sam-b13.bsky.social
Progressive activist, lefty, believer in fairness and kindness. Hate discrimination in any form. Lover of nature, animals and their welfare. The garden/outdoors is my happy place. #EDS warrior living with #axSpA. š¬š§šŖšŗāæļø
LGBTQ+ ally š³ļøāšš³ļøāā§ļø
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And such villains they are. Standing up for victims of genocide. That will never do. Kid Starver must be pursing those lips this evening.
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Now thatās an idea I can get on board with.
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A short article from MP Peter Lamb explains the mental health part well. He also explains how to fix it.
www.theguardian.com/commentisfre...
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There will also be those who are either born too sick or become too sick to work. I fall into the latter category. You may think Iām lazy but I can assure you Iām not. I didnāt give up an Ā£80k salary and career Iām good at for this. I have no life. So much pain 24/7. I wouldnāt wish it on anyone.
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Then you have all the people who havenāt been getting help for physical conditions due to cuts either. Early diagnosis of most conditions leads to better outcome for patients. When waiting lists are 18-24 months you can see how this causes issues fast. Donāt blame the people, blame the Tories.
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Fourteen years of cuts to vital services from the Tories and closing down mental institutions has left us with massive issues. Instead of being in facilities getting help that way, people with serious mental health issues are being cared for at home instead. That will push figures up.
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Are you looking at the evidence and taking in what @plopkin.bsky.social has been explaining? Thatās your 14%. My mum has a neighbour who desperately needs to be sectioned but her daughterās been told she doesnāt stand a chance. Thereās 900 people who are a danger to the public waiting first.
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Absolutely. The govt fuel it terribly. Plus people forget many of us worked for years in pain/struggling before stopping. Of course with PIP one in five still do. Many wait until theyāre desperate financially to apply even though they were entitled to it earlier. Most donāt want to be āon benefitsā.
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I really donāt feel better. One because itās not ok when future disabled people arenāt protected and two because Iām not convinced anyone existing is beyond Nov 26 either. All we have is the green paper in writing and that damns us. Where is the legal text the actually protects us and for how long?
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Good for you calling them out. Donāt get me wrong there are some nice cars on there. But apart from a handful of basic ones you have to put money down too and itās not as if you get that back after the three years. But weāre not talking about Porsches. What an idiot.
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Thatās awful for you. They make it as hard as possible for us when weāre already struggling so much. This is what people who havenāt been through it donāt get at all. As for a Porsche on motability, we know itās not even an option. Sounds like telephone tag to me. Utter nonsense.
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Tell me about it. All the time the Tories (Republicans) were in power Labour opposed disability cuts. Now theyāre in power they are beyond desperate to make cuts and force us into poverty. You couldnāt make it up.
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Jocky, you mentioned you suffer from Piriformis syndrome now and again. How painful is that for you when it occurs? Do you have to take any medication for it? If you do does it help?
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Watch the clip again. PIP isnāt an out of work benefit so what does work have to do with it? Youāre talking about Universal credit and theyāre not. Thatās a different conversation.
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Itās painful isnāt it? Itās why I get so frustrated when I see people on here going on about they know so many people getting disability benefits who shouldnāt be. How on earth would they be able to tell? Pretty sure they donāt have special vision to see my defective connective tissue or arthritis.
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If you donāt improve then A&E. But I really hope you do as theyāre often not great at knowing what to do with us but if you get someone who does understand EDS they may be able to help. Definitely the downside of having a condition many medical professionals know little about (if anything).
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Oh you poor thing. Unfortunately Iāve found they often donāt warn us as theyāre not knowledgeable themselves. All our dislocations are awful but thereās something about the ribs that is especially so. I can only share what I do. Ice, lie on my back (if I can), eterocoxib, diazepam, pain meds.
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Yep. I get PIP but not UC so Iām half in and half out as it is. But every PIP review is a battle and I like many others never receive the points I should be. Oh you canāt prepare a meal at all? That should be 8 points. Weāll say you can using aids then and award just 2. But this is bigger than me.
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I think we know donāt we? Itās all just a lousy sham cooked up by Kendall over her cauldron.
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Thank you. I hope enough of your colleagues share your viewpoint and do the same.
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Let them be arrogant enough to take it to a vote Tuesday but then be voted against. That is something Iād really like to see. We donāt want concessions, we want it killed entirely. If Kendall and Starmer wonāt do that then please let there be enough MPs who are decent enough to do it for them.
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I do think theyāll protect existing claimants in the short term. Itās the long term that concerns me. Iām also extremely worried for future claimants of course. What I really want to see is them go into Tuesday thinking it will pass and MPs actually vote it down. If they have any backbone & decency.
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Thanks Louise, I think that exactly it. You too x
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It may have been ligament moving and snapping over a joint even. Itās amazing how much pain that alone can cause. Do your ribs slip at all? That hurts like hell. To be honest it could be a few things, all of them painful. It amazes me how easily I dislocate my ribs at times.