traceydepellegrin.bsky.social
exec director @genetics-gsa.bsky.social | exec editor GENETICS & G3 | mama | hack photographer | fighting misinformation | corvids, aviation, water | views=myne | (aspire to) survive Her2+ breast cancer
28 posts
149 followers
185 following
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thank you jeremy! wonderful, clear piece. have you sent this post to our senators & reps, UPMC/AHN, etc.?
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evergreen post, piali
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call your reps and senators. remind them these cuts to NIH will prevent tomorrow's cures and treatments. tell your story to friends, neighbors, colleagues, patient groups. advocate for the pivotal role of NIH in improving human health and disease and the importance of sustained funding. /fin
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thanks @joshtpm.bsky.social your herculean efforts to raise awareness.
316,000 women in the US will be diagnosed with breast cancer this year. if you have breast cancer or love someone who does, 3/n
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between academic scientists and industry. before Herceptin was approved by the FDA in 1998, 60% of women with this type of cancer died within 3 years. now, the 5-year survival rate is in the 90th percentile. we have a fighting chance to live. 2/n
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without NIH, i would not be here. i have an aggressive form of early-stage breast cancer (Her2+/ER-) and am taking chemo + a monoclonal antibody (Herceptin) that was developed based on years of discoveries from NIH (NCI)-funded scientists, in a great example of a public-private partnership 1/n
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i haven't made it to this last episode yet. between your fondness for squirrels (squirrel hill!), the pitt (because here), and the steelers, if you travel this way anytime, let's connect!
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gorgeous images! enjoy the conference!
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oooh, i want one of these! i love flies for endless reasons -largely because of your wonderful community & relationship with GSA. plus flies + electron microsopy = gorgeous images! finally, i'm an official graduate of the unofficial jasper rine school of SF Bay sailing ⛵ #dros25
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FASEB has federal funding data info also
www.faseb.org/science-poli...
and finally, a few tips for advocacy (lots of orgs publish these)
www.coalitionforlifesciences.org/communicatin...
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4) explain public-private partnerships - a lot of folks (including Dems) don't understand much about how this works 5) use resources that show the impact of NIH research by state www.coalitionforlifesciences.org/learn/state-... or www.nih.gov/about-nih/wh...
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what may resonate 1) economic impact not just to the lab or university but to the region - jobs, ripple-effects that layoffs would have 2) any US competitive advantage 3) if research can be linked to therapeutics, treatments, improved health
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agree. key is in-person visits by folks who are both prepared for the visit and trained in advocacy. i just heard a story of someone who "took the bait" on a visit to their congressperson and the visit did not end well (e.g. shouting). this can 100% backfire.
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me with the fearless @jeremymberg.bsky.social
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Thanks for this post. Besides an us v. them vibe, the editorial smacks of the worst kind of elitism. Ironically, part of the reason why the author can claim that these jobs are superfluous is that a good admin makes the magic happen without burdening faculty.
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happy to be on here (and to "see" you & your amazing work again). 💜
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Thank you for this thorough, compelling, and candid reporting. A devastating read but too important not to be told. Looking forward to your next story.
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nice work. would love a copy of your slides.
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Congratulations!
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so happy to be here. and yes, GSA has recently joined and i think will be active!
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very happy to be here!
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💜 ty!
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we had a zoom w/our PO ~2 weeks ago. it felt like he was in a hostage video. he didn't say anything without our asking, and to each our of questions, his response was that we knew as much as he did which, fair point, was probably true.