I’m still stuck on the part about smartwatches
But also I want to know what IRB says this is okay
But also I want to know what IRB says this is okay
Reposted from
Alexander Tin
We're learning more about NIH's plans for Secy Kennedy's new autism studies
NIH Director Bhattacharya says they're amassing a swath of confidential medical data to link together for first time, ranging from broader access to CMS records to smartwatch data
www.cbsnews.com/news/rfk-jr-...
NIH Director Bhattacharya says they're amassing a swath of confidential medical data to link together for first time, ranging from broader access to CMS records to smartwatch data
www.cbsnews.com/news/rfk-jr-...
Comments
Not just this idiot, many still hop on the "autism is caused by vaccines" train even though it was debunked and Wakefield disgraced almost 20 yrs ago.
No idea why else you'd want to track autism.
But he's said no word on this.
https://www.levernews.com/the-governments-chemical-disaster-tracking-tool-just-went-dark/
"The NIH is also now in talks with the Centers for Medicare and Medicaid Services to broaden agreements governing access to their data,"
Remember when a lot of people were telling the people worried about privacy issues with EHRs to calm down....
Man, it feels bad to have been wrong about that.
A health care company that make gear, nit the other way around.
And in the EU so I feel confident they are treating my data correctly.
I think the worm is in control of the Kennedy.
What alarms me is accessing Pharmacy/ Medicare/ Medicaid/VA/ IHSData: to be used to determine future "mentally unstable threats"?! Excuse to " "institutionalize without due process...
But smartwatches. Oh boy. So! If your employer gave you a fitbit or other smartwatch? Congrats, they have health data on you they can look at!
The steps can be a fun goal thing even!
And unfortunately, with enough aggregate data, it starts to get easier and easier to identify folks.
Pity Trump terminated the Secretary's Advisory Committee on Human Research Protection. Or coincidence.
😵💫
As I have been saying,
My mere existence,is an act of extreme resistance.
It is horrifying, though not surprising, for this was always part of the agenda.
All in the autism community, are at risk of disappearing or dying, due to this regime and its enablers.
And I really hope that means computer programming and not forced pregnancy.
The current US brand of fascism values wealth above all, and evidence suggests plans are afoot to use the "others" to build/run a utopia for them. Essentially a two class state - the elites & the slaves.
Every reason for everyone to resist.
He is just a regular asshole whose Daddy made a fortune from blood emeralds.
His autism (or Asperger's) diagnosis is widely reported - I see enough to make me think it's possible, but his drug use confuses the issue.
He's a malignant narcissist sociopath.
MASSIVE DIFFERENCE, thank you very much.
fixed it
https://bsky.app/profile/niamhvh-l.bsky.social/post/3lmxm35jkps26
People receiving frequent medical interventions - autistic people, but autistic people with other serious medical issues - will be wildly overrepresented in the data.
The result will be a depiction of autistic people few would recognize, tailor made for hyperbolic conclusions and for casting both aspersions and blame.
2025 is a s**tty year so far.
Asking myself if I should stay to resist in America or be safe in Asia.
@caulimovirus.bsky.social , @jonathanstea.bsky.social , @gamermd.bsky.social ...
I did so much, gave so much, and sacrificed so much, for what.
🥺😔😭
I want to be positive but we don't know how long their power will last and they are building lists of people to eliminate.
So, they aim to use something masquerading as “normal NIH processes“, the sort of pretence-of-creditability game those running anti-vax "surveys" like, just abusing their new powers 😔
This is completely insane and unethical
They are going to create a central database of people with autism and follow them without their consent and presumably without any IRB approval and use identifiable data throughout the process
That’s completely insane
B. said all study pubs. should include raw data. How, if identifiable?
But what they are also proposing sounds like they plan to seize data *without* patient consent. It’s totally bonkers
https://www.the74million.org/article/head-of-new-rfk-jr-vaccine-study-practiced-unlicensed-medicine-on-autistic-kids/
If RFK Jr. finds out where I'm living, you think he'll try to kidnap-kill me for refusing to work as hus slave?
