wiredwoozle.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Only a small amount needed today/tomorrow to avoid a very bad outcome. Please help. This is an ongoing need. If unable to donate, please share to reach people who can. 🙏💝 #WomensRightsAreHumanRights

submitted 5 hours ago • 0 comments

Riddle me this: why did the US specialists I saw have literally a dozen or more treatment options I could try, and here I am not even allowed to see a new doctor? This is an excerpt from the Stanford consult. For the record. Read the last sentence. How is this allowed? #Care4ComplexCanada

submitted 1 day ago • 0 comments

Maybe the worst part of all of this: I cannot get the medical care I need to literally save my life, but I also can’t access palliative care, pain management, or anything else that would improve my quality of life as I decline. This is such absolute cruelty. #Care4Complex #MAID

submitted 1 day ago • 0 comments

One of the things killing complex patients the most quickly, is how 99.99% of doctors and the medical system and its regulators believe and defend their colleagues over patients. #Care4Complex

submitted 2 days ago • 0 comments

Long shot, but if anyone knows of any decent rental housing in Hamilton, ON area please let me know. Must be a house or unit with direct entry and NO shared air with other units, as I’m high risk for infections and extremely allergic to cats and fragrances. Thx!

submitted 2 days ago • 0 comments

🖤🕯️ Faraz Fallahi Mein Mitgefühl: Mit Faraz' Familie und allen, die um ihn trauern. Mit allen, die schwer krank sind und um ihr Leben kämpfen. Mit allen, die unter dem dramatischen Mangel an medizinischer Versorgung, Forschung und Therapien zu #MECFS leiden.

submitted 3 days ago • 34 comments

UPDATE: Nevra has received $1,541.46 for March rent @nlizaki.bsky.social just needs $43.79 more in donations in 5 DAYS or she will be homeless and/or lose medical care access 🚨 DONATE: www.paypal.com/paypalme/Sav... Repost and share even if you can’t donate! 🙏🏼 #RentFund #MutualAid

submitted 2 days ago • 0 comments

One of the biggest things the underfunded, understaffed, broken healthcare system has stolen from both doctors + patients is time. For a doctor to be able to provide quality care (+ not at the cost of personal sacrifice), time is ESSENTIAL. Especially for complex patients. #Care4ComplexCanada

submitted 3 days ago • 1 comment

Friends: I’m at $1,473.03 for March rent I’m so close! I just need $112.22 more in donations in 5 DAYS so I’m not homeless and/or lose medical care access ❤️ Donate here: www.paypal.com/paypalme/Sav... #RentFund #EDS #LongCovid #MECFS See Emily’s post below on why we use my friend Adrian’s PayPal

submitted 4 days ago • 0 comments

UPDATE: Nevra has received $1,180.79 in rent donations for March rent @nlizaki.bsky.social needs $404.46 in 6 DAYS or she will be homeless and/or lose medical care access 🚨 DONATE: www.paypal.com/paypalme/Sav... Repost and share on all social media platforms even if you can’t donate! 🙏🏼

submitted 5 days ago • 0 comments

If you don’t have #MECFS or #LongCovid you might not understand how exciting this is. It is so rare to find accurate info on these illnesses for the general public. This will be a great basic primer on ME for friends and family.

submitted 7 days ago • 3 comments

📢 #ME community, we need your help! Details here for how you can join our #FundThePlan campaign (in whatever version is possible within your energy limits) 👇

submitted 6 days ago • 0 comments

We’re seeing people in power dismantle of every remaining state apparatus that made things safer: food, water, air, public health, etc. Why debilitate ourselves and each other? That’s doing the work of oppressors for them. Wearing a mask is part of the fight and essential to survival.

submitted 6 days ago • 1 comment

UPDATE: Nevra has received $705.82 in rent donations for March rent @nlizaki.bsky.social needs $879.43 in 7 DAYS or she will be homeless and/or lose medical care access 🚨 DONATE: www.paypal.com/paypalme/Sav... Repost and share on all social media platforms even if you can’t donate! 🙏🏼

submitted 6 days ago • 1 comment

Friends! Donations for my March rent have stalled at $568.58 I need $1,016.67 more in donations in the next 8 DAYS or I will be homeless and/or lose access to my surgery ❤️ DONATE: www.paypal.com/paypalme/Sav... Repost and share on all social media platforms even if you can’t donate! 🙏🏼

submitted 6 days ago • 0 comments

🚨 PLEASE boost! Nevra is not getting donations, she will become homeless stuck waiting for surgery in Pakistan No local family or organizations helping as she is unmarried and unable to work due to severe disabilities 🚨 She won’t survive without our help! Donate whatever you can! Thank you

submitted 11 days ago • 1 comment

It’s high time we start being honest about what’s behind a lot of the push towards “wellness”. It’s ableism and eugenics. Its scared people who can’t face the fact that they could lose their health at any moment. It’s people who desperately need to cling to control. 🧵

submitted 12 days ago • 21 comments

If you can take a moment to repost this or if you can afford to donate a few pennies to help my friend get appropriate medical treatment and avoid psychiatric incarceration for her biological illness. Bit.ly/DonateLine to donate by PayPal and Bit.ly/linepetition for more details.

