fndportal.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

“the functional neurological disorder lobby” Join us. We have our own signature cocktails and airport lounges. JK! Only disability and social stigma and no money 🫠

submitted 5 minutes ago • 0 comments

I still can't get past the idea that people in America are now supposed to accept that this is a valid form of law enforcement and just assume it's fine when random dudes in groups with face-coverings, no ID, no warrant, & no uniform grab people off the street and force them into unmarked vehicles

submitted 3 hours ago • 407 comments

Sadly still seeing many reports from newly-diagnosed folks in FND spaces that their doctor diagnosed them by “ruling things out.” This is bad! FND should be diagnosed based on positive clinical signs. It is not a diagnosis of exclusion. Someone please have a word with the neurologists 🙏

submitted 19 hours ago • 3 comments

Once again, great essay, very worth your time. And welcome @kaaho.bsky.social to Bluesky!

submitted 19 hours ago • 0 comments

Our study examining health impacts — including deaths — from Medicaid cuts was just published in the Annals of Internal Medicine Overall, the Big, Beautiful Bill Act could lead to more than 16,500 medically-preventable deaths due to these cuts 🧵 www.acpjournals.org/doi/10.7326/...

submitted 23 hours ago • 1 comment

BREAKING: A federal judge in Massachusetts (the Reagan-appointed William Young) has declared the Trump administration's cuts to NIH grants — ostensibly over Trump's EOs on gender ideology and DEI — are "illegal" and "void." He's ordering many grants restored.

submitted 1 day ago • 105 comments

1/In #FND , chronic pain & PTSD it seems like ‘threat detection’ areas of the brain are almost frozen in time. Even though the triggering event i.e injury, accident or psychological trauma are over- these deep unconscious areas of the brain are convinced they are still taking place.

submitted 1 day ago • 3 comments

Well done @jonstoneneuro.bsky.social & team in preparing this film to help health professionals especially in emergency settings learn about functional seizures & how they differ from epileptic seizures.🧡💚 neurosymptoms.org/en/media/fnd... @hselive.bsky.social @inmoirl.bsky.social @rcsi.bsky.social

submitted 1 day ago • 0 comments

This Father's Day as Men's Health Week comes to an end, FND Ireland reaches out to all men living with Functional Neurological Disorder (FND) or supporting someone with FND. Happy Father's Day to all the dads and father figures out there! 💚🧡 #FathersDay2025 #FNDIreland #FND

submitted 2 days ago • 0 comments

If you haven't been looking recently at the Open Encyclopedia of Cognitive Science (oecs.mit.edu), here's your reminder that we are a free, open access resource for learning about the science of mind. Today we are launching our new Thematic Collections to organize our growing set of articles!

submitted 18 days ago • 11 comments

Yonder, to windward, all is blackness of doom; but to leeward, homeward—I see it lightens up there

submitted 2 days ago • 4 comments

Dear friends, what journals would you recommend for keeping up with current research in cognitive neuroscience? Grazie!

submitted 3 days ago • 2 comments

Alternatively, “Thousands of Americans expected to take to the streets in defense of their neighbors and their democracy” www.nytimes.com/live/2025/06...

submitted 3 days ago • 77 comments

I know there's a lot going on, but the Secretary of Homeland Security declaring that federal troops are in California and Los Angeles to "liberate" the state and city from its duly-elected leaders really is a fourteen-alarm fire.

submitted 3 days ago • 323 comments

Good luck tomorrow, American friends.

submitted 3 days ago • 5 comments

iPhone PSA

submitted 4 days ago • 20 comments

"Science Shattered". I confess that even I was unaware of the statement that opens this piece: "The National Institutes of Health is responsible for more than 80% of the world’s grant investment in biomedical research." 🧪 projects.propublica.org/nih-cuts-res...

submitted 4 days ago • 7 comments

A man with a green card said ICE agents arrested him in #Lynn, Mass then took him to a detention facility—but first made a detour to a cemetery, where they took him out of their vehicle and beat him. #mapoli #Massachusetts

submitted 4 days ago • 181 comments

🧠 Study exploring new FND treatment! We’re exploring patient views on Brain-Computer Interfaces (BCIs) for #FND rehab. ✅ 18+ ✅ Diagnosed w/ motor FND (e.g. weakness, tremor) 📝 10-min survey and educational video: qualtrics.kcl.ac.uk/jfe/form/SV_... 📎 Poster below #FNDresearch #BCI

submitted 5 days ago • 1 comment

Also some biases are good. These are called “values” and provide social benefits like not living in a fascist society (if enough people act on them)

submitted 5 days ago • 0 comments

So long, Brian. Thank you for all the beautiful music.

submitted 5 days ago • 0 comments

Feeling a lot like I did in early days of the pandemic these days. It is so clear what’s coming: The people that will die because of cuts in global health, because of cuts to research, because of the concerted anti-vaccine push. It’s clear what’s coming, but we will have to wait to count the dead.🧪

submitted 5 days ago • 26 comments

Our new paper is out in BP:GOS. A large team including @lillianwieder.bsky.social‬, @susannahpick.bsky.social‬, ‪@sunjeevkamboj.bsky.social‬. We found that #dissociation can be reliably induced using a range of methods and drugs, most notably #mirror-gazing and #ketamine. t.ly/qOme3 t.ly/cK-YI

submitted 6 days ago • 1 comment

leftists: that thing you teach us in school to be terrified of is happening historians: that thing is definitely happening star wars: here is a beat-for-beat breakdown of how the thing happens, but with pew pew lasers. we know you watched it news outlets: these protesters are out of control

submitted 6 days ago • 101 comments

shel silverstein on the LLM, 1981

submitted 7 days ago • 10 comments

It is 100% carrying water for the opposition to participate in this collective delusion that Dems for some reason need to answer for every teen who throws a rock rather than hold the Trump admin accountable for intentionally creating chaos and breaking the law to stoke violence. They are in charge.

submitted 6 days ago • 504 comments

Thanks to NAI for raising awareness of #MensHealthWeek. It is important to highlight that although FND is more common in women than men that many men are diagnosed with #FND. We need to continue to breakdown the stigma around FND so that all those living with FND get the support they deserve. 💚🧡

submitted 7 days ago • 0 comments

Changing language is key to challenging stigma in #FND - ‘conversion disorder’ ‘irrational illness beliefs’ ‘catastrophiser’ ‘somatiser’ - all punitive, judgemental & unhelpful terms www.fndlanguagematters.nz

submitted 7 days ago • 0 comments

Visible progress in my level of mobility over the last few months. Hasn’t been an easy road but I’m getting there! With support from many friends and allies 🤝

submitted 7 days ago • 3 comments

the fact that people were told “today you are going to an elementary school to lie to teachers and kidnap kids” and didn’t immediately tell their bosses to go fuck themselves is all you need to know about why ICE should be dismantled

submitted 7 days ago • 275 comments

Exciting news! The first-ever symposium on Functional Neurological Disorder in Aotearoa / New Zealand. Importantly - with participation by people w FND. 🙌 www.fndlanguagematters.nz

submitted 7 days ago • 0 comments