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emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️‍🌈📚
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Satellite data from the European Space Agency shows the surface temperature of the oceans is warming 4.5 times faster than they were at the end of the ‘80s. It’s not easy to predict climate change, and the reality keeps turning out worse than we thought it would be 🧪🔭 www.esa.int/Applications...

Two disability-focused state organizations, Disability Rights New Jersey and Disability Rights Arkansas, have paused services due to not receiving federal funds. New from me at @motherjones.com. www.motherjones.com/politics/202...

All I want for my birthday is to get enough donations to afford all of the neurosurgery care I need, so symptoms improve and I can maybe drive and work again Please donate and share! This won’t happen without help, my SSDI is very little, I need donations 🙏🏼 I’ve had these issues for decades

Spoke to autistic people about RFK Jr's recent claims about the lives autistic kids go on to lead & the idea that autism is something that needs to be eliminated or cured “Autistic people know, we don’t need prevention. We need inclusion, awareness and acceptance" www.huffpost.com/entry/rfk-jr...

I have watched too many disability organizations over the years refuse to stand in solidarity with trans people, insisting that they wanted to focus on disability alone, it was shortsighted and cowardly then, now it is being an accomplice to genocide on an organizational and an individual level

What nondisabled people are missing is beyond the fact that this is ugly and false, it’s completely in line with the eugenicist playbook. Convince the public that “these people” live sad, unproductive lives, that we need to eradicate this “disease,” and then eventually, eradicate the people.

“‘…all of this dehumanization is what ultimately led to the consequences of eugenics rhetoric: forced medical testing, forced sterilization, institutionalization, and unfortunately, mass killing,’ Dom Kelly said.” Thanks for including me in this @brittanywong.huffpost.com and @huffpost.com.

Personally, I think it should be front page news for at least a month if a sitting US President is using falsified evidence to try and deny due process to a man who has committed no crime, but that’s just me

Nevra is legit in need of help, even just a couple dollars here and there would help. #MutualAid #MEcfs

🚨 This is now an emergency, please give, comment, share! I need $917.64 in rent donations in 4 DAYS or I will be homeless! I’m still recovering from surgery — no Pakistan shelter will take an unmarried disabled woman who can’t work 🚨 Donate: www.paypal.com/paypalme/Sav... #RentFund #MutualAid

Please contribute if you're able or share the original if you're not

I need $1,252.60 in rent donations and I only have 11 days left before it’s due, please donate and share these posts so I’m not homeless! I’m still recovering from surgery and have nowhere else safe to go #RentFund #MutualAid #LongCovid #endometriosis #EDS #POTS #MCAS #CCI #MECFS #pwME #SevereME

Children face elevated kidney, heart, and gut risks for years after SARS-CoV-2 infection, three new studies confirm #LongCovid www.pennmedicine.org/news/news-re...

A lot of very distinguished people who swore an oath to preserve the Constitution are watching it get cut to pieces.

I’m returning to New York for two more neurosurgeries in June, but Mount Sinai told me a new state law may prohibit me from receiving financial aid — if this happens, I’m can’t afford the care for this trip (or future trips’ care) Please donate, share regardless www.gofundme.com/f/help-emily...

The Meta oversight board upheld a decision to keep up a Libs of Tiktok post targeting a trans minor. They said there was no imminent threat of incitement to violence despite bomb threats being made against the school. www.oversightboard.com/decision/bun...

SCOOP — The US sent Iraqi refugee Omar Ameen to Rwanda via new diplomatic relationship in which they've agreed to act as a "third country" for deportees unable to be safely returned to their country of origin, per cables reviewed by me. This is first reported instance. Cable indicates more to come.

Nevra, 29, disabled in Pakistan & severely unwell, has 11 days left to raise May rent. £150—£1,400 to go. She’s recovering from surgery after fleeing domestic violence. Without these funds, she could be homeless. #pwME #MutualAid #DV #DonesticViolence #Disability #ChronicIllness

They’re cutting food inspections and medical research and education and climate forecasting and dismantling anything compiling empirical data because they believe our lives are expendable and nothing compared to their own enrichment and whatever bullshit agenda they push.

