liesllr.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

It’s hard to explain the hope I had at the beginning of the pandemic. I was scared, but I also thought we were going to become a more inclusive society. We would care more about chronic illness. Having that hope ripped away and replaced with eugenics & fascism has been incredibly painful.

submitted 3 days ago • 37 comments

The Toast podcast recently shared an ableist clip mocking ppl w/ Long Covid, so some lovely folks made this email tool to alert their sponsors, & one already pulled their sponsorship! (🙏🏻 Wildgrain) Pls personalize the text if you have spoons & share! mailxto.com/thetoast

submitted 2 days ago • 6 comments

Dit is een OPROEP. 22 maart 14.00u, niet alleen op de Dam, maar in alle Provincie-hoofdsteden tegelijk. Om 14.00u op het grootste plein van je stad. Tagen facisme, racisme en extreem-rechts 💪 Repost, zet op facebook, insta, X... wat je maar hebt, maar verspreid. Oké, dan gaan we dat regelen !!!

submitted 6 days ago • 7 comments

Long COVID studies stymied by pharma’s lack of cooperation… "They make billions of dollars off this drug alone," Nath says. "In dollar amounts, for them, [drug donation] is a drop in the bucket." cen.acs.org/pharmaceutic...

submitted 8 days ago • 1 comment

Wat een goed artikel!

submitted 9 days ago • 0 comments

This whole thread. People don't want to look at the reality of disability because it means facing the very real possibility that it could happen to you. And it absolutely can happen to you. It did to me.

submitted 10 days ago • 0 comments

politicoloog Mounir Samuel geeft de komende dagen het BOOS Counter College. thema? extreem rechts. want hoe herken je extreem rechts en hoe wapen je je daartegen? hier deel 1: dhttps://www.instagram.com/reel/DFsn1xpMjmR/?igsh=d3lkMWZibG5ycnlk

submitted 22 days ago • 7 comments

🟦 GRAAG VERDER VERSPREIDEN 🟥 WAJONG PETITIE ! ✅ geef deze petitie een flinke boost, ik steun ‘m van harte ✅ het beoordelingscriterium van de wet Wajong2015 moet hoognodig worden herzien ✅ ontsla het UWV van zijn functie als toekomstvoorspeller link naar de petitie 👉 petities.nl/petitions/he...

submitted 23 days ago • 2 comments

The significant grief of losing friends over COVID-19 precautions has received very little public attention, but the extraordinary response (over 2,500 people!) to @megkrausch.bsky.social's survey for The Sick Times indicates a strong urge for people to talk about their experience. bit.ly/4jHFG3I

submitted 27 days ago • 1 comment

Dit heeft niets met WIA verbeteren te maken maar alles met wantrouwen. Geef ze minder geld dan komen ze wel van hun luie kont af. En vaker controleren want we geloven niet dat als mensen wel weer in staat zouden zijn om te kunnen werken ze dit zelf ook willen doen. www.ad.nl/politiek/reg...

submitted 30 days ago • 1 comment

Demi Vollering onthult angsten tijdens Tour en vertelt over impact menstruatie #wielrennen

submitted 31 days ago • 0 comments

With bird flu, will we even get a "we're all in this together" phase, or will we just skip straight to the "meh who cares about disabled people" phase?

submitted 31 days ago • 13 comments

Got another autoimmune diagnosis today. Long Covid the gift that keeps on giving…

submitted 31 days ago • 3 comments

Nederlandse ouders met een kind met #MEcvs #PAIS #longcovid Please share. Graag invullen ook als je juist geen dwang/drang hebt gekend vragenlijst.dezorgvraag.nl/kindmetpais?... Screenshot= tekst vd oproep vd @mecvsvereniging.bsky.social

submitted 38 days ago • 0 comments

Overal komt extreemrechts aan de macht of dreigt dat te doen. Hoe kon dat gebeuren en wat valt er tegen te doen? Lees svp mijn opinie www.bnnvara.nl/joop/artikel...

submitted 40 days ago • 7 comments

Remember when the pandemic began and everyone started accommodating remote work? Everyone began showing brand new movies and live concerts streaming? Disabled people had been fighting for this for decades. Now it’s all taken away. It’s not that they can’t accommodate us, they just don’t want to.

submitted 40 days ago • 34 comments

Well done to Mark Vink on getting another piece published: this one has the provocative title, "CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that" www.frontiersin.org/journals/hum... #MEcfs #CFS #PwME

submitted 43 days ago • 12 comments

Wow, big surprise. It turns out that getting sick more often does not make you stronger, but actually weakens you and makes you more prone to illness. The idea that 'kids just need to be exposed to bugs' needs to die. jamanetwork.com/journals/jam...

submitted 44 days ago • 26 comments

Gerne teilen.

submitted 55 days ago • 55 comments

UWV-CRISIS 🟦 ‘EN WIJ DAN?’ 🟥 HERSTELOPERATIE LAAT ZWAARST GETROFFENEN IN DE KOU STAAN /1 ✅ reportage AD over door UWV gemaakte fouten bij de arbeidsongeschiktheidsbeoordelingen ✅ UWV gaat foute berekeningen herstellen ✅ maar fouten bij de medische beoordelingen niet, vanwege capaciteitsgebrek

submitted 54 days ago • 4 comments

I’m not looking back. I was already done with 2024 in January. But glad that I have hope for a better 2025. Thanks to medication finally some progress. I wish everyone a happy new year and to all the PAIS; comprehension, help and a better health.

submitted 59 days ago • 0 comments

long covid isn't just stopping people from working, exercising, socialising, living independently. it's also snuffing out patients' dreams of having children, and complicating pregnancy for those who are able to conceive www.abc.net.au/news/2024-12...

submitted 61 days ago • 20 comments

In en in triest. Dan heb je een ziekte die enorme impact heeft op het levens van veel kinderen in de meest vormende fase van hun leven waar nog geen genezing voor is en dan is er niet eens de bare minimum qua zorg… ze worden compleet in de steek gelaten 💔#LongCovid www.nporadio1.nl/fragmenten/n...

submitted 62 days ago • 1 comment

Mogelijke verklaringen voor extreme uitputting van patiënten met long covid

submitted 69 days ago • 1 comment

CONFRONT 🦠 #LongCovid 🦠 let's spread this call as much as possible 🙋‍♂️

submitted 74 days ago • 0 comments

Hey #MECFS and #LongCovid community. We have a patient here in Minnesota that is suffering from temporary paralysis after a bad MCAS reaction to new medication. Has anyone else heard of this? The doctors are stumped. Need the communities help!

submitted 78 days ago • 1 comment

Voor de kerstpakkettenactie minima ben ik op zoek naar nog 338 mensen die een kerstbrood willen doneren a 2,24. Er zijn 459 aanmeldingen, graag maken we ze allemaal blij, help je mee? Bericht delen is lief, hoe meer mensen het zien hoe beter bunq.me/StichtingLif...

submitted 82 days ago • 26 comments