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simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
43 posts 526 followers 78 following
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Not a single Reform MP has bothered to turn up to today's House of Commons debate on tackling violence against women and girls

submitted 50 days ago • 267 comments

Also important to mention: the Independent Advisory Group led by Hilda Bastian have announced that they do not agree with Cochrane's decision. The group was appointed by Cochrane to address the issues with the review and guide the update.

submitted 69 days ago • 2 comments

1) In the process of reviewing the most interesting ME/CFS-studies of 2024. I think this one ranks top of the list: Beentjes et al.

submitted 64 days ago • 3 comments

Should we change our name: 'ME/CFS Skeptic'? Some people said it's confusing because it gives the impression that we are skeptical of ME/CFS (the illness) rather than claims and flawed research on ME/CFS. Feel free to suggest alternative names in the comments below. 👇

submitted 63 days ago • 24 comments

1) Some background on the ongoing Cochrane saga... In 2019, several patients and researchers had pointed out flaws in the exercise review for CFS and asked these to be corrected or withdrawn.

submitted 74 days ago • 3 comments

IT'S OFFICIAL! From today, @plos.org and its journals are no longer posting on Twitter/X. If you want to carry on hearing about great science in our journal, follow @plosbiology.org on Bluesky here: bsky.app/profile/plos...

submitted 74 days ago • 13 comments

TW: Severe ME “People’s lives have been blighted by this disease... they cannot get the care that they deserve and that they need.” - Prof Chris Ponting, DecodeME Investigator. To hear from those whose family has been most affected by severe ME, watch below ⬇️ news.sky.com/video/in-ful...

submitted 79 days ago • 0 comments

chng.it/LQs2vxftLM

submitted 81 days ago • 0 comments

Professor Chris Ponting on Sky News @skynewsrss.bsky.social “this is one of life’s worst disease diseases”. #MEcfs

submitted 81 days ago • 0 comments

Vaccination significantly reduced #LongCovid in children and adolescents among ~300,000 kids and teens www.thelancet.com/journals/ecl...

submitted 83 days ago • 34 comments

We have written a blog article that summarizes the problems with the BMJ review on Long Covid interventions (Zeraatkar et al. 2024). Inconsistency in how imprecision was evaluated seems to be the key issue. Suspect that a correction will be needed. mecfsskeptic.com/the-bmj-revi...

submitted 86 days ago • 1 comment

A new BMJ review claims that #LongCovid can be treated using CBT and physical exercise As ever, the devil is in the detail TL; DR the authors' own risk-of-bias analyses show that their own conclusion is unwarranted (Too bad they hid the crucial deets in an online supplement!) cc #pwME #MECFS

submitted 92 days ago • 27 comments

Today, Wikipedia's featured article is about ME/CFS! Each day, a summary of one of Wikipedia's features articles appears at the top of the main page as "Today's Featured Article". We invite you to share it & point people to @meactnet.bsky.social for more info! en.m.wikipedia.org/wiki/Main_Page

submitted 95 days ago • 2 comments

1. I’ve seen a few people state, replying to y'day’s thread, that the left wing is innately respectful, while the right is innately abusive. I’m very much on the left (some would say far left) and have fought rightwing politics all my adult life. But in fairness I don’t think this is wholly true. 🧵

submitted 98 days ago • 234 comments

I was derided by one or two people for my recent suggestion (journals.plos.org/plosbiology/...) that we might need the equivalent of a Truth and Reconciliation Commission for scientific misconduct. Maybe the wording of that is a bit pompous, but I do think the principle is worth looking at. /1

submitted 100 days ago • 1 comment

Professor Chris Ponting discusses his pre-print on "replicated blood-based biomarkers" for ME: virology.ws/2024/11/19/t...

submitted 100 days ago • 4 comments

From a citizen scientist who was once engaged in discussions on trial design and patient-report outcome measures (PROM) who's now too ill #mecfs to continue their engagement, and prefers to remain anonymous, but will follow the replies here. 🙏 cc @johnthejack.bsky.social

submitted 100 days ago • 3 comments

Chris Ponting @cgatist.bsky.social explains why replication and scale matter for the value of all #ME research. Sharing this because unlike most research scientists I have spoken to about ME, Chris does not make exaggerated claims or raise false hope. www.youtube.com/watch?v=08qL...

submitted 100 days ago • 2 comments

Curious. The ONS may have overestimated no. of economically inactive: “response to the Labour Force Survey have collapsed from 39% in 2019 to 13% last year. “workers may be less likely to respond than the economically inactive” Other data supports this view. www.theguardian.com/uk-news/2024...

submitted 100 days ago • 1 comment

From Norway: What can wage development before and after a G93.3 diagnosis tell us about prognoses for #MyalgicEncephalomyelitis? www.sciencedirect.com/science/arti... Among other things, it shows rehabilitation programs are poor at improving economic productivity in ME #MEcfs #CFS #PwME 1/

submitted 106 days ago • 2 comments

Lovely people of bluesky - if you are looking for gifts this season, my book - 25 birds, one year one garden is reduced on Amazon! All profits to biomedical research (#mecfs) #ukbirding 25 Birds amzn.eu/d/cxOGiEg

submitted 105 days ago • 0 comments

What a study about #MEcfs, looking at the earnings of 6,000+ PwME in Norway with a G93.3 (ME/CFS) diagnosis. Big surprise, earnings go down from the years before diagnosis. Recovery rates appear low. Real-world, objective outcome data at last. www.sciencedirect.com/science/arti...

submitted 106 days ago • 3 comments

ME Research UK: In our last financial year to October 2024 we paid out almost £800k to the research projects we are currently funding. See more details of our current ME/CFS projects on the infographic or at meres.uk/current. #MyalgicEncephalomyeltis #pwme #ME #mecfs

submitted 108 days ago • 0 comments

For my first post on Bluesky I thought I’d re-share the song I wrote and produced in 2018, performed by people with ME/CFS from 7 different countries 1/

submitted 108 days ago • 5 comments

A smart and moving reworded version of “blowin’ in the wind”, written and produced by Robert Saunders. Performed by 7 people around the world with. #ME. Well worth a listen.

submitted 108 days ago • 1 comment