anilvanderzee.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Doctors can also suffer with a debilitating disease that has been denied by many of their colleagues.

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Two days left on David Tuller’s Trial by Error crowdfunding and 80% of the way to goal crowdfund.berkeley.edu/project/46120

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An excellent new film by Anil van der Zee—created while living with severe ME—features 5 doctors who are also patients with ME, Long Covid, or chronic Lyme. Candid, insightful, and timely. English subtitles available. Please watch & share #MEawarenessMonth

submitted 3 days ago • 0 comments

A film of doctors talking about having become patients. Thank you for making this important film 🙏 Being a GP with Long Covid, they speak for me. #LongCovid #ME #GeneralPractice

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Amazing video 🙌 It's striking how it takes lived experience for many Drs to understand how people with neglected infection associated chronic conditions are treated. That's the extent of the medical silencing 🧪

submitted 3 days ago • 2 comments

#MedSky #DoctorsAsPatients So eine mutige, ehrliche und tief bewegende Doku! Danke @anilvanderzee.bsky.social und allen, die diese Realität auf so kraftvolle Weise sichtbar gemacht haben, dem Unsagbaren eine Stimme geben, wie sie im Gesundheitswesen kaum Raum findet - zum ersten Mal in dieser Form.

submitted 2 days ago • 0 comments

I just came across a really great film on ME/CFS: ‘Doctors as Patients‘. It’s made by my Dutch filmmaker colleague @anilvanderzee.bsky.social, who has been living with ME for 18 years himself.

submitted 2 days ago • 1 comment

🎬 Kijktip: Indrukwekkende film over het leven met ME 🙏🏻 Dank aan @anilvanderzee.bsky.social en de deelnemende artsen voor hun enorme inzet en de gedeelde verhalen. Ook dank aan alle vrijwilligers die hun tijd en energie hebben gegeven om dit project mogelijk te maken. 💪🏻

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Documentary: Five medical doctors open up about living with infection-associated chronic conditions: “They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare.” #MECFS www.youtube.com/watch?v=J0yw...

submitted 2 days ago • 2 comments

Also doctors can get #MECFS #PAIS and #LongCovid. Also doctors then face stigmatization and a lack of treatment options in healthcare. Bravo @anilvanderzee.bsky.social, great work! youtu.be/J0ywwLIfH_w?...

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With english subtitles. This documentary, created by patients and informal caregivers, was deeply moving and profoundly impactful. I sincerely recommend watching and sharing it—it truly deserves to be seen.

submitted 3 days ago • 0 comments

1) 🎥🍿 There's a new film about ME/CFS and other Post-Acute Infection Syndromes (PAIS). The interesting thing is that it lets doctors with the illness speak about their experiences. www.youtube.com/watc...

submitted 3 days ago • 2 comments

1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before. They speak candidly about their experiences youtu.be/J0ywwLIfH_w?...

submitted 3 days ago • 19 comments

ME is a phenotype of #longCOVID. Long-COVID causes ME. Dr. Merel Hellemons and Jojanneke Kant during the Long-COVID Dag 2025

submitted 7 days ago • 3 comments

Berkeley's crowdfunder has now reached 51% of the goal, with 249 donations. Who will make the 250th donation?? crowdfund.berkeley.edu/project/46120

submitted 10 days ago • 0 comments

Prepping slides for this rn #MECFS #pwME #LongCovid @meforeningen.bsky.social www.mekonferanse.no/en/

submitted 10 days ago • 0 comments

Wat kun je als arts wél doen voor je ernstig zieke PAIS patiënt? Het is vaak een hele zoektocht, maar vanuit onze expertise denken we graag mee. Artsen kunnen zich gratis aanmelden voor de maandelijkse online casuïstiekbespreking: www.linkedin.com/posts/sticht...

submitted 16 days ago • 0 comments

Ik heb een bericht op LinkedIn over mijn aanvaring met de verzekeringsarts van Argonaut geplaatst. Graag even op LinkedIn reageren. Dank daarvoor! www.linkedin.com/posts/anilva...

submitted 18 days ago • 0 comments

Physio Austria Newcomer*innen Treffen: check ✅ #MECFS #LearnaboutME Thx for your contributions Yann (ME/LC) & @anilvanderzee.bsky.social. 🙏

submitted 51 days ago • 1 comment

Erna lover å ta grep for å takle #longcovid. Er det til å stole på i et valgår? Det ville være veldig fint om det er sant, men historien til oss MEsyke viser at lovnader fra Høyre ikke nødvendigvis blir omsatt i praksis. I 2015 åpnet Erna en kunstutstilling arrangert av MEsyke. -> 1/6

submitted 52 days ago • 3 comments

‼️Oproep: Beelden van mensen met zeer ernstige ME voor documentaire‼️ Voor een film "Doctors as Patients" waarin ik 4 artsen met een PAIZ interview, zoek ik mensen met zeer ernstige ME. Lees hier de rest van het bericht: m.facebook.com/story.php?st... #pwme #myalgicE #millionsmissing

submitted 62 days ago • 0 comments

Interessante video met onderzoeker Marjan Versnel over ME en ook het onderzoek naar Sjögrens. Er is nog geen samenwerking met het buitenland hoor ik. Is misschien het Charité interessant? Zie deze publicatie: www.mdpi.com/2077-0383/12... . youtu.be/iH4Hk_DTVdM?...

