It was a principle of the first data protection law in the UK that data could only be used by companies for the purpose it was given.
If government is conspiring with private industry to monetise and cheat us into giving consent then there's a term for that & we need to use it
So would l. But that requires cultural change and better education of doctors rather than legal proceedings l suspect. l know there are organisations that campaign on menopause issues - have you spoken to them about potential legal challenges?
I suspect that the law applied with his knowledge would find no possible reason for treatment of women’s health so unfairly.
We’re 51% of the planet’s population! We’re not a minority!
He should do more!
I’m not a lawyer, but you can ask for my opinion on gardens and art. Each to their specialty!
'Thiel’s choice of corporate name reflects another of his interests. He was a keen reader of science fiction in his youth and has read Lord of the Rings numerous times. Palantir is named after the all-seeing crystal balls that appear in JRR Tolkien’s epic.'
How can they do this without our consent? Surely the consent we give to our doctors is just to share information with relevant 3rd parties and palantir is not relevant to me being registered to a gp surgery
No, not really because the principle of sharing has changed slightly. The NHS Federated Data Platform (FDP) is software that allows NHS organisations to bring together operational data from separate systems in a secure environment. But if the principle behind it changes that is where the issue lies.
My understanding is that patients clinical data are currently held in a few EPRs including GP systems including TPP Systone, EMIS & secondary care EPRs such as Cerner/Oracle & EPIC etc. I’m not sure how the FDP(Palantir) will extract these very siloed data out of these systems and amalgamate them?
The NHS Federated Data Platform (FDP) is software that allows NHS organisations to bring together operational data from separate systems in a secure environment
🌐💭 The UK Government has faced scrutiny over the sale of genetic data in the past. One notable incident was when the Genomics England project, which sequences genomes, shared data with various commercial entities under certain conditions.
🔍 In principle, selling genetic data and NHS's sale of FDP data via systems like Palantir differ in scope and consent transparency. Genetic data involves whole genome sequence information, whereas FDP data pertains to patients' records and analytics.
If patient data is anonymised, selling it could indeed be a revenue stream for the NHS. However, strict governance, transparency, and patient consent are crucial to maintain trust. What do you think? 💬 #DataEthics #NHS #Privacy
The crucial thing about the Palantir story is not the principle of selling the data but the consent and opt outs. That is where the scrutiny should be focused.
Anonymised only works for common ailments. If the anonymised data shows you are suffering with something that only six people in the UK have and combine that with other data its easy to identify someone.
Erm. Are you absolutely certain that the TORIES didn't already sell our data rights to dodgy Palantir and so the govt legally obliged to carry it forward because breaking it without unquestionable proof of corruption results in economic harm that might be even worse?
That's how govt contracts work..
Men are apt to mistake the strength of their feelings for the strength of their argument. The heated mind resents the chill touch and scrutiny of Logic.
Former slavery fan, Liberal Party PM Gladstone.
All are Lunatics but he who can analyse his delusions is called a Philosopher. Ambrose Bierce. Hmm?
The NHS is broken and the state is broke. Access to data, leased not sold, could make billions to plough back in. And the data could drive new treatments. The controls need to be rigorous I agree but the principle is right. Anyone got a better alternative idea?
They want it to sell. It’s for money. They want to be middlemen in the most valuable deal of its type. I am aware of Thiel and his ilk. I don’t trust them but I trust their greed
They want to sell to pharma. For drug development. Thiel is weasel turd but the value to patients and the service is huge. It’s a risk. But the status quo is broken and if Palantir wanted to steal it they could simple by breaking the law.
if you needed anymore proof streeting is just in it to get more money for himself, he is not fit to sit in office let alone run our NHS he's like a racoon wanting more and more money
As an NHS employee, I had to sign an agreement every 6 months to keep the named patient data I worked with absolutely confidential.
I knew I would lose my job if I did not.
How can the commodification of such sensitive data be legal?
I heard this a while ago - certainly well before last election. i.e previous gov did this. Is it absolutley certain that it is not a done and dusted deal, which can now be blamed on present gov?
This must not happen, next step only the wealthy get full
access to healthcare, if you have a pre-existing condition, only the exceptionally wealthy will survive.
Your cognitive biases are
Groupthink, Confirmation Bias, Group Attribution error, negative bias.
Your logical fallacies are
Appeal to emotion no clear evidence given.
Ad hominem irrelevant or baseless character attack.
You know a part of the Singapore healthcare system I like?
IF RICH PAY IN the pot
It appears our esteemed friend may not have his FACTS in order and so until ACTUAL evidence is given to prove me incorrect, that isn't an OPINION blog framed as Facts, this is baseless allegations.
If THEY WERE as bad as the Tories..
He would've been SUED for defamatory lies https://bsky.app/profile/horseshoepartyuk.bsky.social/post/3leqj6auubk2r
Thank you for coping so well. Followed. I am TIRED of usually well intended people of the Left being PARANOID about Labour because they don't understand things like government contracts, capital flight & have logical reasons to be PARANOID after fourteen long years of psychological abuse by the ERG🤦🏻♂️
By "UK" I guess this is the usual shorthand for "England" 😔.
