dimapodolsky.bsky.social
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This study found that people infected with COVID were about 5 times as likely to develop ME/CFS, one form of long COVID, compared to those who were not infected.
Also found prevalence of about 4.5% of people infected had ME/CFS, and 39.8% were "ME/CFS-like" (1+ symptom of ME/CFS criteria).
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The link isn't working for me. Hopefully this works:
www.wildanimalinitiative.org/blog/2024-re...
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Thanks!
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Is there a list of all these abstracts from CROI somewhere?
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And from the perspective of each person, it should not have taken me ten years to figure out what I have is ME/CFS, being pushed to try random meds, therapy, and exercise all the while. Maybe if people were talking about an "ME/CFS Day" long ago, my doctor or I would have figured it out sooner.
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Every person that knows and wants treatments is a vote, in a way. Maybe some people's "vote" matters more for ultimately getting results, but it's still valuable to have as many people as possible aware of the situation to try to push it forward faster.
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A doctor can know to not tell a patient to just exercise, or know to not just prescribe an antidepressant, and know to recommend pacing. And the doctor can join everyone else in demanding research.
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Part of the goal, according to some of the speakers, is just making people aware it exists, how many people it affects, and how devastating it is, because a recurring theme in the testimonies was how few people, including friends and doctors, even know what ME/CFS is, let alone what to do about it.
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Thanks for taking the time to respond to my questions jaime
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I've just never heard blood oxygen levels referred to as VO2 since they're completely different metrics, so I'm guessing a mistake, since I would think VO2 would be the stronger finding to focus on. But yeah, it'll be interesting to see what future studies show about SpO2 as well.
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Right but the video said "blood oxygen". I would assume that's talking about SpO2, not VO2.
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(I assume the other studies I mentioned tested SpO2 and put it in supplementary files, otherwise I'm not sure what the MEpedia calculated figures are based on. And AFAICT the figures in the table are not compared to controls anyway.)
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As far as I can tell only two studies have shown SpO2 decreases more in MECFS than controls, and at least four studies that apparently had that data but didnt report it, which makes me think the difference wasn't replicated in those studies.
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Ah I see Vermeulen 2010 showed this difference, but several of the papers with a "calculated" SpO2 in the mepedia table dont actually report anything in the text about it (e.g. Hodges, Davenport, Nelson, van Campen) so hard to say if it was different from controls. 1/
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Also, has blood oxygen been tested before Keller 2024 in a 2 day CPET? Glancing at other studies, I don't see it mentioned.
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* both are in figure 3.
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Could maybe have been worded better if it was about measuring those metrics during another bout of exercise.
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Oh I took it to mean if you do some exercise, then at rest afterwards your O2 and HR will be lower than before. Looking at the recent Keller et al for example, I don't see talk about those metrics changing at rest on day 2. They look to have barely changed at rest in figs 2,3. 1/
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Do you know what this part was based on: "People with ME/CFS see their blood oxygen levels and heart rate drop significantly after exercise."
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FYI, ME/CFS isn't new at all. It can start after COVID but it can start after lots of other things too.
"Several descriptions of illness resembling ME/CFS have been reported for at least 200 years."
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The authors responded to this critique.
www.nature.com/articles/s41...
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Awesome, thanks.
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Also, is that chart from a published paper? I'd love to check it out.
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Do you know if antibody levels staying pretty much constant for at least a year is typical of other viruses too?
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Ah ok, very interesting.
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Are these SARS-CoV-2 specific antibodies? If it's just total antibodies, it seems hard to say whether or not these are just normal levels without any earlier data.
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What do you think of figure 3C? Antibody levels were basically the same no matter how long ago they were exposed except in one of the non-infected groups. Suggestive of persistent antigen or are there better explanations?
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Okay, thanks!
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Is the data not available yet? I don't see any search results for that identifier.