submitted 12 days ago • 0 comments

No one is immune from disability. It can happen to anyone at anytime, regardless of how 'young and healthy' you are. Stop believing you will be the exception, and start engaging in disability justice. It's far easier to fight for better support and treatment while you still have your health.

submitted 12 days ago • 24 comments

Toolkit for Friday’s #JohnVsJonVsME LoveFest is here! Browse the MEmes for a pick me up or get inspired to make your own! Whether you’re feeling 💖 loved up 🩵 down & blue ❤️‍🔥 or raging red all feelings are welcome as we spread the word about the #GreatestMEdicalScandal! docs.google.com/document/d/1...

submitted 14 days ago • 0 comments

Now that i’m progressing with agoraphobia I’d like to do a #LongCovid #MECFS leaflet handout session somewhere local on a weekly basis. Anyone wanna join? Could do Glasgow/Edinburgh city centre? I have tons of leaflets and would be cool to meet others in the community too!

submitted 14 days ago • 0 comments

I’m looking to buy a phone that I can tolerate the screen due to severe ME. Sometimes when I crash I cannot use a phone at all. I’ve been looking at the #BooxPalma and #BoocPalma2 (e-ink screen). Is there anyone who owns one of them I can ask questions? Cheers!

submitted 15 days ago • 3 comments

Results from this study reveal that the gut microbiome regulates select metabolites in the intestinal lumen that differentially activate vagal afferent neurons, thereby enabling the microbial modulation of chemosensory signals for gut-brain communication. www.cell.com/iscience/ful... #VagusNerve

submitted 15 days ago • 0 comments

Reposting for more eyes — seriously looking for advice #MECFS #LongCovid #CCI #CervicalSpine #Disability #ChronicIllness

submitted 16 days ago • 0 comments

A quick resistance task: 1. Google Gulf of Mexico 2. “Gulf of America" is the top 3. Click on the three little dots to the right of it 4. Select "Send Feedback" 5. Click on "Gulf Of America" 6. Select "Inaccurate content" 7. Select "Incorrect" and type in "The correct name is “Gulf of Mexico"

submitted 16 days ago • 668 comments

Used to work 12 hour shifts on my feet in a burning hot kitchen and deadlift full kegs of beer in an ice cold walk-in and still got taken down by an invisible airborne virus. Push ups won’t save you. Wear a mask & get to know your neighbours.

submitted 16 days ago • 1 comment

Today my neurologist told me my long-untreated neurosurgical issues (especially tethered cord) led to muscle atrophy and nerve damage: “you have the nerve health of a 70-year-old” 😢 I get 2 more neurosurgeries this week, donations needed and appreciated www.gofundme.com/f/help-emily...

submitted 16 days ago • 0 comments

Finally got the final quote for my wheelchair and it’s bumped the GoFundMe up from £8k to £20k. I’m devestated - cried a lot, contemplated giving up completely. But friends told me to keep going so if you can share, I would hugely appreciate it #MutualAid #NEISVoid ♿️ #Crowdfunder gofund.me/989e17ca

submitted 18 days ago • 4 comments

A message from @nlizaki.bsky.social read by a friend ❤️. Let's keep sharing Nevra's story! She's so close to getting vital surgeries in Pakistan 🙏🏻 #MyalgicEncephalomyelitis #pwME #NEISVoid #MECFS #SevereME #MCAS #Endo #Dysautonomia

submitted 18 days ago • 0 comments

If you live in reality and want a podcast to add to your feed, you might like Public Health is Dead. Upcoming episodes: the airborne transmission error, media complicity in destroying public health, moral panic around children, schools, and COVID, and how we might survive 💀🩷💚 publichealthisdead.com

submitted 19 days ago • 0 comments

Two more neurosurgeries next week and still massively below the goal, please share this even if you can’t donate, this is lifesaving medical care I can’t afford by myself, thank you ❤️

submitted 19 days ago • 0 comments