chmacg.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

A leaflet from @dsa-uk.bsky.social with an easy to understand summary of the recent JR Consent Order concerning Councils clawing back Direct Payments and imposing 'blanket' surplus policies. Please share with anyone who would benefit from knowing this. www.downs-syndrome.org.uk/about-downs-...

submitted 1 day ago • 1 comment

If you’ve been listening to File on 4 today about people with #LearningDisabilities and autistic people being held in mental heath units, you may want to purchase this book. ‘Beautiful Lives’ explores how we got learning disabilities so wrong.

submitted 1 day ago • 0 comments

Yet another story of appalling neglect of people with learning disabilities, and autistic people. www.itv.com/news/2025-03...

submitted 2 days ago • 2 comments

Teams and Zoom are platforms where I have meetings imposed on me by professionals in which I inevitably have to fight to retain the care and support we so desperately need for our younger son. I am sad to see Skype go as it is my 'safespace' where I talk to my elder son, whom I miss dreadfully.

submitted 5 days ago • 0 comments

"We need a specific learning disability act that sets out enforceable policies to improve the lives of people with learning disabilities." This is what we have always needed, instead of a divisive, toothless (and invisible!) Down Syndrome Act.

submitted 10 days ago • 0 comments

An essential book on understanding #LearningDisabilities and, as the title says, how we got them so wrong.

submitted 20 days ago • 0 comments

Unless,of course, you have a #LearningDisability. www.bbc.co.uk/news/article...

submitted 19 days ago • 2 comments

This, every day, this ⬇️

submitted 22 days ago • 1 comment

Just finished (in less than 24 hours) Maff Potts' brilliant new book 'Friends and Purpose'. It caused me to write this. Connect 4. But read the book instead. makingrightsmakesense.wordpress.com/2025/02/16/c...

submitted 18 days ago • 1 comment

With the latest news about the Assisted Dying Bill, it seems that if you want to end your life, you need to sit before a panel and not the judiciary. However, if you’re a young person with a learning disability who wants to access their Child Trust Fund, you have to go to the judiciary. 🤔

submitted 23 days ago • 0 comments

So very sad to learn of the death of Helena Bell, Artistic Director, Kali Theatre. We flat-shared as students back in the day and she was the kindest, most generous person. Much love to her friends @kalitheatreuk.bsky.social and to her family. 💔 www.thestage.co.uk/news/tribute...

submitted 27 days ago • 0 comments

One of the Falmouth-based lifeboats, 'Richard Cox Scott' retired yesterday after 23 years of service. A flotilla of lifeboats from all the neighbouring stations and a coastguard helicopter accompanied her as she quietly left harbour for the last time without pomp or fuss. Very moving.

submitted 32 days ago • 0 comments

Great advice on Moneybox R4 from @danwhite1972.bsky.social about disability benefits and where and how to get advice on claiming them. Also, Child Trust Funds and the problems encountered by young people who lack the mental capacity to access them when they turn 18. (Spoiler: you’ll hear from me)

submitted 36 days ago • 4 comments

THE circumstances of the death of a man with learning disabilities has been highlighted after a split catheter was left in him – despite the risk of infection

submitted 70 days ago • 2 comments

David Lodge's inquest finished on Friday, coroner found he died from natural causes contributed to by neglect at Hull Royal Infirmary. His family statement www.georgejulian.co.uk/2024/12/23/d... "David was a person, first and foremost, but that was forgotten by those treating him" #OpenJustice

submitted 73 days ago • 0 comments

Hull Asst Coroner, Edward Steele, concluded David Lodge died from Natural Causes contributed to by Neglect. No chest examination conducted; local of monitoring of NEWS scores; failure to admit David to Intensive Care 11 findings of fact (in link below) www.georgejulian.co.uk/2024/12/20/d... 1/5

submitted 76 days ago • 2 comments

“I used to tell David that Wednesdays were my favourite day of the week” – an introduction to David Lodge www.georgejulian.co.uk/2024/11/06/i... Assistant Coroner for Hull will conclude David Lodge's inquest tomorrow morning. It was adjourned on 9 November as the court ran out of time #OpenJustice

