itreallydoes.com
Disabled USMC Vet | Widow | Living with DDD & #MS | Joomla Dev | Grave Digger | Sarcastic AF (blame the MS)
MS Sucks: A snarky journal to track your MS bullshit & snarky MS apparel
mssucks.co/links
863 posts
18,885 followers
18,085 following
Getting Started
Active Commenter
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That’s real dedication—seriously, caregivers like you are the unsung heroes in this mess.
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I keep tripping over air. And have an uncanny ability of tripping up stairs.
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Thanks for pointing it out! I updated the link.
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I have an account but only comment.
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Ah, classic Debbie Downer mode. I totally get it—had a family member who could turn winning the lottery into a tragic tale about her taxes.
Hopefully she surprises you.
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It can be so hard, but sometimes ripping the bandaid off is the kindest thing you can do for yourself. One less stressful thing weighing on you = one less thing for MS to weaponize. 🫂
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Hopefully results were good!
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Just your nervous system reminding you you’re still alive—and that it’s a backstabbing, traitorous bastard.
Hope disco mode shut off by now.
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I don’t know how many times I’ve deleted a post to fix a typo. Then think oh great, I just annoyed everyone by double posting. 🤣
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Sorry to hear. I’m not sure if they distinguish between former/current. Most likely may say what qualifies when you sign up go through the intake questions.
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I’m good 50-75. The temp regulation symptom comes out a few times a month but always seems like it’s always an opportunistic offender lol
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Incredible
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Oh no. I'll ask about it. I know sometimes they have limited spots for particular surveys but haven't seen them limit signing up.
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👍🏼 - Signing Up
👎🏼 - Having a body that feels like it’s been hit by a truck
🤗 Welcome to the side of the chronic illness economy—where your misery finally gets monetized.
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No one wondering where the hair between the legs is coming from? 😂
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Seemed every appt I had they wanted me to recount every fall and the reason. I finally said "Pretty sure we've established it's all from the MS". So now they just ask if I've hit my head during any falls 😂
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That's rough. It shouldn't be that difficult to get the attention you need. Hopefully the drooling is gone.
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Just a few years, officially. Had it way before I knew—mild stuff I blamed on aging. Then came a hand tremor that was crazy leading to my dx.
Once I saw the full laundry list of MS symptoms, I was like “Ohhh… so that’s what all this random weird shit has been since my 20s.”
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Maybe that's the trick.! Just keep triggering it and it gives up eventually. Mine suck too. I think the hand tremor is the most obnoxious tho.
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Should start a club. I and a few other friends ask each other often when it's going to happen for us lol
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You got the deluxe edition of MS? Where do I get that upgrade—mine came with the bootleg electric chair version 😂
But seriously, with all the nonsense this condition hurls at us, I’m glad you at least got one symptom that didn’t suck. We all deserve a small win wherever we can get it. 🧡
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Built a site for a vet clinic group in Oz. They wanted me to fly out—same with a fitness biz. Hard pass. I’ve done biz class: Rome, Prague, a few EU runs in the peasant seats too. After a few hours, I just want to yeet myself out the emergency exit.
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Figures. I had a few opportunities to go there for work and passed. Would have loved to go but it’s like a 22hr flight from the US. Far too long for me to be stuck in a fart tube. 😆
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The names of these drugs make me laugh. You know they have some guy that reaches into a Scrabble bag and pulls out a handful of tiles and makes a name out of whatever he pulls.
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Do the meds help at all? Like if you stopped them do you think it would get worse? I haven’t tried anything yet but starting to consider it.
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Annoying is a good label. I too have other stuff that is more of an issue. I’m waiting for a robot body 😂
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Yeah that would be annoying. I managed to not have it until my last relapse. Picked that one up and new leg tremors.
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Oops, courtesy of MS brain fog. We’re calling it a limited-edition collector’s item—typo included for authenticity. 😂
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I barely made the cut 😂 1978
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Adderall is the brand name I guess. The generic name is amphetamine.
I’ve had it since I was a kid but never addressed it. Gen X- you just sucked it up and figured things out on your own 😂 was the main issue from the neuro psych test I did a few weeks back.
How your dumpster fire treating you?
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Not too bad considering what we all deal with on a daily basis lol.
I stopped the Modafinil this week and replaced it with Adderall since I picked up an ADHD dx. Seems to be helping more with the fatigue.
My drug tests are looking more like ‘let’s see what she’s not taking’ 😂
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I originally wanted Kesimpta, but got “lol no” and they handed me Briumvi instead. Honestly? Not mad. One hour every 6 months, and all I get is a runny nose for a few weeks and my B-cells packing their shit. No fridge-stabbing. Would I switch? Only if Kesimpta comes with better snacks.
#ByeBCells
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Hopefully today is better.
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Ocravus? I’m on Briumvi. Takes an hour. Only side effect has been a runny nose for a few weeks after. Also no crap gap.
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This so much!
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Looks like someone bought a janky photoshop filter from Temu. Must be doin lines before applying it.
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I was the same. After seeing the fjrst MRI things started making sense. Weird things that I blamed on getting older or other issues. Then you read about all the different symptoms and it’s like Ohhhh k. I have that and that and that etc.
Not a death sentence. Just takes some adjustments. 🫂
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I hope it went well!
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There goes my diet 🤤
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I’ve been getting a lot of these random texts over the last week. Haven’t engaged tho, just block & delete lol
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Hand sanitizer…. Yeah hand sanitizer. That’s my story and I’m sticking to it.
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All the vest options were garbage. Got a neck A/C. Doesn’t spray water, which wouldn’t work for me but it gets surprisingly cold and has a heat option which is great for a northerner 😄
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Nice! Not a get rich quick scheme but some pocket money. You can buy the beers next time 😂
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I’ve been dealing with it since 2002. Back then I got “you have the spine of an 80yr old” and only had 2 discs buggered. Now I’m up to 6.
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For me, sometimes a quick cold or hot shower helps to snap me out of it.