sm00ts81.bsky.social
Former social worker in the UK, now disabled ♿ (Fibro) and rarely leaves the house. Bipolar 🦖, spoonie 🥄 and gamer 🕹️. Child of the 80's and has big cat 😺. Also lurks on Reddit Sm00ts81 and Threads Sm00ts81.🖥️ Steam 46249303 Sm00ts. PSN Sm00t81 😉
448 posts
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Appreciated greatly. Really going through it now. Food is great though lol
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I will now endeavour to be the person I always wanted to be, but was too afraid due to uncertainty, anxiety, embarrassment and wishing to please others. Everyone literally tells me I should write my life story, so that is the aspiration to aim for. Some right nutters in here though lol.
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If only someone could have seen the signs and warned me lol. I know you did Rebel, thank you for hearing me and listening.
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Not felt it for two decades. Now I'm aware of it, I aim to use it. Nowt is sedating me now, not codeine or gabapentin.
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The referral were to keep family on board that there would be more proactive support if I were to struggle managing with this concept. I aim to be positive and loving in nature. I'm aiming to be far more balanced and zen. It is a learning experience, much like life itself.
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But a realization nonetheless. I always admire other creative people with MH issues that were able to channel and focus their experience in a creative manner, Stephen fry for instance. I aim to utilize my own experience and creative energy during a period of manid for the same benefit.
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It was after having a rapid fire rant about Ofstead and the system in place. How it reduces quality of teaching and learning to codified buzz phrases and the impact upon the children and teachers. I was described as a 'wide-eyed' manic during the exchange. Not great for my self-esteem or stigma.
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Already has! Delayed my lunch first by a few hours, has just floored me. In bed now ta, thanks for looking out x
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Literally done in the last hour or too. Must have received your message from the void.
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That really sucks. On our NHS you can get any approved medicine for £10 a month if you pay for the monthly subscription. Tbf the actual service here for our conditions is very poor. Doctors don't have a clue or interest and any referral takes years to process.
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A face like a welder's bench another one.
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Exactly this! Only so many spoons in my old weathered drawer lol.
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Could not make it up, or sway those beliefs due to the above. Will just leave them to it in future. Too much psychic damage.
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Echo chamber that further entrenched such opinions. This can be my only hypothesis, after a conversation that literally boiled down to 'Boris could walk on water' and 'Starmer is a Peado'.
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Making me wish I was vibing in that state too. Not possible at the minute as I am staying at my mum's house for a few nights. Will make up for it on my return.
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He reminds me of my mother. Worked hard to obtain wealth, but has turned full Tory to cling on to it. Meal times when I'm over are demoralising lol.
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This looks like it's a thing we should all do. To see indeed if we exist beyond the hive mind in an individualistic format in order to experience the universe in its full and deserved beauty. The world is that crazy seems like we woke up in the wrong dimension. Best test it to make sure it's right.
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I think my bitterness allows me to resist reconstruction after death lol.
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I hear you. Me too since I turned 18 and developed symptoms.
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Yes I'm receiving around £560 p/m. Can't get anymore because my wife has a well paid job. Not entitled to anything else in the UK due to that.
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I had to go private to obtain my diagnosis. Can't comfortably afford it full time as I have been unable to work as a social worker consistently since a year ago or so. That was only on a 6 months phased return. Was killing myself daily, taking ice pack breaks and being bedridden outside of work.
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Do you think your migraines are part of your fibro? Or something unrelated? In the UK chronic symptoms and pain management is pretty poor. Have been denied pain clinic referral X4 times for unspecified reasons despite my protests. Have kind of given up on that element of treatment now.
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I am still having to use edibles as required, only think that can work when the 'migrain' has started. Does not cure, but does reduce intensity.
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Sounds reasonable. My codeine use has come down to 30mg prn, but is basically round the clock day and night. I was using 60 mg for years. Dread to think the damage I have caused, had little alternative with the consistent high pain levels.
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I have no idea to be honest. Could well be. Started at the same time as my fibro symptoms at 40. I do have a family history of migraines though.
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It really is a minefield isn't it? The amount of codeine I'm on around the clock coupled with fibro, basically have brain fog and constipation/heavy fatigue round the clock anyway. I have really felt the increased appetite thought. Trying to get to grips with that.
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Do you get any side effects which are an issue or are they not too bad?
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Can tell I'm new to playstation. Psn is sm00t81.
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Thank you for that. Been dealing the last 5 years with fibromyalgia and migraines from an initial COVID infection. Beta blockers workers but reduced my function too much. The pizotifen is fantastic, but has made my appetite massive lol.
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Beta blockers did work, but reduced my physical function more than I would. Would recommend the pizotifen. Only downside is the increased appetite.
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My smart watch just geared towards healthy exercise. We are a long way from that! Visible has helped tremendously with activity planning. I used to complete big tasks to completion, then take the night)next day crash. But you can plan far more realistically with the device.