wiredwoozle.bsky.social
The more we get sick, the sicker we shall be.
🇨🇦 #pwME
251 posts
233 followers
255 following
Regular Contributor
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Bougainvillea Boost 💕
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Thanks for spreading the word. 🙏
Hospitalisation numbers are significantly worse: 129 so far in 2025, including a few vaccinated. 92 children. (From p2. The number you cited was from a subset.)
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I mean, if you feel...uh...moved to share... 😆
We jest, but ofc in people with autonomic dysfunction post-surgical bowel issues can be a real problem. Rooting for you!
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Good friend. That's as it should be. Wish everyone (esp abled ppl) realised that a small sacrifice on their part could be the difference between recovery & catastrophic deterioration.
P.S. I must be "properly pooped" too, because I read "pooped" as a verb, and was ready to celebrate your bowels. 🙃
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Oof. Glad you're still with us. ❤️
Here is a well intentioned cat cuddle of questionable efficacy.
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Gyne seemed skeptical... 🙄
Hope surgery can be done soon, and get you some relief. You've suffered far too much and too long, with all the NHS delays.
Wishing you an uneventful (and un-virus-ful) hospital stay. 💕
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So well said. Thank you for weighing in.
And I *really* like the title you gave it.
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Look at that sign, imagine how many people who wanted to be there today, couldn't be.
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Heartbreaking. Infuriating.
Your daughter was more astute and a better communicator at age 8 than most of the healthcare practitioners we encounter.
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Been thinking of you... 💙
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Becoming more urgent by the day... 😟
The chronic illness community online loves Anna, & has the resource of knowledge. But we need someone who can take her in. 🏠 #SaveAnna #CovidIsNotOver #LongCovid #DV
bsky.app/profile/wire...
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🙏💙
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I do hope someone can welcome Anna into their home, even if unable to commit long-term. To give her a chance at survival & better health.
She can pay rent.
Another crucial need is an advocate: someone willing to become familiar with her needs, and then coordinate other willing helpers. 🙏
#SaveAnna
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Becoming more urgent by the day... 😟
The chronic illness community online loves Anna, & has the resource of knowledge. But we need someone who can take her in. 🏠 #SaveAnna #CovidIsNotOver #LongCovid #DV
bsky.app/profile/wire...
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Anna lives in Melbourne with her abusive family. She has exhausted all avenues for government help.
Brain function (see quoted ☝️) is affected by #SevereME, especially in PEM, and malnourishment. We need to get her out of there before she can no longer communicate at all. Please share. 🔁 #SaveAnna
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... affects only female bodies
nullifies all those other facts, I guess. 😒
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Making (unevidenced) lifestyle changes for a complex disease is a sign of desperation, not empowerment. It is a sign of a complete failure of medical research and progress. It is a sign the burden is on patients to "try harder"
This is a cop out phrase to hide systemic failures
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Heh. I read that too, had the same reaction. 😒
Pls can there be the same energy for FINDING OUT WHAT THE 🤬🤬🤬 ENDO *IS*? "The womb-like tissue of endometriosis is able to grow new nerve cells..." This disease should be as concerning as cancer. I'm sick of doctors/society talking as though it's NBD.
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😂 Shake that bumble-booty!
💛
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Awww... 🥰
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I read "bee asses" - so yeah, now I'm laughing. Thanks! 😂
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Everyone shocked & horrified by RFK Jr should reflect on when they started treating Covid as something that only hurts people who don’t take care of their bodies or who have defective genes & not something THEY need to care about anymore. Cuz anyone still masking isn’t shocked
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💙💙💙