NIH autism study will pull from private medical records www.npr.org/2025/04/23/n... - ThreadSky

smith83k.bsky.social • 5 days ago

NIH autism study will pull from private medical records

https://www.npr.org/2025/04/23/nx-s1-5372695/autism-nih-rfk-medical-records

Comments

xicanodekcenmke.bsky.social•5 days ago

This really sounds like something the Third Reich would've done if the technology existed at the time. As a parent of a young woman with developmental disabilities, I'm not feeling good about this "study."

40hz.bsky.social•5 days ago

looks like the Eugenics machine is starting up.

https://encyclopedia.ushmm.org/content/en/article/eugenics

dcoffee1.bsky.social•5 days ago

He just refuses to accept scientific facts and the idea that autism is simply more often DIAGNOSED versus being more prevalent. He's going to do whatever he can to find something that coincides with HIS ideas....even if it's flawed.

santinimore.bsky.social•5 days ago

Errrrm, aren't those records kinda private??

grammyk14.bsky.social•5 days ago

Ever heard of HIPPA?????

grammyk14.bsky.social•5 days ago

HIPAA, I wish there was an edit feature!

salmama.bsky.social•5 days ago

Of course following informed consent

bluetose.bsky.social•5 days ago

Invasion of privacy.

bitchpudding314.bsky.social•5 days ago

Weeks away from "racial hygiene"!

daglock.bsky.social•5 days ago

Can we start with Trump's medical records?

mogrianne.bsky.social•5 days ago

Hippa Regulations should prevent this

capsva.bsky.social•5 days ago

Dear NIH - private means “not to be shared”. Stay away from people’s health data

martay123.bsky.social•5 days ago

HIPAA, it’s the LAW! Follow it!

dtf1947.bsky.social•5 days ago

They will keep looking until they find something that supports their predetermined conclusions.😏

elsask8s.bsky.social•5 days ago

People will stop getting official diagnosis to protect themselves, numbers will drop, worm brain will say “numbers are going down, look what I did!” and his idiot followers will believe him. 🤮

sally1025.bsky.social•5 days ago

Stop this!!

bkmillernm.bsky.social•5 days ago

Just No! Violates HIPAA

windycitychik.bsky.social•5 days ago

Really? How exactly? These morons could screw up a one car funeral. Also, doing that is (no doubt) illegal. Show me their DETAILED plan to accomplish this instead of just sending me scary headlines.

paula72.bsky.social•5 days ago

No chance folks will allow this to happen

fenraven.bsky.social•5 days ago

Who's gonna stop them?

That's the problem: No one is stopping them!

paula72.bsky.social•5 days ago

Already- folks are having medical records redacted- contacting local officials to stop compliance , etc.

melissa4thrivingmt.bsky.social•5 days ago

Class action to sue NIH from taking our private health data?

zekeskitchen.bsky.social•5 days ago

Recently laid off contractor who worked at NIH since 2018 here… the NIH of before is dead. Whatever is there now is not what it was. It’s probably possible to rebuild it but it will never be the same. The damage is done.

smith83k.bsky.social•5 days ago

This is so sad. Sorry about what happened to you, Zachary. 😔

scamomile.bsky.social•5 days ago

Hands off our private information you worm addled brain fart.

karenrenocobb.bsky.social•5 days ago

So they are dismantling HIPAA?

pbjmbaker.bsky.social•5 days ago

HIPAA lawsuit @normeisen.bsky.social?

ajjohannson.bsky.social•5 days ago

NFW

twinkleandb.bsky.social•5 days ago

You better start calling RFK Jr.

amenokoe.bsky.social•5 days ago

I signed no HIPAA consent form for this.

fenraven.bsky.social•5 days ago

Aren't there laws against this??

itsjustmescott.bsky.social•5 days ago

Isn't that ILLEGAL?

jakegr.bsky.social•5 days ago

Was there an EO about HIPAA we all missed?

karenshareharr.bsky.social•5 days ago

🤬🤬🤬🤬

elsask8s.bsky.social•5 days ago

Is Apple ratting out their watch users? 🤔 Instead of my planned upgrade, I’ll guess I’ll be taking mine off and shutting down apple health on my phone in support of those that could be harmed by this. #applewatch #iphone