Just a gentle reminder that fear of movement doesn’t correlate with cardiopulmonary exercise test results in people with ME/CFS. The cause of exercise/physical activity intolerance in living with PEM/PENE isn’t that they are afraid to move. A 20-year-old study. https://pubmed.ncbi.nlm.nih.gov/15283620/
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So exhausting.
seems silly that scientists assumed it was fear and not just a learned reaction to what we experience. but doctors and scientists have a hard time quantifying what the patient says.
Used it many times to get body out of bed again.
Jon Kabat-Zinn uses Qi Gong as method of Body Scan in his great book, Full Catastrophe Living.
28 yrs #MECFS #hEDS
2009 Mass intro of mindfulness technique to #chronicillness mgmt.
We were damaged by exercise regiMens & waitlists.
90% women up until #longcovid #healthcare #MECFS
https://en.m.wikipedia.org/wiki/Full_Catastrophe_Living
#PEM