jamieandlion.bsky.social
Monotropic semi speaking adult writing about neurodivergent play & adventures. MTB, digital a11y, AAC user, podcast host & lion tamer (he/him)
1,861 posts
2,596 followers
595 following
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Ooo. I’ll try to join if I can :)
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My brain melted slightly cause the room wasn’t green :)
Hope you had heaps of fun with it all.
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Aye. I found them hard too.
I found the Moist von Lipwig series easier. Going Postal, Making money & raising steam.
The audiobooks for all three are great too.
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Aye. One of the huge advantages of having so many folks around nearby. There’s 2 backup keys nearby. And another on the other side of London if really needed.
Feeling very lucky. One of those things where a small barrier could easily ruin the day if we hadn’t prepped for it :)
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That makes a lot of sense. Yeah. I think she means the bigger picture too now ya mention it :)
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Being neurodivergent is about our experiences. It’s not based on a diagnoses.
Whether you meet the specific ADOS requirements for an autism DX is kinda a separate thing.
I think you make good contributions to the ND community. DX or not, I’d love to see you continue to share & post.
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Hehe. I’d have had a lot of fun. Making lots of good trouble :)
Aye. I miss some of my Beeb stuff. It was a hell of an adventure. But mostly I loved the people, made friendships to last a lifetime :)
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Thanks Andy! Eee that’s made me smile. It’s exactly what we’re going for… just sort being ourselves :)
It’s been an unbelievable amount of work to get to this point. Lots more coming along soon :)
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We went round in circles on that one. My job title was senior research engineer… which everyone ends up shortened to ‘R&D’ engineer… cause of flow.
I don’t think anyone outside of BBC groks ‘R&D’ department versus ‘R&D’ role :)
It will all get replaced when we have the profiles section up :)
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Sending all the hugs mate. I find grief comes in and out like the tide. It doesn’t go away, but it sort of becomes one with the sand of our lives.
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Thank you! *happy bounces*
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Huge shout out to the very clever and exceptionally lovely folks @clearleft.com
We wouldn’t have got this far this fast without their expertise and effort. It’s been a heap of fun :)
All the woooooosh!
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I was wondering if this is a side effect of lots of different writers / voices within the paper?
In the past papers seemed to have more of an editorial voice so contradictions where stranger. These days contradictions seem pretty common
Can’t tell if it’s a good or bad thing tho.
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Makes a lot of sense. As a kid being sent to a special school used as a threat.
I often wonder if I’d have done better at a different school.
That said, special schools are much broader these days…. Back in 1990s there wasn’t the specialisms & recognition.
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Thanks for being so lovely.
Sounds like it’s all going in the right direction. Wishing you all the Woooshy happy tunnels :)
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Aye. People often assume ADHD meds are like painkillers… default assumption is to medicate it away
The meds patterns which work for me are unusual, way outside of the guidelines.
I collaborated with an amazing professor at a London uni & we engineered them together
Feel free to DM if I can help
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Thanks for being lovely.
Sometimes I get asked if it’s better to be diagnosed as a kid or later in life.
Both paths seem to be littered with challenges. Different challenges, but equally capable of harm.
Glad you found the answer you needed and got to explore it in the end :)
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Aye. It’s a powerful tool
The most important mind shift for parents is to gauge if the meds are useful based on the experience of the kid
Not on the experience and wishes of the adults around them
The most harmful situations can often look benign or positive if the wrong lens is used to see them
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Aye. Meds are an amazing tool., but when they are deployed badly the also cause huge harm.
I do a lot of coaching with parents & one of the most useful mental shifts is getting them to base meds decisions on the experience of the child.
Not the experiences & wishes of the adults around them.
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Thanks. *mega blush*
I hope things start lining up for you soon. We found it to be very in linear… 50% of barriers solved feels like no change…
When we hit ~80% of daily barriers engineered away, life suddenly changed and got really good.
I hope you hit the 80% point soon :)
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It’s exactly how they worked for some of us. Early gen ADHD meds where brutal. Modern ones work way better.
Let people speak thier truth. We all have different experiences and it’s important we hear everyone’s voices.
Critique of a thing isn’t an attack on the people who find them useful.
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Oooo, didn’t see it was a thread.
My post isn’t an attack on you. Just responding to the image.
My story comes good at the end. Forced meds were the wrong path for me. But it worked out in the end.
First gen ADHD meds were crude compared to what we have today.
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Lion is offering hugs and to share two of his Jaffa Cakes with you. I think he likes you. He doesn’t off Jaffa Cakes very often!
I hope the day perks up. There’s joy in the world. Sometimes it takes time to find us… especially when sleepy!
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I’m at peace with what happened.
I love & trust my parents. They did absolutely everything they could.
The system let us all down.
It was the right choice.
I wish I could tell 12 year old me he was loved. Not a monster. Not broken. He had a right to be who he was. It works out great in the end!
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20ish years later I explored ADHD meds a second time on my own terms.
This time with modern meds without the same side effects.
They aren’t an easy tool to use, it’s not magic.
But gosh damn they make my life much easier & help me to manage the barriers we haven’t been able to engineer away.
2/3