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cathulme.bsky.social
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If I had seen something like this five years ago, I would still be mild. Safe care for pwME isn't that complex. Warning mild patients against intense exercise and GET could prevent so much suffering and deterioration.

I am disgusted by the government’s relentless demonisation of disabled people. All so they can protect the wealthiest from paying their fair share. Instead of targeting the most vulnerable, let’s “crack down” on corporations and billionaires evading tax instead.

@debbieabrahamsmp.bsky.social Hi Debbie. In today’s Guardian, I have this piece on a woman with MND battling for continuing healthcare: www.theguardian.com/commentisfre... I wondered if CHC was an issue you might be able to raise? Feel free to DM me. Thanks so much x

'Raven' collage by Lisa Morales, textile and mixed media artist #WomensArt

Fact-checking is not censorship. Requesting evidence is not censorship. Refuting falsehoods is not censorship. Stopping a lie from travelling halfway round the world before the truth has got its boots on is not censorship. But Zuckerberg's grovelling to Trump will sure as hell lead to censorship.

Linocut created by printmaker Alexandra Buckle #WomensArt

Welsh painter Gwen John, Cat (c.1904) #womensart

Study on over 4000 p/w #LongCovid from UK Long Covid clinics: 🔴 Little improvement over 6 months 🔴 Worse functional impairment than individuals who had a stroke 🔴 Health related quality of life on par with p/w advanced cancers 🔴 Economic burden averaged £931 per person per month Link ⬇️

There’s something surreal about watching NHS staff warn flu and covid are overwhelming hospitals whilst ditching masks and testing. No medic I know takes LFTs anymore. Many see a clinically vulnerable patient with a mask and don’t bother to offer to wear one too. Join the dots, lads.

Soon...

🦊 Boxing Day: A Celebration of Cruelty Every year, hunts parade through our streets, flaunting their so-called "tradition." It’s a disgrace that this barbaric practice is still legal. We need a REAL ban on hunting NOW!

Dec 22: It’s Rachel Parris, English comedian, musician, actress and presenter! Her message: “I wish peace, relief, support and to be heard. I hope Santa brings you real help, systemic change and JOY where possible.” #PatientSafety #pwME #pwLC #ThereForME

Yesterday #LongCovid cost me my job. 20 years working as a Learning Disability Nurse for the #NHS. My livelihood gone, my role in life gone, my ability to help others gone. Long Covid ruins lives.

Right now, foxes are being chased to exhaustion and torn apart by hounds—all in the name of ‘tradition.’ Boxing Day remains the biggest day of the year for the fox hunting community. Please RT to raise awareness and follow us to help end this cruelty for good.

Wait. People who can see things in their mind.... when you read a book.... Can you actually see the things??

In 2025, the following groups WON’T be eligible for an NHS Covid booster: ❌ clinically vulnerable ppl (unless immunosuppressed) ❌ most people under 75 ❌ pregnant women ❌ health & care workers Private Covid vaccines are available at a cost of ~£100 per dose. That’s ~£400 for a family of 4.

Today marks... 10 yrs sick with #MECFS 9.5 yrs housebound 7 yrs bedbound I was diagnosed after just 6 months but was told Graded Exercise would cure me. Following this advice dramatically worsened my condition and left me housebound.

Covid is a social justice issue. Staying covid safe in the “you do you” era costs money. Respirators, tests, isolation, hepa filters & vaccines… the costs add up and are out of reach for many. Long Covid is also a social justice issue. Have no safety net? Chronic illness will be harder 🧵

Imagine the world if we’d been willing to learn from COVID… What if we’d embraced WFH to slow climate change? What if we’d installed filtration systems in public buildings to reduce the spread of illness? What if we’d demanded disability justice re long COVID? A better world is still possible.