Excellent letter from a GP in today's Times. As a patient I'll only benefit from the joining up of my data if all clinicians describe the same things in the same way.
(Joining up the myriad "IT systems" is necessary, but very far from being sufficient.)
(Joining up the myriad "IT systems" is necessary, but very far from being sufficient.)
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7388882/
After 15mins he said "Why are you asking these questions? Why aren't you already coding?"
Managers of projects have no fucking clue. I left to become an author. Unrealistic but saner. Just.
I’ve just sat through the creation of an information standard to solve a similar problem. We’re not over the line yet and it’s already been harder than the creation of the actual software.
Whether the thing has any teeth remains to be seen…
*Local, unmoderated, unmapped, hardcoded code sets that bear no resemblance to each other and aren't ontologically modelled, but which they all call Read codes so they can't understand why they aren't interoperable.
A) I think his platform https://www.opensafely.org/ does some of the hard work needed to overcome this issue
B) imagine how much more powerful it could be if metadata was consistent...