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purplemamabear.bsky.social
Patient advocate, advocate for healthcare reform, wife/mom of those w #rarediseases, rare disease legislative advocate, interested in systems, sociology, psychology. Enjoy hiking & kayaking. Love 💕 people, books, traveling & laughing.
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Adore this

Happy to report that the @asanews.bsky.social Disability in Society Section has a BlueSky account! @asadisability.bsky.social Thanks to @jessical-2022.bsky.social for setting this up!! Follow us!!

Critical for patients and caregivers to know this regarding EMRs.

My world 🌎

SOCIAL SECURITY IS OUR MONEY! IT WILL ALWAYS BE. WE PAID FOR IT. I SUBSIST ON IT AS DO MILLIONS, FOR US IT IS OUR ONLY SOURCE OF INCOME. SENIORS PEOPLE W/DISABILITIES/VETERANS & PEOPLE WHO RECEIVE SURVIVORS BENEFITS. WE WILL FIGHT TOOTH & NAIL FOR THIS PROGRAM! (Thank you @socialsecurityworks.org )

We have made it officially & my daughter now permanently resides in the next state over so she can access quality and compassionate medical care. People with complex health should not have to move out of their state that their family and friends are in order to access appropriate care and 1

Who’s attending #RareDiseaseWeek in DC this February? Excited to attend!

Absolutely 💯 me

Makes me laugh every time I see it. My son rolls his eyes but……. resemblance, no?

Down with *UnitedWealthCare* Up with Universal Health Care. 💙

Instead of manifest destiny, maybe try manifesting decent healthcare.

Whooping Cough 😷

Thank YOU President Biden & VP Harris for this. Everyone on Medicare will benefit, this is such an overlooked accomplishment for those of us who have multiple & costly medications. Remember this serves Seniors/Survivors/People With Disabilities & Veterans! AMAZING.🙏💜 www.nbcnews.com/health/healt...

We MUST stay united and EMBRACE 2025 TOGETHER! Never give up. Onward!💜🔥

🔥NEVER FORGET: Senators Lindsey Graham, Ron Johnson, Mike Lee and Rand Paul have wanted for over a decade to RAISE the age of qualifying for Social Security to 70. 🔥This = CUTTING Social Security by 21%! 🔥Social Security is OUR money! 🔥We are being ROBBED & RAIDED! We paid for EVERY single penny!

#Medicaid #Medicare #M4A #MarriageEquality #Disability #UniversalHealthcare

💭 Inequalities in oral health: estimating the longitudinal economic burden of #dental caries by deprivation status in six countries bmcpublichealth.biomedcentral.com/articles/10.... #PatientExperience #LivedExperience #PatientEngagement #CommunityEngagement #Health #Research #MedSky

Be nice to win mega millions…… no more medical debt would be so sweet.

So proud of this woman! My niece has taken up hiking like her favorite aunt (that would be me). I am 2 fearful of solo hikes but somehow my niece has conquered any fear. Today she is out in remote area on own doing small section hikes. In September we travel to Roanoke to hike to McAfee Knob!

Wow X is on fire 🔥 with Elon shutting down accounts and disagreements about immigration. How many knew, sooner or later this would occur?

Imagine if, whenever a criminal with a firearm ran from the NYPD, they dropped a 2000lb munition on them, leveling a square city block, and then said anyone killed or injured within 500 meters of the impact was also a criminal because of their proximity to his weapon. That is official IDF policy.

www.propublica.org/article/eliz... #Tricare #Denial

Merry Christmas