The proposal by Bhattacharya to use data from Indian Health Services to study autism is outrageous and should be fought tooth and nail.
I have had the honor of working with Tribes on research projects. The steps for approval are many and lengthy, as they should be for this vulnerable population.
I have had the honor of working with Tribes on research projects. The steps for approval are many and lengthy, as they should be for this vulnerable population.
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I found info about how the autism *study* might work via the NIH Common Fund. Here's the process: https://commonfund.nih.gov/process
So at some point NIH expertise might apply. We must have missed the public input part. /1
How exactly does one study a massive dataset without downloading it?
Holy buttered biscuits Batman this is blatant misuse of people’s data.