mildtin.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

"[STIMULATE-ICP] has completed successfully, with results expected towards late April or early May." STIMULATE-ICP trialled rivaroxaban, colchicine, and famotidine/loratadine www.theguardian.com/society/2025...

submitted 10 hours ago • 1 comment

Getting an appreciation for why biology is so hard from this graph of antibodies against ATR1, spanning nearly 6 orders of magnitude in LC patients and 4 orders of magnitude in HC, all kinds of values are normal apparently

submitted 2 days ago • 0 comments

Honored to be part of the congressional briefing on #LongCovid that @immunologyaai.bsky.social is hosting this Wednesday with @virusesimmunity.bsky.social & @ejohnwherry.bsky.social! If you can, please call your congresspeople and ask their staffers to attend! www.aai.org/Public-Affai...

submitted 6 days ago • 1 comment

women hate women and men hate women -> people hate women dems hate dems and republicans hate dems -> people hate dems is there something here

submitted 6 days ago • 0 comments

🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it. We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️

submitted 9 days ago • 2 comments

White Beak Sedge, Rhynchospora alba, on a nearby heath last summer. Day 20/365 #DorsetFlora

submitted 10 days ago • 3 comments

Grateful to continue to be able to do great work with the amazing team at @YaleMed, led by @VirusesImmunity and @hmkyale. Today one of our preprints dropped on what is a fraught and divisive topic: vaccine injury or post-vaccine syndrome (PVS). Before medrxiv.org/content/10.110… 1/

submitted 10 days ago • 8 comments

Appreciation post for @bhanlon15.bsky.social!!! 👏👏👏 An incredible #ME #LongCovid #NEISVoid advocate who keeps the community informed, boosts, & supports so many!!! Thank you for all you do!!! 🙌

submitted 11 days ago • 4 comments

Lumia’s new Live Mode feature can power new dimensions of self discovery! ✨ Learn what raises or drops the blood flow to your head, to better self-manage #chronicillness like #pots #dysautonomia #syncope #longcovid #dysautonomia #orthostaticintolerance #peripheralneuropathy #pwme #sjogrens

submitted 12 days ago • 1 comment

Researchers from Wuhan University and Columbia University find that SA55, a monoclonal antibody, strongly neutralizes SARS-CoV-2, including JN.1 subvariants. Unlike pemivibart, SA55 resists viral escape, likely due to its stronger binding. www.biorxiv.org/content/10.1...

submitted 15 days ago • 1 comment

My whole future depends on medical research continuing, but I want to comment on our side's inability to imagine motivations other than ours as anything other than evil - this failure of imagination and empathy, amongst other things, severely limits our ability to understand, predict, strategize

submitted 15 days ago • 1 comment

I was diagnosed with Dysautonomia/POTS via a tilt table test w/ my cardiologist, but I had never done a “5 Minute Stand Test” at home. 5 minutes laying, then 5 minutes standing, then 5 minutes laying. Proof is in the pudding, as they say. Textbook POTS right here. #dysautonomia #pots #wearlumia

submitted 18 days ago • 2 comments

A new review paper from Polybio on Targeting the SARS-CoV-2 reservoir in long COVID www.thelancet.com/journals/lan...

submitted 19 days ago • 1 comment

I don’t think people could fathom living how people with my disease live. I haven’t seen the sky in 3 months. I only see it when I get wheeled out for appointments on a stretcher which is every 3-4 months. I have eaten the same 6 foods for almost 3 yrs now. EVERYTHING I do is in bed. This is MECFS.

submitted 21 days ago • 10 comments

I’ve said it before, but one of the most difficult things about #MECFS is that it can be impossible to predict how much recovery time you will need after you exert yourself. Recovery and return to baseline is so rarely consistent…

submitted 25 days ago • 5 comments

Really chuffed to be a co-author on this paper (pre-print) via Visible & Imperial College 💙 Odds of a crash 45% lower during late luteal phase compared to peak during menstrual phase www.medrxiv.org/content/10.1... #MECFS #LongCovid

submitted 27 days ago • 0 comments

Absolutely fantastic news as sickle cell gene therapy is to be rolled out for sickle cell academia with a one off treatment curing 97% of patients 🧪

submitted 30 days ago • 28 comments

To advocates & policymakers in the #IACC space: Please check out this new report on data-driven insights and the case for much more attention on & funding for IACCs such as #MECFS & #LongCovid. Please share widely! So thankful to @mildtin.bsky.social for leading this incredible report 💙

submitted 32 days ago • 0 comments

Very excited to say that @crunchme.bsky.social's first report is out and about 🙌 The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions Our goal here is to bring together the key info needed to make the case for taking action now! drive.google.com/file/d/17fgU...

submitted 34 days ago • 3 comments

It’s Krish-mas Eve! Krishnan Guru-Murthy, journalist, broadcaster, presenter, and former #Strictly star, is #ThereForME! @krishgm.bsky.social's message: “Happy Christmas! Keep fighting! Lots of love Krishnan Guru-Murthy” @channel4news.bsky.social #PatientSafety #pwME #pwLC #ThereForME

submitted 68 days ago • 5 comments

Q for those MECFS with POTS/OI. I use salt tablets to increase blood vol. I’ve found if I take a salt tab with glass of water when I get up for toilet at 1-3am, then I sleep better 2nd half of night & feel less awful in morning. Anyone with similar/different experiences?

submitted 79 days ago • 4 comments

The NIH has announced $147 million in additional funding for RECOVER, and shared new details about how the new allocations this year ($662mil in total) will be spent: - $300mil to clinical trials - $18 mil to pathobiology - other funds to observational studies and maintaining research infrastructure

submitted 79 days ago • 1 comment

New paper in Science showing that a nutrient metabolism switch causes epigenetic changes in exhausted T cells Metabolic rewiring & T cell exhaustion have been seen in Long Covid and ME/CFS… would be great to see more research on immunometabolism in these contests! www.science.org/doi/10.1126/...

submitted 79 days ago • 1 comment

The world is awful. The world is much better. The world can be much better. All three statements are true at the same time. Understanding this is key to solving big global problems. We believe data & research can help us understand both the problems we face & the progress that’s possible. 🧵

submitted 82 days ago • 12 comments

It was only a few years ago that republicans were talking about death panels, please, understand that arguing a CEO is a mass murderer is one tiny step from arguing that the secretary of HHS is one too

submitted 84 days ago • 0 comments

Hitting some moderate -> severe ME milestones lately -- 3 months since I been outside, parents taking care of me, mum cut my hair at home

submitted 84 days ago • 1 comment

Dr. David Putrino of CoRE is seeking patients with a confirmed diagnosis of #longcovid for a 6-month trial of antivirals. You may be eligible if you: -Are 18 years or older -Have a confirmed diagnosis of Long COVID from a physician -Are HIV negative -Can commute to the CoRE office (1/3)

submitted 85 days ago • 3 comments

🚨ANNOUNCEMENT🚨 We are assisting Jo Platt MP setting up a UK #LongCovid APPG & need your help!! ⭐️Please contact your MP now & ask them to get involved. They have an official invite but let’s get our voices heard!⭐️ See link in comments below for suggested content for your email. ⬇️⬇️⬇️ #WeWillBeHeard

submitted 89 days ago • 7 comments

It’s Rory Stewart! @rory-stewart.bsky.social is one half of @restispolitics.bsky.social podcast, which covered Long Covid earlier this year. His message: “My Christmas wish for people with Long Covid is that you are able to feel welcome, accepted and cherished over the holiday season.” #ThereForME