submitted 62 days ago • 0 comments

Another week, another bad exercise study. In this one, high drop-out rates and failure to mention that participants remained severely disabled after the interventions are among the issues: virology.ws/2025/02/28/t...

submitted 64 days ago • 1 comment

R.I.P.🕯️ An extraordinary advocate with V. Severe ME.

submitted 68 days ago • 0 comments

Leidt long covid tot de broodnodige erkenning van vergelijkbare onbegrepen ziekten, zoals ME/CVS? www.groene.nl/artikel/mist... Zeer lezenswaardig artikel, mede met dank aan @anilvanderzee.bsky.social en thisistheillme.bsky.social

submitted 74 days ago • 0 comments

"Vijf jaar na de coronapandemie hebben nog altijd honderdduizenden mensen #longcovid. Wacht hun hetzelfde lot als #MECVS-patiënten, die al jaren soortgelijke klachten hebben en veel onbegrip ontmoeten? Of leidt de aandacht voor LC tot erkenning van beide groepen?" www.groene.nl/artikel/mist...

submitted 74 days ago • 2 comments

Some things I've read recently...U.S. government removes Long Covid info @thesicktimes.bsky.social @betsyladyzhets.bsky.social, embedding Long Covid into RECOVER initiative, Dutch CBT/GET ideologues maintain high media profile @anilvanderzee.bsky.social virology.ws/2025/02/14/s...

submitted 78 days ago • 1 comment

1) After the recent passing of my (adoptive) father, I contemplated on the inevitability of illness, disability, decline, and, of course, death. Especially since I live with a chronic—and most of all, neglected—disease. I hope death is still many #pwme #myalgicE #millionsmissing #severeME

submitted 77 days ago • 2 comments

Amazing response by Rob Wust et al. that makes the response by Ranque et al. seem painfully silly. One way sad we still need to refute these nonsense claims, but on the other hand an awesome document why the deconditioning claim by the BPSers is nonsense. www.nature.com/articles/s41...

submitted 82 days ago • 2 comments

Auch wir finden Spikeprotein bei etwa 10% bis über 2 Jahre nach COVID allerdings genauso bei Gesunden wie bei MECFS und ohne Zusammenhang zur Symptomschwere.Das macht es unwahrscheinlich, dass es eine Rolle bei MECFS spielt. www.mdpi.com/2077-0383/14...

submitted 84 days ago • 3 comments

1) To my great surprise. CBT/GET promotor prof. Jos van der Meer is suddenly praising the work by cardiologist Linda van Campen & Frans Visser. Maybe he's finally learning something during his time as a member of the Dutch guidelines for "#MECFS"? JEEJAR write in the comments: "van de Meer writes

submitted 83 days ago • 2 comments

1) "I have read the news reports about the opening of #longCOVID clinics for children with mixed feelings." "For me, considering colleague pediatricians who have specialized in #PAIS’s on an international level since #LongCovidKids #KidswithME #pwme anilvanderzee.com/what-the-med...

submitted 84 days ago • 1 comment

🟦 GRAAG VERDER VERSPREIDEN 🟥 WAJONG PETITIE ! ✅ geef deze petitie een flinke boost, ik steun ‘m van harte ✅ het beoordelingscriterium van de wet Wajong2015 moet hoognodig worden herzien ✅ ontsla het UWV van zijn functie als toekomstvoorspeller link naar de petitie 👉 petities.nl/petitions/he...

submitted 88 days ago • 2 comments

Ik heb met gemengde gevoelens de nieuwsberichten gelezen over de opening van #longCOVID klinieken voor kinderen. Lees mijn blog waarom: anilvanderzee.com/wat-de-media... #pwme #longCOVID #LongCovidKids #KidswithME #millionsmissing #CGT #GET #CBT #GET #harm

submitted 87 days ago • 3 comments

Here's my piece for @thesicktimes.bsky.social about Cochrane's broken promises to ME/CFS patients over its crappy 2019 exercise therapy review. thesicktimes.org/2025/02/04/r...

submitted 89 days ago • 5 comments

Here's a thread of my coverage of the post viral ethics workshop hosted and organized by @vmatthiesboon.bsky.social at the Radboud.

submitted 90 days ago • 2 comments

We can ask questions in the chat. Participants are requested to wear a mask. The first session is moderated by Dr @molbaas.bsky.social who's there on behalf of stichting long covid and who's also in Pcnn.

submitted 90 days ago • 1 comment