Q for those MECFS with POTS/OI. I use salt tablets to increase blood vol. I’ve found if I take a salt tab with glass of water when I get up for toilet at 1-3am, then I sleep better 2nd half of night & feel less awful in morning. Anyone with similar/different experiences? - ThreadSky

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andrewg76201347.bsky.social • 80 days ago

Q for those MECFS with POTS/OI. I use salt tablets to increase blood vol. I’ve found if I take a salt tab with glass of water when I get up for toilet at 1-3am, then I sleep better 2nd half of night & feel less awful in morning. Anyone with similar/different experiences?

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pumpkinstars.bsky.social•80 days ago

yes same here

now i get IV fluids 24/7 bc my condition worsened. when i started doing IVs at night my condition improved a lot. if i’m not hydrating, i’m dehydrating.

so, i can see how a midnight fluid and salt refresh can help

good luck!

andrewg76201347.bsky.social•80 days ago

Interesting, thx.

sagetoko.bsky.social•80 days ago

Yes, absolutely. I take 500mg of sodium as salt pills with water just before bed, and again with my “early morning wake-up meds” that I go back to sleep for 2-4 hours after. It really helps my functioning as the day starts.

andrewg76201347.bsky.social•80 days ago

Thx for sharing.

toniebowen.bsky.social•79 days ago

Thanks for sharing. My HR is worst right when I get up in the morning, so maybe that would help.

andrewg76201347.bsky.social•79 days ago

In addition to the middle of the night salt, I also have more salt + water + dose of POTS meds (ivabradine & propranalol for me) first thing when I wake up then spend another 30-60 mins in bed for them to take effect before getting up. Also helps avoid the worst of my upright AM HR spikes.

toniebowen.bsky.social•79 days ago

Thanks. I’m sloppy about taking my AM meds right away. I will try my metoprolol right after I wake up (not a couple coffees later!)

vlister.bsky.social•79 days ago

I use electrolyte tablets (sodium chloride and potassium chloride) dissolved in a glass of water and they seem to help my POTS. I'll trial taking one during the night. Thanks. Take care.

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