submitted 76 days ago • 0 comments

My GP Surgery has decided to no longer carry out any blood tests requested by hospital clinicians as they don't get specific funding for doing them. This decision means a £50/£60 taxi bill from the surgery catchment for many frail and disabled as buses are scant. Patients are being used as pawns. 😔

submitted 84 days ago • 0 comments

Last week was UK Parliament Week and Sam, Alex, Bethan and Joe shared their thoughts with us after spending time discussing it with their Our Voice colleagues. #ukpw youtube.com/shorts/00O3r...

submitted 99 days ago • 0 comments

The theme for this year's #DisabilityHistoryMonth is Disability Livelihood & Employment. Adam, who lives with his wife Cathy, worked for the Post Office for 27 years! Listen to his oral history loom.ly/4rRtE0o to find out more about Adam's story.

submitted 90 days ago • 0 comments

It must be Christmas judging by the Old Chestnuts that are being dusted off. This one from Stephen Kinnock MP @skinnock.bsky.social (Hansard 2 Dec 2024). "We expect to publish the [Down syndrome] draft guidance for public consultation as soon as possible in the new year." 🐷✈ 😁

submitted 92 days ago • 0 comments

Would be nice if this pristine new space avoided calling people “morons”, “idiots”, “imbeciles” and the rest. Bad politics. Grim history.

submitted 104 days ago • 5 comments

How about adding into the Assisted Dying Bill an amendment to the NHS Act 2006 so that hospices are on the list of services the NHS has to provide?

submitted 96 days ago • 1 comment

Surround yourself with the kind of people who support their local library, bakery, bookstore, and café.

submitted 99 days ago • 338 comments

Seen this story popping up here this morning www.bbc.co.uk/news/article... Dunno what it says about me that I'm not shocked or surprised. It seems pretty common place. No action, no charges. Human rights abuses just accepted #NotFullyHuman

submitted 99 days ago • 0 comments

Apparently today is Fibonacci Day (chosen because of the mm/dd). I still remember that school lesson when we learnt about Fibonacci numbers in nature. 🌻 Here is a Brian Bilston poem...

submitted 103 days ago • 0 comments

This settlement emphasises the need for decisions made by local authorities in the child protection context to respect human rights www.39essex.com/information-...

submitted 108 days ago • 0 comments

Hello & welcome to new followers or Xodus people! Can we ask you all a favour? We pride ourselves on being a space where people who draw on or work in social care share an equal voice, and well.. this place feels a bit one sided doesn't it? Please encourage people who draw on social care to join.

submitted 112 days ago • 3 comments

Wonderful evening with the glorious Michael Rosen at the University of Birmingham. He shared his thoughts on happiness, how to achieve it and why it matters.

submitted 115 days ago • 4 comments

You never know when YOU might need to rely on your right to seek asylum... www.theguardian.com/commentisfre...

submitted 132 days ago • 1 comment

I was invited on to Woman’s Hour today to talk about the spiralling costs parents are facing as home to school transport is removed from their children with #SEND. www.bbc.co.uk/sounds/play/...

submitted 154 days ago • 2 comments

NEW POST: A record rise in SEND appeals, and challenges for teachers accessing school support. Two sets of statistics show things are not getting better… Read our article: www.specialneedsjungle.com/ecord-rise-s... #SEND #SENDfamilies #EduSky #SENDfamily

submitted 153 days ago • 0 comments

Pleased to have had the opportunity to contribute to the International Journal of Disability and Social Justice ' Collective Reflections on Laughing Boy, the play' Please do take time to engage with these beautiful and moving reflections: www.scienceopen.com/hosted-docum... #SEND #SENDfamily

submitted 167 days ago • 1 comment

Bluesky now has over 10 million users, and I was #6,148,438! It took me that long to work out how to set up an account. Another 10,000,000 users and I might have sussed out how to post something.

submitted 166 days ago • 0 comments