NHS Scotland (run by our SNP Government, not Tory/Labour Westminster) refused to allow data sharing for this purpose. NHS Digital provides services in England, and is not able to access any data held in Scotland.
Ok
So if researchers and those who use the data to manufacture and create vaccines, potential cures etc will have to pay (on a scaled basis) for the / access to the data then perhaps the Govt might include within any contract an ‘ongoing Royalty’ from any sales resulting from the use of the data?
I have too, but there is still a fundamental aspect of trust and on current form, despite Starmer's attempts to reassure in the GE campaign and Labour's policy decisions made and stated in its manifesto; that trust is a *long* way off.
WHY does "Cathie Sudlow, professor of Neurology & Clinical Epidemiology at Edinburgh university"-have ANY RIGHT AT ALL- to try and"negotiate a price"to SELL #NHSPatients' " #Private&Confidential #HealthData"-a PROTECTED CATEGORY under #DataRegulations-to #Privatevultures? https://www.ft.com/content/9ec787a8-60d5-4899-8223-81335dfa919b?
I can’t believe it, surely when speaking with Private Health care firms in the US in opposition and pre election in the UK, he would be laying down he wouldn’t do this…no?
#WhatWesWants
It’s hard to argue Streeting hasn’t been objectively wrong and acting against the interests of the vast majority of UK citizens on virtually every major issue he addresses - healthcare, data, privacy, Musk, Brexshit, Gaza etc etc - an amoral paid-for careerist, an absolute fucking moron or both?
Absolutely lethal if we move to an insurance-based system. Imagine an insurer giving you a quote, knowing everything about you and all your family members, perhaps with genetic profiles bought from genealogy businesses. They'll say it is anonymised, but that's been proven to be a false assumption.
Comments
If government is conspiring with private industry to monetise and cheat us into giving consent then there's a term for that & we need to use it
#IdoNotConsent
#HandsOffOurNHSdata
#SaveOurNHS
We’re 51% of the planet’s population! We’re not a minority!
He should do more!
I’m not a lawyer, but you can ask for my opinion on gardens and art. Each to their specialty!
He's strip mining the NHS for his chums in private healthcare.
“Highways create traffic jams, welfare creates poverty, schools make people dumb and the NHS makes people sick.”
'British public’s affection for the NHS was a case of “Stockholm syndrome.”
“you just rip the whole thing from the ground and start over” – including embrace of “market mechanisms”.
'Thiel’s choice of corporate name reflects another of his interests. He was a keen reader of science fiction in his youth and has read Lord of the Rings numerous times. Palantir is named after the all-seeing crystal balls that appear in JRR Tolkien’s epic.'
https://www.theguardian.com/technology/2023/nov/21/palantir-peter-thiel-nhs-natural-target-outspoken-tech-billionaire
Thankfully NHS Scotland is an independent service.
Worth asking your surgery though 🤷♀️
Don't be surprised if you get the response I got, pretty sure my surgery reception are Tory 🫣🤣
Seriously.
That's how govt contracts work..
Former slavery fan, Liberal Party PM Gladstone.
All are Lunatics but he who can analyse his delusions is called a Philosopher. Ambrose Bierce. Hmm?
Tax the Richest
I’m pretty sure it’s not benign. Look at the name they chose for starters!
I knew I would lose my job if I did not.
How can the commodification of such sensitive data be legal?
access to healthcare, if you have a pre-existing condition, only the exceptionally wealthy will survive.
Groupthink, Confirmation Bias, Group Attribution error, negative bias.
Your logical fallacies are
Appeal to emotion no clear evidence given.
Ad hominem irrelevant or baseless character attack.
You know a part of the Singapore healthcare system I like?
IF RICH PAY IN the pot
If THEY WERE as bad as the Tories..
He would've been SUED for defamatory lies
https://bsky.app/profile/horseshoepartyuk.bsky.social/post/3leqj6auubk2r
Social care and dentistry were high up on his list, we were told, but his priorities appear to have shifted.
NHS Scotland (run by our SNP Government, not Tory/Labour Westminster) refused to allow data sharing for this purpose. NHS Digital provides services in England, and is not able to access any data held in Scotland.
So if researchers and those who use the data to manufacture and create vaccines, potential cures etc will have to pay (on a scaled basis) for the / access to the data then perhaps the Govt might include within any contract an ‘ongoing Royalty’ from any sales resulting from the use of the data?
https://www.ft.com/content/9ec787a8-60d5-4899-8223-81335dfa919b?
WHY isn't this being LEGALLY CHALLENGED by every #HealthCharity, #PatientGroup, #NHSEmployees, #AdvocacyGroup and #Patients themselves!
#RedTory #SpivInASuit #Streeting is NOT getting my #PatientData!
#WhatWesWants
Everyone should refuse