Profile avatar
fndportal.bsky.social
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
1,022 posts 1,520 followers 1,047 following
Prolific Poster
Conversation Starter

1/In #FND , chronic pain & PTSD it seems like ‘threat detection’ areas of the brain are almost frozen in time. Even though the triggering event i.e injury, accident or psychological trauma are over- these deep unconscious areas of the brain are convinced they are still taking place.

Well done @jonstoneneuro.bsky.social & team in preparing this film to help health professionals especially in emergency settings learn about functional seizures & how they differ from epileptic seizures.🧡💚 neurosymptoms.org/en/media/fnd... @hselive.bsky.social @inmoirl.bsky.social @rcsi.bsky.social

This Father's Day as Men's Health Week comes to an end, FND Ireland reaches out to all men living with Functional Neurological Disorder (FND) or supporting someone with FND. Happy Father's Day to all the dads and father figures out there! 💚🧡 #FathersDay2025 #FNDIreland #FND

If you haven't been looking recently at the Open Encyclopedia of Cognitive Science (oecs.mit.edu), here's your reminder that we are a free, open access resource for learning about the science of mind. Today we are launching our new Thematic Collections to organize our growing set of articles!

Yonder, to windward, all is blackness of doom; but to leeward, homeward—I see it lightens up there

Dear friends, what journals would you recommend for keeping up with current research in cognitive neuroscience? Grazie!

Alternatively, “Thousands of Americans expected to take to the streets in defense of their neighbors and their democracy” www.nytimes.com/live/2025/06...

I know there's a lot going on, but the Secretary of Homeland Security declaring that federal troops are in California and Los Angeles to "liberate" the state and city from its duly-elected leaders really is a fourteen-alarm fire.

Good luck tomorrow, American friends.

iPhone PSA

"Science Shattered". I confess that even I was unaware of the statement that opens this piece: "The National Institutes of Health is responsible for more than 80% of the world’s grant investment in biomedical research." 🧪 projects.propublica.org/nih-cuts-res...

A man with a green card said ICE agents arrested him in #Lynn, Mass then took him to a detention facility—but first made a detour to a cemetery, where they took him out of their vehicle and beat him. #mapoli #Massachusetts

🧠 Study exploring new FND treatment! We’re exploring patient views on Brain-Computer Interfaces (BCIs) for #FND rehab. ✅ 18+ ✅ Diagnosed w/ motor FND (e.g. weakness, tremor) 📝 10-min survey and educational video: qualtrics.kcl.ac.uk/jfe/form/SV_... 📎 Poster below #FNDresearch #BCI

Also some biases are good. These are called “values” and provide social benefits like not living in a fascist society (if enough people act on them)

So long, Brian. Thank you for all the beautiful music.

Feeling a lot like I did in early days of the pandemic these days. It is so clear what’s coming: The people that will die because of cuts in global health, because of cuts to research, because of the concerted anti-vaccine push. It’s clear what’s coming, but we will have to wait to count the dead.🧪

Our new paper is out in BP:GOS. A large team including @lillianwieder.bsky.social‬, @susannahpick.bsky.social‬, ‪@sunjeevkamboj.bsky.social‬. We found that #dissociation can be reliably induced using a range of methods and drugs, most notably #mirror-gazing and #ketamine. t.ly/qOme3 t.ly/cK-YI

leftists: that thing you teach us in school to be terrified of is happening historians: that thing is definitely happening star wars: here is a beat-for-beat breakdown of how the thing happens, but with pew pew lasers. we know you watched it news outlets: these protesters are out of control

shel silverstein on the LLM, 1981

It is 100% carrying water for the opposition to participate in this collective delusion that Dems for some reason need to answer for every teen who throws a rock rather than hold the Trump admin accountable for intentionally creating chaos and breaking the law to stoke violence. They are in charge.

Thanks to NAI for raising awareness of #MensHealthWeek. It is important to highlight that although FND is more common in women than men that many men are diagnosed with #FND. We need to continue to breakdown the stigma around FND so that all those living with FND get the support they deserve. 💚🧡

Changing language is key to challenging stigma in #FND - ‘conversion disorder’ ‘irrational illness beliefs’ ‘catastrophiser’ ‘somatiser’ - all punitive, judgemental & unhelpful terms www.fndlanguagematters.nz

Visible progress in my level of mobility over the last few months. Hasn’t been an easy road but I’m getting there! With support from many friends and allies 🤝

the fact that people were told “today you are going to an elementary school to lie to teachers and kidnap kids” and didn’t immediately tell their bosses to go fuck themselves is all you need to know about why ICE should be dismantled

Exciting news! The first-ever symposium on Functional Neurological Disorder in Aotearoa / New Zealand. Importantly - with participation by people w FND. 🙌 www.fndlanguagematters.nz

they never miss

We hope that many neurologists (in particular epileptologists & paediatric neurologists), epilepsy nurses & other healthcare professionals are attending this training. Research has shown that over 20% of those with functional seizures also have epilepsy. 💚🧡 @epilepsyireland.bsky.social #FND

Jay Bhattacharya shot to international attention as a founder of the Great Barrington Declaration, a protest of #Covid control measures. Now #NIH director, Bhattacharya is facing a protest declaration — from his agency's angry staff, @aniloza.bsky.social reports. www.statnews.com/2025/06/09/n...

I signed the Open letter in support of the Bethesda Declaration. As did this list of very notable people 🤩 (and so many more). Please consider signing too. Scientist and public signatures welcome. A Call to Deliver on Promises of Academic Freedom and Scientific Excellence

Solidarity with the brave folks at NIH 🤝 pushing back on the defunding of science and climate of fear

Announcements for week of June 9, 2025 Welcome to the week’s announcements from the Active Inference Institute ( weekly.activeinference.institute/ ) . All information on ongoing projects at activities.activeinference.institute/ .