Everyone believes they’ll be the exception (this literally can’t be true).
They think chronic illness & disability won’t ever happen to them - or IF it does - they will succeed in getting help where others have “failed.”
These beliefs are at the core of why the blame us when we don’t get better 🧵
They think chronic illness & disability won’t ever happen to them - or IF it does - they will succeed in getting help where others have “failed.”
These beliefs are at the core of why the blame us when we don’t get better 🧵
Comments
I just didn't expect it to happen at 26, or to almost kill me at 28...
5 kids. All very different.
As a nurse mom, I've had no choice but to research, more than some providers, about certain things.
But I am "just a mom". It is beyond frustrating. Even more so for those living it.
I went to a pain specialist. All she did was insult my genitals. Fr
10 yrs later I go to another. He tells me nothing.
Sends my MD a recommendation to try something worse than stupid. Benzocaine lotion.
turns on my Neuropathy all the way
Mofo you are the MD & don't know that
You pay, but are required to do the interpretative Dance :back no longer hurty. You choose.
Be a Tree. Be a Back that doesn't hurt.
Cmon really Be that Tree. Sway. Work it.
Think of our audience. You tree. You got an Axe you.
Everyone else, that's a wrap.
Sounds like they had the concept of a class
Sorry... but I hear those all the time... Useless platitudes drive me nuts.
#AorticDissection
“Well, if you don’t want help…”
I want HELP, not things which will make me worse. Does that make me evil?
These questions are deeply hurtful - because they tell us you think we can will ourselves better if we want it bad enough. /2
"No, I have a tib/fib fracture in my lower left leg, but I'll go home and try that instead. Thanks."
Our lives are hard enough without having to constantly defend our choices and life circumstances to people who treat us with disdain. Who seem to loathe our very existence because it makes THEM uncomfortable /3
It doesn’t make it any less true. Learning to accept that you’ve lost your health and your life is forever changed is a difficult thing to do.
Your doubt makes it harder /4
You might be surprised by the answer. Often people think there’s nothing they can do to “fix” it - so they don’t even try. They run from us. /5
I’m over the moon if someone offers to change my sheets, bring a homemade meal or accompany me to a doctors appointment.
Just BE there for us - and when it’s your turn - we will be there for you /end
Wishing you well 👍