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flowerstheoracle.bsky.social
gloom harpist + cripple*goth ; she/they ; New Englander in the Midwest . I make weird songs with fx pedals on my harp. -> linktr.ee/flowerstheoracle . I’m a medical ultra-rare (<1 in 50k). NORD helps people like me, POTUS doesn’t. rarediseases.org
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Guaranteed the 5 people at this table are more of a danger to society than the majority of people with ASPD who are just trying to get through their damn day.

As the enby in my relationship, I’m obligated by international law today to get my gf a nice dinner, flowers, & a lil handmade gift, and then rub her shoulder while she relaxes in the bath, less I be tried at The Hague.

I refuse to herd goats 😤 (make my own Anki decks)

Phenomenology as an academic study is just a bunch of Autistic nerds trying to understand and explain social norms to Autistic nerds, but once you follow the trail to Wittgenstein’s language games, you end up back at unadulterated Autism.

Another poem I can’t record but want to share. It reminds me of people. Good Bones by Maggie Smith

It’s Bandcamp Friday, here’s the weirdo music I’ve made so far this year.

I really don't like where the "it's the ketamine, Elon" discourse takes us. I'm not defending Elon. I'm defending drugs. Not kidding.

wake up babe, new trans mice research just dropped

I'm a proud mother. Whether I'm walking my son to school or reading him a bedtime story, I do everything to make sure he grows up loved and cared for. And for the sponsor of the drag ban to say that my existence is a fetish is false & cruel. I'm glad we were able to defeat this hateful bill today.

Doubling down on this. I don’t think it’s a stretch to say that March is going to be a crucial month for preserving archives. Focus on vulnerable to loss sources— Meta esp but also LiveJournal (for more historic cultural narrative, it was huge in the 00s & has improperly handled their own archives).

Someday, Zooey is going to be recognized as one of the GOATs of our current political system. She’s a treasure to the community and her work is invaluable.

Really cool thing about having orphan diseases is not only does big pharma not want to fund research for us because we won’t turn over enough of a profit for them, but any treatments from similar, more common conditions that may help us gets blocked by our insurance because it’s “experimental”.

I remastered a bit to be more polished because tbfh this song is my favorite child and a culmination of bittersweet memories from the stretch of scenery between Whitefish to Missoula.

Okay. I was already having a fucking week, but I finally made myself watch Anora, and I can’t sit on this anymore: Baker stole the characters, setting, themes, and tone from a tiny sex worker-made production I was in in 2015, and which was shared with him in 2016 *to solicit his advice*.

I just stood up fully unassisted without bracing myself on anything! Still had to brace to stay upright, but I don’t think I’ve been able to get up without bracing since 2021 (inSCI via irreparable myelopathy C5-C6 with a congenital spinal deformity ~L3). Adapt & overcome & all the other SCI-isms. ♥️

Somehow this album turned 23 years old today. A true testament to the fact that recording quality does not hold you back, sloppiness of performance does not hold you back, and all that matters is the passion behind the songs… open.spotify.com/album/5a8YbV...

bro they're disguising my antithesis as something to which i'm irresistably drawn

A team of archivists has recreated the pre-Trump CDC website as a live, easy-to-navigate website that should be indexed by Google. The team is hosting it in Europe. Cool project that is sadly necessary: www.404media.co/archivists-r...

What does it mean if whenever I sleepwalk (most nights), I usually just end up doing rudimentary chores (albeit clumsily)? My neurosis won’t even let me get 6 hours of sleep without Tasks.

Rouge/DIY internet archivists— assume anything you’re putting on a cloud can be seen by persons unknown, assume anything you’re putting on hardware can be lost or stolen. Protect your hardware with encryption & store your files in multiple independent drives. Store the backup drives separately.

This past month I got too obsessed with the möbius strip of fate, so I made another lil EP of gloomy harp instrumentals about it.

Luteal phase should never be underestimated. Every month I spend 8 days just rapidly descending into SI fixation, snap out of it overnight, and then go about my business for the next 3 weeks like I didn’t just temporarily play mental health roulette & will be obligated to again.

this is a historic level of bad and we are only beginning to learn about what is happening. i hope journalists uncover the true story, because the whispers i’ve heard in dc make my skin crawl and stomach boil.

I continue to speak out against every bill that attempts to remove trans people from public life. And I will continue to do so for as long as I draw breath. I hope one day the government will leave my people alone.

I haven’t had any prominent muscle spasms in almost a week and I haven’t been woken up by pain in almost two weeks (however, my dogs woke the whole household up twice last night when they chose to howl with the sirens driving close by)

Sesame Street season 49, episode 29 “Oscar Uncanned” can be more accurately titled “The Gang Learns About the Consequences of Unhoused Encampment Raids”

We knew this was coming. We've been preparing for months. Call your reps. Don't give them rest. And you don't need to wait and hold your breath on a bill like this - take sensible precautions NOW. This article offers dozens of places to start.

"DIY Web Archiving": new free zine by @quinnanya.me @bitarchivist.net @akijas.bsky.social @ilya.webrecorder.net & me, based on the 11/2024 @sucho-org.bsky.social @webrecorder.net @ach.bsky.social workshop: zinebakery.com/homemade-zin... #DHmakes +

My girlfriend (regular nerd) plays D&D on Friday nights, while I (cool nerd) stay up until 3am watching CSI and neurotically editing my annotated data catalogue.

I forgot it’s rare disease day. Management of my rare diseases feels like my entire life sometimes. I’m tired, but not dead yet. 🌻