at higher risk for the onset & its progression." 👇 jamanetwork.com/journals/jam... #LCSM

submitted 21 days ago • 1 comment

Reminder for our ALK patient and caregiver community to join this special ALKtALK tonight at 7PM ET. We are breaking participants into rooms by treatment so you can discuss what’s on your minds. 💻👉 alkpositive.org/alktalk

submitted 26 days ago • 1 comment

Great to see lung cancer being found at stage 1 & receiving robotic surgery to main tumour & 25 small nodes. Hope Ms Ciaccio given an any biomarker info. Meeting many others who have to push for this info. www.cbsnews.com/news/never-s... #LCSM @nyulangonepccsm.bsky.social

submitted 26 days ago • 0 comments

One of the hazards of having stage 4 #cancer (in my case lung cancer) is you get a lot of well-intentioned, unsolicited advice. My best advice has come from other patients & books. Here are some words that have stayed with me. What about our @thankscancer.bsky.social fam? Which words have stayed?

submitted 34 days ago • 4 comments

As a cancer patient community, we are lost for words. Science and research is what keeps us all going. As Dr @choo.bsky.social said, “There are real people, real lives waiting on the science.” nature.com/articles/d4158… #LCSM

submitted 34 days ago • 0 comments

Samantha’s “long-COVID” turned out to be EGFR #lungcancer. Her story shows how hard patients have to advocate for a diagnosis, treatment & scans when you don’t fit the profile. How can we get the word out that anyone can get lung cancer? #oncosky #cancersky #lcsm

submitted 41 days ago • 1 comment

#AI, #wearables & tech are transforming healthcare. How can we embrace these to accelerate #clinicaltrials? How can we make sure these benefit patients? Hear our Co-founder @yvonnediaz.bsky.social discuss cancer patients hopes and fears on this topic👇 📺 youtu.be/5YwAnCdl4eA?... #LCSM #lungcancer

submitted 44 days ago • 0 comments

#InTheNews: LCRF, collaborating with Bayer Pharmaceuticals, announced the RFP is open for a $500K, two-year award titled, LCRF | Bayer Research Award on Innovative Therapeutic Strategies to Treat Lung Cancers Harboring HER2 Mutations and/or Other HER2 Alterations. Read more: LCRF.org/rfp-her2

submitted 52 days ago • 1 comment

So many of us diagnosed with #lungcanver never expect this disease. Just like retired @deahq.bsky.social agent Keith Martin diagnosed with stage 4 ALK+ lung cancer. Thankfully responding to treatment but not easy ride. 👇 www.news5cleveland.com/news/local-n... @alkpositive.bsky.social #lcsm

submitted 52 days ago • 0 comments

Glad this is getting traction..however, want to clarify, Linda didn’t ignore symptoms. She went to her PCP, urgent care, ER MULTIPLE TIMES over months and months. A CT scan was not ordered until she filed a complaint. #cancer #lungcancer #lcsm @ladbible.bsky.social

submitted 54 days ago • 1 comment

Here are the 5 symptoms Linda noticed but ignored before she was diagnosed with #lungcancer age 34. Thanks Linda & @younglungcancer.bsky.social for frequently updating us on the latest in Linda’s story. No one’s too young for LC Via @ladbible.bsky.social www.ladbible.com/news/health/... #LCSM

submitted 54 days ago • 0 comments

Research from @roswellpark.bsky.social finds diabetes drug Metformin appears to fight lung cancer, but only in overweight or obese patients. Launching phase 2 trial to see if metformin could prevent #lungcancer in overweight or obese people who are at high risk www.roswellpark.org/cancertalk/2....

submitted 58 days ago • 0 comments

Grateful for all the amazing people you meet in patient advocacy: dedicated researchers/clinicians & patients w stage 4 disease who give their personal time. While we may face an uncertain future, & one that looks different, am grateful to the wonderful people walking alongside us 🤍 #HappyNewYear

submitted 59 days ago • 1 comment

Mel experienced #lungcancer in 2020. This year, sadly it came back at stage 4. But she's hopeful for 2025. Here are Mel's top 3 wishes. Let's push for more research breakthroughs in 2025 for Mel & others. ✨ Wishing you a happy and healthy 2025. ✨ #HappyNewYear #LCSM @younglungcancer.bsky.social

