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marydimmock.bsky.social
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
23 posts 1,151 followers 200 following
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🚨ACTION: #LongCovid research funding is on track to be fully eliminated & could mean the difference between treatments in our lifetime or not. If you care about that — please take action & share this! 1. Call: win.newmode.net/longcovidcam... 2. Email: actionnetwork.org/letters/long...

Oh wow, this is very interesting. The vaccine created triggers a response against the particular type of sugars that cloak multiple viruses and other microbes. Hope it can be replicated and doesn't impact other sugars.

NEW: RECOVER grants for Long COVID pathobiology studies were among those rescinded under a new NIH directive this week. @thesicktimes.bsky.social reached out to a bunch of PIs on these grants to learn about the funding cuts and impacts on their important research. thesicktimes.org/2025/03/27/r...

If you think what happened to Rumeysa Ozturk can't happen to you because you're a citizen and she's not, you are sorely mistaken. Ozturk was snatched off the street not for being a national security threat but for having a wrong opinion. If we don't put a stop to this, it's coming for all of us.

Wilmer Hale partners now have a choice. Disgrace yourself or fight. www.whitehouse.gov/presidential...

Hello Bluesky! This is my first post, and I'm starting with a story I published today, about FEMA halting almost all its grant funding. www.nytimes.com/2025/03/27/us/politics/musk-fema-immigrations-doge-freeze-aid.html?unlocked_article_code=1.7E4.IepP.vPJ_HHn4Amqb&smid=bs-share

Important convo on speed of Trump/Musk driven change to autocracy & repression of media, law firms, media, free speech... Applebaum is an autocracy expert yet even she didn't anticipate that e.g. Musk's 19 year olds could go into treasury dept & cancel payment to programs Musk doesn't like.

Excellent comment on Cochrane #MECFS exercise review by @hildabast.bsky.social and IAG: the review's recommendations are "outdated and misleading" & the review's editorial note needs to explicitly state that. But better still, Cochrane needs to withdraw this flawed review completely.

Good to see this new comment from @hildabast.bsky.social, on behalf of the Independent Advisory Group for stakeholder engagement on Cochrane review of exercise therapy for #CFS "Outdated and misleading content; review unsuitable for clinical decisions" www.cochranelibrary.com/cdsr/doi/10.... #mecfs

The biggest, most enduring scandal of the last few days is Trump's attempt to use an Executive Order to seize control over elections. It will not work, but it is a sign of what comes next. www.democracydocket.com/news-alerts/...

In <24 hours, Covid funding is DOGEd across HHS, CDC, NIH as if it and Long Covid didn't exist and there is no worry for future pandemics www.science.org/content/arti... www.nbcnews.com/health/healt... www.science.org/content/arti...

"There was no access to a toilet, so guards told the women – whose accounts in some cases occurred on different days or different buses – to urinate or defecate on the floor... " www.usatoday.com/story/news/n...

The Sick Times is working on a story about this. My DMs & email inbox are open for anyone in the Long COVID community who would like to send comments.

HHS's Office of Long COVID Research and Practice has been DOGEd. Closing this week.

If Trump can disappear them, he can disappear you. https://robertreich.substack.com/p/if-trump-can-disappear-them-he-can

The Fifth Amendment says due process is due all persons, whether the number eight or eight million. And if there were a mass-violation exception to the Constitution, why have a constitutional at all?

ICYMI: DOGE signed an agreement with Louis DeJoy to slash 10,000 jobs from the already-understaffed USPS. The USPS is the nation’s lifeline, ensuring delivery to every corner of the country. We cannot allow it to be dismantled, sold off, and handed over to billionaires for profit.

Again, the idea that the targeting of people who express (or allegedly express) views that run contrary to the administration will stop at immigrants is naive. Wrote about it today: wapo.st/43Ssl2Q

They are coming for every university, if you think you’re safe because it hasn’t been yours yet I don’t know what to tell you. Join AAUP, refuse to comply, organize your colleagues

This is an enormous blow to health—mRNA vaccines have been good not just for Covid but cancers. It's also a huge driver of biomedical research and industry. Guess all that science, and revenue will go to other countries www.mskcc.org/news/can-mrn...

"Now, as the Trump administration decimates foreign-aid programs, the U.S. is both making survival less likely for people with TB and risking the disease becoming far more treatment-resistant."