RFK should be in a straight jacket in a padded cell being fed Kool-Aid laced with measles, mumps, rubella, polio, and a few other diseases he thinks we shouldn’t vaccinate for.
These nazis are using cliff notes, right?
Whether they wish to pollute the registry with garbage is up to them, but it would be hilarious.
We allll have autism for this registry.
It’s a spectrum after all
Let MAGA sign their kids up since they're in favor of it.
Like they say, ya gotta laugh to keep from crying.
:-)
perfection
If by "good" you mean "deadly", that is...
https://spokesman-recorder.com/2025/02/26/black-children-adderall-mental-health/
https://www.the-rampage.org/6219/opinions/vaccination-yellow-stars/
My state rep/WAGOP chair did this. A total piece of shit that Democrats here don't attack enough.
https://www.washingtonpost.com/nation/2022/01/25/rfk-kennedy-jr-anne-frank-anti-vax/
https://www.theguardian.com/us-news/2015/apr/13/robert-kennedy-apologises-for-holocaust-comparison-vaccines
https://www.pbs.org/newshour/politics/watchdog-calls-for-house-committee-to-uninvite-rfk-jr-after-his-comments-are-blasted-as-antisemitic
https://en.wikipedia.org/wiki/Aktion_T4
A larger part of me wishes to hear of his funeral in the near future.
The RFKjr quote, emphasis mine:
“I’m going to create these wellness farms where they can go to get off of illegal drugs, off of opiates, but also illegal drugs, other psychiatric drugs, IF THEY WANT TO”
So at least per him, voluntary. Not forced.
I don’t care who’s being quoted, he didn’t say *that* so the headline is a lie.
I mean we’ve had similar things for rehab/detox for years… just not government run.
The dude has brain worms. No.
Do I think people with autism or on psych meds will be sent to concentration camps? Also no.
Do I trust Futurism? Very much no. Most of their content is speculation and clickbait.
Many of them, now diagnosed w/autism, were, years ago mis-diagnosed w/Bipolar or Schizophrenia.
By the way: Google bought Fitbit, and you have until February 2, 2026 to delete your data.
you'll see 4chan/Elon types using "autist" now in a similar way, especially as an excuse for assholery.
Not defending Gates here btw, fuck that guy as well.
Instant flag for people who should be kept as far from authority and influence as possible, regardless of their sociopolitical alignment.
#vaccineswork
Go figure out how to get rid of insurance companies instead.
#autismjokes
I think this is a literal textbook example of a thing that is impossible.
https://www.nih.gov/health-information/nih-clinical-research-trials-you/personal-stories/researcher-story-national-database-autism-research-ndar
ppl should be given the option of informed consent for their medical records to be disclosed.
But also the money these companies can make with selling that data regardless? Probably worth the lawsuits at this point.
Despair is the enemy.
Hope and absurdity will keep us alive!
The Day The Nazi Died by Chumbawamba is catchy
This is some crap.. Big Brother's been here a long time...
I don't like this move of Mr. Kennedy's.
You’re going to track Americans with Autism? Republicans won’t let the government track Americans who own guns, but somehow autism is that much more critical??
I’d continue, but I don’t want to devolve into random cursing.
hmm
Sounds a bit like
BATSHITCRAZY
The whole thing is vile.
These jackasses think they can just bypass a federal law?
The f*ck they can!🤬
A lot of orgs protecting the privacy of people like me will take these assholes to court first!
I'd like to think RFKJr has no idea what he's getting into trying to link different databases together, not just on a process level, but a technical one.
Sometimes you can't get from A to 3.
Anyway *pays cash and demands destruction of my records*
ppl should be given the option of informed consent for their medical records to be disclosed.
(Mine is a minimal 5 yr old one...)