submitted 59 days ago • 0 comments

What’s up with this UK? #lungcancer #lcsm

submitted 61 days ago • 0 comments

5 papers about Lung Cancer suggested by Stephen Liu @stephenvliu.bsky.social oncodaily.com/science/step... #Cancer #GeorgetownUniversity #LungCancer #Nivolumab #NSCLC #OncoDaily #Oncology #Osimertinib #Health #PATHER2study #SCLC #TimeToxicity #Medicine

submitted 62 days ago • 0 comments

2024 is nearly over. As we plan for next year, here are Jenna’s wishes as a young mum w stage 4 #lungcancer 1️⃣ Treatment to keep working 2️⃣ Stay healthy & strong 3️⃣ More memories w family Here’s to more research for better treatments for those whose wishes depend on it @younglungcancer.bsky.social

submitted 60 days ago • 0 comments

Unimaginable to lose your mum to #lungcancer within weeks of her diagnosis, only to learn your dad is facing the same battle. After this happened to Bianca, she started mtg many others diagnosed w LC & was prompted to co-found @younglungcancer.bsky.social. Read more 👇 webmd.com/lung-cancer/...

submitted 61 days ago • 0 comments

Large retrospective study shows efficacy of dabrafenib–trametinib as 1st line treatment forBRAF-V600E mutated metastatic NSCLC www.practiceupdate.com/c/173267/2/1... #lcsm #pfcc

submitted 61 days ago • 0 comments

After being treated for #breastcancer, Maria went on to have another cancer diagnosis: stage 4 EGFR #lungcancer. Here are her top 3 wishes for 2025! Let’s encourage Maria (and many others) to keep dreaming for the future. #stage4 #cancer @thankscancer.bsky.social @younglungcancer.bsky.social

submitted 61 days ago • 1 comment

This post brought to you by Lung Cancer research funding. Denise Marshall (with daughter Corrine) died a few days ago 7 YEARS after she was on hospice with LC. Those years are a direct result of LC research. Can you imagine what could happen with fair & equitable research funding? #lcsm #oncsky

submitted 69 days ago • 0 comments

It is worth remembering the times when 🇬🇧 had vastly inferior drug access compared to 🇪🇺 and 🇺🇸 Now, with only a couple of exceptions, we have everything BTOG, working with NICE & advocating for patients, is one reason for this @btog.bsky.social

submitted 68 days ago • 0 comments

“Why are we listening to men & not women?” asks Dr @narjustflorezmd.bsky.social of @florezlab.bsky.social This question & the increase in #lungcancer diagnoses among younger women vs men are the genesis for the #HearHer campaign. Read more & help us change this👇 healio.com/news/hematolog… #LCSM

submitted 68 days ago • 0 comments

Advocating for other patients and more research has been my form of therapy since my stage 4 #lungcancer diagnosis 3 years ago. Grateful for the broader #cancer community. @thankscancer.bsky.social

submitted 71 days ago • 1 comment

Amazing to see recent NICE approvals: 1. Neoadjuvant alone (CM816): all PDL1 2. Perioperative (KN671, AGEAN) : all PDL1 3. Adjuvant (IMP010, TPS 50+; KN091 all PDL1) 4. Adjuvant EGFRm (ADAURA) 5. Adjuvant ALK+ (ALINA) Biomarker testing in early #NSCLC now critical!

submitted 69 days ago • 1 comment

FDA approves ensartinib for #ALK NSCLC based on phase III eXALT3 trial that compared 1L ensartinib & crizotinib. PFS favored ensartinib (25.8m vs 12.7m, HR 0.56), no OS difference. Active drug but unlikely to impact care for most, unless cost is much less. #OncSky #LCSM www.fda.gov/drugs/resour...

submitted 71 days ago • 0 comments

We need federal #priorauthorization reform But we also need state AG to enforce existing laws and regulations on insurance companies But also if you are entering your 60s please please do not get Medicare advantage it is a disadvantage

submitted 73 days ago • 0 comments

Advocating for other patients and more research has been my form of therapy since my stage 4 #lungcancer diagnosis 3 years ago. Grateful for the broader #cancer community. @thankscancer.bsky.social

submitted 71 days ago • 1 comment

Haley was diagnosed with stage 4 EGFR lung cancer at 37 yrs old. In this episode, Haley opens up about her diagnosis journey, undergoing surgery as a stage 4 patient at MD Anderson, her mental health struggles, and more. Watch the episode here: youtu.be/4cf9nh6M1Nc?... #lcsm #cancer #cancersucks

submitted 73 days ago • 0 comments