digitalpunk.bsky.social
Angelle Kingston
She/Her • Xennial
ME/CFS • POTS • MCAS • Fibromyalgia
Disabled COVID Long Hauler
Artist. Photographer. Gardener.
X Files nerd. Coveter of books, strange art, & vintage wares.
97 posts
61 followers
61 following
Prolific Poster
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Baby monitors would work, that way you can at least sleep in your own bed.
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Our invisibility as a group of people doesn't help.
Our ability to be part of everyday society is often very limited.
It's hard for us to be advocates for change.
And power concedes nothing without a demand.
So we need allies.
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Very well said.
The most common advice I lend to fellow LC sufferers who ask, is to remember to be kind to yourself. Amidst the relentless cycles of grief, I know that’s been an ever present struggle for myself in my 5yr journey with this disease.
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Even better!
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If you’re the new Fleiss of Findoms, count me in.
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I want off this ride.
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This is lovely! Can’t wait to see this when it makes it over the pond!
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3/3 You would think continuing your education and staying up to date on research during a global pandemic would be a priority for most health providers. The fact that many refuse to do the work is why so many chronically ill people suffer for years before getting a diagnosis, and treatment.
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2/3 There’s no greater devastation than waiting months to see a specialist, only to realize they’ve been living under a rock for the last 5yrs. Considering many are also quick to dismiss suggestions, is only salt in the wound.
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Beautiful work. Truly.