Disease prevention is class solidarity. Cleaning air by removing pathogens via ventilation and filtration on top of preventing their entering airspace at all by wearing a mask is a gift to all we share space with. There is no safety net but the choices we make to reduce each others suffering.

again, this is why wearing a mask is one of the most compelling acts of daily resistance you can engage in. if you changed almost nothing else but start wearing a mask in public indoor spaces, you’re arguably doing more material mitigation to keep you & your community well than this administration.

With the current bird flu in cattle increasing rapidly, this is very bad thing to happen. No testing, due to funding cuts....

i think people are missing the forest for the trees with this one. RFK Jr wants complete centralized knowledge of every American's health in order to exact control on what medications are allowed and in order to fabricate "evidence" for each and all of his nonsense theories.

I’m still stuck on the part about smartwatches But also I want to know what IRB says this is okay

Everyone needs to internalize that when they say they want to "eliminate autism" what they mean is "eliminate autistic people and their families".

1. I study how science works as a collective endeavor to make sense of the physical world. I also study how misinformation about science spreads and affects society. There are fewer examples more poignant than a Minnesota bill that would criminalize mRNA vaccines as weapons of mass destruction.

If you are a visa holder/temp resident in the U.S., and your child was born here and doesn't have a passport, GET A PASSPORT FOR THEM IMMEDIATELY. Like, make the appointment this week. www.nytimes.com/2025/01/21/u...

Every major medical institution & Autism Organization: "RFK Jr. is a dangerously unfit. People literally die due to his ignorance, bad science, & Eugenic beliefs." RFK Jr. Supporters: "But ... why is it wrong to Eugenically eliminate Autistic ppl? RFK Jr. told me it's a great idea." #RemoveRFK

Pope Francis refusing to meet with Vance and then dying is an admirable and legendary level of shade

Nevra escaped domestic violence, recently underwent laparoscopic diagnostic surgery for endometriosis (which she was correct about having,) and is a mostly bedbound severe ME patient. She must raise funds to make rent to stay out of an abusive environment. Please consider a gift /boosting 🫶🏻

COVID killed more people in 4 years than AIDS did in 40. Let that sink in. Where are the celebrity supporters, the benefit concerts? Why is it taboo to talk about now? Trump and RFK have gutted the CDC of covid and AIDS research. Dark times ahead folks.

MOST people believe that. I work in healthcare. Most of you believe sickness is a personal failure or a judgment by God. You think it’s an individual problem. It’s why yall hate obese people for “cheating” with Ozempic. It’s why yall hate disability accommodations.

Staple this to RFK Jr’s forehead.

His student visa was suddenly revoked but he wasn’t notified—“they don’t want ICE to lose the advantage of surprise” (!!!)—and four days later he was arrested at the hospital where he works.

“Autism doesn’t destroy families. It’s the ableism that does,” said Tyla Grant, who was diagnosed with autism at 17. She called Mr. Kennedy’s comments “fear-mongering” and said his “rhetoric flattens our existence into this outdated stereotype.” Gift link (TY EPB): www.nytimes.com/2025/04/18/w...

To be clear, the White House is running a defamatory PR campaign to justify disappearing a guy without due process and sending him to a foreign slave prison.

there's also people claiming we trans people are "holding allies to a purity test" here and to be clear: "Don't participate in stuff that actively funds the campaign to exterminate us" is a pretty fucking low bar. One might say it's not even "allyship," it's just decency.

If you're non-disabled and are furious about recent ableist comments, one material thing you can do is ask disabled and chronically ill people in your life if they need help with anything. They may say no and respect that, but we live in an ableist society where asking for help is hard.

If you think you can't make a political issue out of "people shouldn't be grabbed off the street and put in a foreign gulag forever," maybe consider getting out of politics/punditry. And these aren't technical slogans: they appear in the Declaration of Independence and in the Constitution (twice).

Autism isn’t an epidemic. It's not a disease. It’s a natural variation in how people think…which, frankly, is a relief in a world where most people don't think at all.

For @motherjones.com, I wrote about how tariffs may soon hit medical devices and how it may affect disabled people on Medicaid. www.motherjones.com/politics/202...