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curiousorca.bsky.social
Disabled ex-clinician People > Profits Bedbound rabblerouser 🔬🧪nerd Poodle mom Making art keeps me sane-ish Probably listening to #TheCure 🥀 #LongCovid #PwME #MyalgicEncephalomyelitis #hEDS #POTS #neuroqueer #auDHD #decolonizer #Vermonter
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I can't believe that the endgame of a highly contagious airborne pathogen that led to millions of deaths is a bipartisan effort to ban masks.

The only difference between a temp abled person & a disabled one is luck & time Their good health isn’t due to “trying harder” or moral superiority. It’s luck Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability Be kind. Be inclusive.

I wish chronically ill people could do a “freaky Friday” switch with our non disabled peers. If they could feel what it’s like to exist in our bodies, they might be more compassionate. Alternatively, I would like to know what it’s like to exist in a body free from pain. A body that feels safe.

You can’t change the past but you can change the future. Are you going to bend the knee to oligarchy or stand up to it? #3E

The people who rise to lead now will be the leaders. And the people who do not never will.

TOMORROW: We’re rallying at the Treasury building with @moveon.org to stop Elon Musk’s hostile takeover and tell this unelected billionaire to get his hands off our money. We hope you can join us if you’re in the D.C. area.

i will DIE ON THIS HILL #handembroidery #audiobooks

A time for ‘a look inward’, if ever there was one…👇 Thanks Canada, for a reminder that needs to be said, out loud! Introspection. Defined. ✨

This is Groundhog Day

Wow, how different the past 20 months of my life could have been had this interview of Dr Alba Asola by Dr Zeest Khan been available. A must listen for anyone with a bunch of bizarre symptoms being told they’re “fine” by medical providers. Actually, you may have #dysautonomia. #longcovid #pots

If aliens came down to earth and asked for my opinion on who should rule the earth, I'm going with librarians and Dolly Parton.

Lesson 1: Do not obey in advance. Thread of lessons from my book #OnTyranny. Written in 2016.

Thank you! I was a voracious physical book ready until I developed Long Covid and now I can’t process them. Audiobooks have saved me. Lots of people need adaptive reading assistance for a variety of reasons. To claim audiobooks don’t count is ableist AF.

#LongCovid is a multi-system disease affecting basically all organs and body systems. This is shown by thousands of publications and was already described by patient-researchers and advocates in the early pandemic. It can affect different people differently

The "bluesky is an echo chamber" think pieces that keep popping up really tickle me because they show how certain people genuinely believe social media should be for debating and arguing and not talking about the things that make you happy and sharing art with the world.

wut #nature #squirrel #backyardnaturalist #PwME

Hi, I’m God. Billionaires shouldn’t exist. Thanks, God