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talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
117 posts 850 followers 402 following
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Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team. Wish I could have been there. FU ME.

submitted 6 days ago • 0 comments

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

submitted 6 days ago • 0 comments

New ME/chronic illness podcast episode out now! Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.

submitted 12 days ago • 1 comment

Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad!

submitted 14 days ago • 1 comment

Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal

submitted 23 days ago • 0 comments

@talmandaniel.bsky.social you might be interested in sharing this in your ME community?

submitted 23 days ago • 1 comment

Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness. wellcomecollection.org/stories/livi... Image is from free AMMES February 2025 e-newsletter #MEcfs #PwME @talmandaniel.bsky.social

submitted 25 days ago • 0 comments

It's 12 years today since I did drag, at work. I'm kind of gutted that no photos exist but so pleased that I did it. Looking back it played a small part in my much needed faith deconstruction. It was such a surreal experience but so much fun, even if the high heels were two sizes too small. 😂👠

submitted 30 days ago • 0 comments

My latest article which is Part 2 On The Subject of Wintering This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. #MyalgicEncephalomyelitis www.thriftvip.co.uk/articles/on-...

submitted 31 days ago • 3 comments

I can’t wait for this cookbook! I’ve been talking with Rachel all along the way and I know the recipes are going to be so amazing. I just pre-ordered two copies so I can give one to my daughter. It would help Rachel if you pre-ordered a copy. www.healthrising.org/blog/2025/01...

submitted 32 days ago • 2 comments

For those of us living on the edges of society, #pwME & other marginalised conditions), I’m feeling slightly less alone and slightly less in a minority of the ‘Missing In Action’ from life, as sadly & as expected, the cases of Long Covid / M.E. rise. My article: www.thriftvip.co.uk/articles/on-...

submitted 45 days ago • 3 comments

Latest episode of Post-Exertional Mayonnaise podcast out now! @litsadremousis.bsky.social, @dovsz.bsky.social and I talk about living with ME in a world of change youtu.be/Sc9GRzktRws?...

submitted 35 days ago • 1 comment

Read a Facebook post today which mentioned ME and memory loss. It struck a chord with me as my memory has been terrible recently. If you have ME, has your memory become really poor over the years? I get head tremors so sometimes wonder if it's linked to them!

submitted 35 days ago • 9 comments

New episode of our ME and Chronic illness podcast, Post-Exertional Mayonnaise is out soon. We consider how change impacts us as people with ME. Out soon! Search for us on YouTube and your podcast provider. Also find us at pempod.com

submitted 36 days ago • 1 comment

Today’s cartoon - because I had some fun and now I’m in bed (still having some fun). #IYKYK #ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM #ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease #PostInfectiousIllness

submitted 41 days ago • 1 comment

I sometimes think that ME is as just as much about dealing with the mindf#@k that the condition and PEM places you in, as the physical symptoms. It feels like you can forget how bad it can get until it happens again. A fresh hell each time.

submitted 40 days ago • 9 comments

Thanks @talmandaniel.bsky.social for contributing to this in-depth article on parenting with #LongCovid #MECFS The only reason this injustice is happening is due to decades of systemic neglect. Australia is still far behind UK, US & even NZ! www.abc.net.au/news/2024-12...

submitted 65 days ago • 2 comments

ME peeps... If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?

submitted 78 days ago • 5 comments

Honoured to have been included in this article by Jeremy Jeffs on his photography project. wellcomecollection.org/stories/livi... #MyalgicE

submitted 95 days ago • 2 comments

Article in the @thesicktimes.bsky.social about the ME Association chairman’s article and the fallout thesicktimes.org/2024/11/22/a...

submitted 100 days ago • 0 comments

I can’t recommend the #ThereForME’s weekly substack posts highly enough.Informative, upbeat and honest. These 3 women have done more for #ME in 4months than I would have thought possible. A truly democratic setup too. Do sign on for free. #ME #LongCovid 👇

submitted 104 days ago • 1 comment