andrewgiffordphoto.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

So here we have an example of autoimmune encephalitis which caused this girl to stop being able to swallow. This is a thing that can and does happen, but when it's an ME/CFS patient they get sectioned or treated as though they have an eating disorder — until they starve to death. Why?

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Photo project you may enjoy too @lifeatthewindow.bsky.social louisquail.com/big-brother-... The book is incredible, it includes the letters with public services, fines, bird spotting notes, sketch of Justin and the warmth of relationship with his partner really shines through.

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... #jederTagMECFS #MECFS #LongCovid #MEAwareness

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This is the ultimate dick boss move from Musk - except he isn’t even the boss, he’s just a dick.

submitted 13 hours ago • 804 comments

Having a disability or chronic pain is not only about limitations when you can't do something. It's also about the price you are paying for doing something.

submitted 5 hours ago • 2 comments

A photo project you may enjoy @nikosuvisto.bsky.social ! I don't know Peter at all, I just happened upon this via the Subjectively Objective Discord that's recently been set up. www.peterchatterton.ca/residents/ discord.com/channels/125...

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Photo from a while ago: parcel shipping, SW China I love photographic qualities like this, where the colours and tones all work in an otherwise mundane moment. #Photography

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I keep seeing DEI being called an ideology when it is not, and the white supremacy that is replacing it not being called an ideology, when it really is. That shit goes back centuries.

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We are exploring experiences of medical uncertainty in relation to fibromyalgia, myalgic encephalomyelitis (ME)/chronic fatigue syndrome, long COVID and chemo-brain. We are working with patients, doctors and researchers to transform medical perceptions of these conditions.

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On class and the arts, which has a serious class problem. www.theguardian.com/culture/2025... www.theguardian.com/culture/2025...

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“If you're not careful, the newspapers will have you hating the people who are being oppressed, and loving the people who are doing the oppressing.” A classic quote from Malcolm X, who was assassinated 60 years ago today.

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I'm not having Fraser Nelson playing dumb on the rise of racism on the right after years spent printing Murray, Liddle, Taki and Shriver. I literally had a DM row with him years ago where I said this would happen.

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Photo from a while ago: hot food vendor, SW China Closed for the day. #Photography

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Pizza chefs debunk myths about making pizzas. No. 4: It’s false that wood-burning ovens are necessary for certain flavors. www.cnet.com/home/kitchen...

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Woke or biology? There are actually more than the basic “male” XY & “female” XX sexes. Why? Because biology also creates people with single X chromosomes, or extra chromosomes like XXX, XXY, XYY, or XXX+, plus many 🧬genes. 👉All I’m asking is— please be kind to others. Thanks🙏

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UK Artists/art fans upset about the government's AI copyright legislation plans that throw creatives under the bus, please see this document and fill out the linked government survey by the 25th!!! That's Tuesday!!!! Go go go! docs.google.com/document/d/1...

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A comparison of UK Government research funding for ME/CFS compared to other diseases like MS, IBD and Parkinson's 🧐 @nihr.bsky.social and @ukri.org we need ring-fenced funding for ME as part of the Delivery Plan Thank you to @mediumwhite.bsky.social & co. for analysis #MECFS #NHS

submitted 6 days ago • 6 comments

Pill photography project is still going… #chronicillness #mecfs #SevereME #art

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Disgusted as I am by the Seig Heils, I think they're a cynical 'watch the birdie' distraction from the plundering of public services.

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Photo from a while ago: oil change, SW China Bet it now runs a charm. #Photography

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Historic England acquires collection featuring some of UK’s oldest photos. www.theguardian.com/artanddesign...

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Here's video of Steve Bannon doing a Sieg Heil today at CPAC. It is what it is and it's what Bannon intended. Don't let yourself be gaslit.

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DOGE By The Numbers theonion.com/doge-by...

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This tweet is about a friend of mine with very severe ME ❤️‍🩹. If you have any ideas, please let me know! #pwme #MECFS

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So pleased to announce a publication date for the audiobook version of The Department. It will be narrated by the fantastic disabled actor Sam Jones. Ironic that publication day is 25 March, the day before the spring statement😐 Info here:

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Hope there's a streamed option for this! www.youtube.com/watch?v=aK5p... #IamMartinParr #Photography

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Examples/reading please, re building through lines & narrative within photo projects. My own project has a theme and aesthetic, but a sense of narrative has yet to emerge. Images feel related, as distinct from connected. Maybe this emerges once past 30-40 images. Thanks! #Photography

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New Lancet study shows extremely low, 2%, recovery rate from Long COVID. However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID. www.thelancet.com/journals/lan...

submitted 3 days ago • 9 comments

This is your PSA that some wheelchair users are ambulatory: we can stand and even walk a little. Think of it like this: an abled person can walk a mile. But for an 80 mile trip they're more likely to use a tool like a car or train. Same deal, shorter distances for ambulatory wheelchair users.

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Treated myself to a tasty take-out-home-delivery lamb kebab this week. Gave me the shits! Undeterred I'm going to try again this evening. So brave.

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Photo from a while ago: pheasants, SE China The red flower heads hung low, as if acknowledging the birds incarceration. #Photography

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