wiredwoozle.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Thank you again for your help 🙏🏽 I’m now only $488.71 short of my June rent, due in 10 days! ❤️ Please donate to my #RentFund here www.paypal.com/paypalme/Sav... And please boost this post and comment on it so more people can see this and donate, even if you can’t donate! #MutualAid

submitted 3 days ago • 1 comment

Eight years ago today Merryn Crofts died from severe #ME just ten days after her 21st birthday. Her mother Clare continues to support ME sufferers every day with incredible courage. Merryn was the second person to have ME recorded as cause of death. So many lives ruined 💔

submitted 1 day ago • 1 comment

I need help from #pwME Have any of you had issues taking levothyroxine with your ME? I started it in Dec 2024 and had to increase really slowly because it kept crashing me. I’m at my full dose finally and still crashing more easily than usual. #MECFS

submitted 4 days ago • 1 comment

May update! Massive thanks to everyone helping me. Please boost! Here’s where we’re at with my fundraising needs: ❤️ $789.80 in rent due May 31, donate here www.paypal.com/paypalme/Sav... 💙 $3,718.68 in GoFundMe care, food, meds, care loan repayment needs, donate here www.gofundme.com/f/save-nevra

submitted 6 days ago • 1 comment

Fantastic response to the BMJ's shockingly bad commissioned opinion piece about ME/CFS.

submitted 8 days ago • 0 comments

I really need folks to stop acting like disability is full of people “scamming” the system. The average person has no idea how hard it is to qualify. How dehumanizing the process can be. How much you have to sacrifice & give up. It’s designed to make you quit.

submitted 8 days ago • 137 comments

This is also 21st century thinking. Fauci said “the vulnerable will fall by the wayside” & y’all didn’t blink. It would have been more truthful tho if he said “only ppl who die or get Long Covid will be harmed by Covid—this will include healthy ppl, but they won’t be healthy anymore, so fuck em!”

submitted 8 days ago • 1 comment

The BMJ has now published my rapid response to Miller et al's Opinion piece. www.bmj.com/content/389/...

submitted 9 days ago • 15 comments

I've submitted a rapid response to this BMJ Opinion piece - speaking from my dual experience as both researcher and 'recovered ME/CFS patient' (not a term I'd choose to employ).

submitted 9 days ago • 11 comments

or the UK!

submitted 9 days ago • 1 comment

🗣️ 📣 Everyone deserves safe healthcare ⚠️ Petition closes 11 May - needs 10,000 signatures to get a government response ⚠️ Introduce new air quality and PPE rules for health and social care settings petition.parliament.uk/petitions/70... Please sign (if you live in the UK) & share 🙏🏻 ✍🏻

submitted 15 days ago • 0 comments

If you have MCAS and can only eat a restricted diet, I'd love to know which foods are safe for you?

submitted 16 days ago • 1 comment

Received some donations since posting the update❣️ Thank you #NEISVoid #HelpSky #MAVoid❣️ 665 OVERDUE RENT DEADLINE 1 Hour ⏰ 190 utilities 💡 140 adjusted MCAS meds total 💊 #MutualAidBoost #HelpFolksLive2025 #KeepPeopleHoused #DisabilitySOS #MEAwarenessMonth #LongCOVIDAwareness #EDSAwarenessMonth

submitted 16 days ago • 1 comment

There’s lots of medical and political stresses rn here in Pakistan! Thanks to your help, I met May rent We still need $809.27 for my June rent due May 31 so I’m not homeless — still recovering from surgery + care needs from severe post-surgical flares ❤️ Donate here: www.paypal.com/paypalme/Sav...

submitted 17 days ago • 2 comments

It’s my birthday month and I’m fundraising ✨ for my birthday i would love to take a shower as it’s been a couple of years. And i need helping paying for transport back to Vegas after my biopsy. I would love if you’d share and/or contribute! ❤️ being disabled there’s endless things to pay for.

submitted 22 days ago • 1 comment

🚨 This is now an emergency, please give, comment, share! I need $917.64 in rent donations in 4 DAYS or I will be homeless! I’m still recovering from surgery — no Pakistan shelter will take an unmarried disabled woman who can’t work 🚨 Donate: www.paypal.com/paypalme/Sav... #RentFund #MutualAid

submitted 29 days ago • 0 comments

Clip of David Tuller tearing up the PACE trial at the Invest in ME conference in 2017. David has been calling out bad #MECFS research for nearly a decade and his work is more important than ever. I've just donated to his crowdfunding campaign - please consider doing so if you can.

submitted 36 days ago • 1 comment

Since no one’s posting about it here, AISH recipients all got letters today saying we have no choice but to apply for the disability tax credit as a requirement to apply for the Canada disability benefit when applications open up. And they WILL be clawing back the entirety of the CDB.

submitted 38 days ago • 2 comments

I've noticed here in Australia, we are really bad at mutual aid. Please, is there anyone in Melbourne who can help Anna? She has been talking about her situation for years. Her condition has gotten worse because she can't get the help she needs. She needs a quiet room to stay in. #MutualAid

submitted 39 days ago • 2 comments

Someone in Australia PLEASE house our friend—even temporarily. She will die by #DV. Anna has #SevereME but manages toileting. Basically she needs a bed in a quiet room, meals heated up, laundry—she can remunerate. Details in 🧵. Or, feel free to DM me with questions. Share this post. 🔁 #SaveAnna

submitted 39 days ago • 1 comment

I swear to god, every time I tell someone I’m chronically ill they immediately tell me about some “health hack” they do as if it’s gonna fix me. Everyone really seems to believe I’m only sick because I’m doing something wrong & it could never happen to them 🤯

submitted 40 days ago • 3 comments

Just so you’re aware, if you wear glasses, that’s a mobility aid and you’re disabled. Glasses are just so normalized that most people don’t see it as such. Imagine if most mobility aids were that way. Imagine how much more respect disabled people would get. It’s completely possible.

submitted 40 days ago • 17 comments

Does anyone know if you can make Bsky do notifications for incoming DMs on iPhone? I can’t seem to find the settings for it. I’m not on here much so would be good to know if anyone’s messaging me.

submitted 40 days ago • 0 comments

Major endometriosis study reveals impact of gluten, coffee, dairy and alcohol theguardian.com/society/2025... “It is so important for women if they feel they can do something for themselves to tackle the pain of endometriosis – that is tremendously empowering.” FUCK OFF NO IT ISNT

submitted 40 days ago • 4 comments

More on this: She Worked in a Harvard Lab to Reverse Aging, Until ICE Jailed Her www.nytimes.com/2025/04/11/s... "None of them deserve to be held under these conditions, she said."

submitted 40 days ago • 0 comments

Hi everyone, with your help I’ve stayed housed during and after my first surgery for endometriosis I need $1,465.58 in donations to make my May rent — please donate, comment, repost: www.paypal.com/paypalme/Sav... I’m still recovering and figuring out next care plan steps, symptoms very severe

submitted 47 days ago • 2 comments