Today, 15 March, 2025, is #LongCOVIDAwarenessDay It’s a day to recognise the millions of people affected, advocate for research and prevention, and raise awareness for better care and recovery. 💙 #LongCOVID #COVIDisNotOVER

Today, 15th March, is #LongCOVIDAwarenessDay We stand with the millions who suffer in silence. The cost of inaction is too great. Never let a good crisis go to waste—now is the time to demand a #longCOVID moonshot research project to find effective treatments. www.nature.com/articles/d41...

Greenock Telegraph: 'Paramedic 'left on the scrapheap': Long Covid ruined my life' 'A hero paramedic who served on the Covid frontline says he feels like he’s been 'left on the scrapheap' because of the long-term health impact of the pandemic' www.greenocktelegraph.co.uk/news/2500878...

CALLS ARE WORKING - it has bought us precious time, but we NEED to keep the pressure up. Tomorrow is the cloture vote. KEEP CALLING: (202) 224-3121 ☎️☎️☎️ Tell your Dem Senator to vote NO on Cloture and NO on the Republican spending bill. Do NOT assume your Senator will be good on this. Trust me.

Todd Davenport and I were on Cochrane's author team for a full update of their #MECFS exercise review. We wrote this open letter to them, critical of their decision to disband the effort, called for withdrawal of current review @sunsopeningband.bsky.social (1/2) drive.google.com/file/d/12__3...

Good overview of how Trump's war on science and academic freedom is being achieved through 3 types of actions: - Control of science - Undermining the independence of universities / suppressing dissent - Maintaining geopolitical / economic goals.

Questions for my friends at Sullivan & Cromwell LLP: 👉 Are you proud of representing this felon on his criminal appeal? 👉 Why do you think he deserves legal representation when he’s trying to prevent others from getting representation through the corrupt abuse of official power? (1/2)

Since writing this article, I have received messages from federal civil servants who tell me it is accurate, and that they are frightened. Please share this with anyone who doesn't understand the scale of the transformation. www.theatlantic.com/ideas/archiv...

I wrote much of what I think about this election before it happened, so I am going to put it all together here. My book, Autocracy Inc, described the network of autocrats who seek to undermine democracy, inside their countries and ours www.penguinrandomhouse.com/books/725302...

ICYMI www.youtube.com/watch?v=wmDV...

For years I’ve contrasted the way that US science allocates cognitive effort from the bottom up via individual scientists responding to career incentives with the way things were done in the Soviet Union, from the top down, by the Party setting rear b priorities. I can’t do that anymore.

"Washington has become the court of Nero, an incendiary emperor, submissive courtiers, and a jester high on ketamine in charge of purging the civil service. This is a tragedy for the free world, but it is first and foremost a tragedy for the United States."

Want to do your own homework and form your own opinions? You can read all of the key briefs, pleadings and court rulings in tonight's Hampton Dellinger case and more than a thousand others that will impact voting, elections and democracy. www.democracydocket.com/cases/

Just read this graf. Share it with people you know who don’t pay attention to politics or news.

Donald Trump has disgraced the United States of America in countless ways since he first entered political life ten years ago. But he had never disgraced the nation as badly as he did today. He has brought shame on this country to an extent I had never thought possible. And he has only just begun.

"Transparency."

The FDA canceled an upcoming vaccine advisory committee meeting to discuss influenza virus strains

Erik Prince - Trump’s proxy to open a backchannel to Putin in 2016 and wanted to guard the nuclear reactors Trump was gonna give to the Saudis - wants to build concentration camps.

SCOOP: WaPo Opinion editor David Shipley is out. Jeff Bezos emails staff about a change to Post Opinions: "We are going to be writing every day in support and defense of two pillars: personal liberties and free markets."

If the Democrats bail out Mike Johnson on ANY spending bill, they deserve the utter political destruction coming their way. Some are already falling for the "but we'll get blamed for shutting down the government" b.s. Have you learned NOTHING? Not. One. Vote.

It seems that Long COVID data collection through the Household Pulse Survey has ended. HPS was not the only Long COVID data from the federal government, but a very important one. The first national survey to include LC, it was the only surveillance effort in the world to collect weekly LC data.

@blumenthal.senate.gov Why? Especially when this administration has just purged not only the high level generals but also 3 judge advocates general - the people who interpret and enforce the rules and advise the military on the legality of their planned actions.