rachel-p.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Proud to have been at the launch of CORE: a new approach to inclusive communication, in partnership with Weber Shandwick today. @rachel-p.bsky.social @sarahtilsed.bsky.social CORE aims to bridge the gap for disadvantaged populations who often struggle to navigate health information and services.

submitted 4 days ago • 1 comment

This deeply moving article is written by @madisonmarriage.bsky.social, the daughter of one of our focus group participants. In it, she tells the heartbreaking story of her brother, Charlie, who tragically passed away after being unable to access the emergency medication he needed. buff.ly/4be5Nv2

submitted 7 days ago • 1 comment

Curie, a patient and member of the Patients Association, was asked about her recent experience of NHS services by the UK Government TikTok channel! We're proud to see patient voices being heard 🩵

submitted 6 days ago • 0 comments

In the run-up to #HelplinesAwarenessDay2025 we're sharing some of the frequently asked questions our helpline team receive. ☎️ If you have a question about your healthcare, call our free helpline on 0800 345 7115 or email [email protected].

submitted 16 days ago • 1 comment

Over 25 million people in England live with a long-term health condition (LTC) . Our new long read explores how technology-enabled support can bridge the gaps in our current healthcare system. @rachel-p.bsky.social @alfcollins.bsky.social @taradonnelly.bsky.social https://buff.ly/4b81Rfq

submitted 16 days ago • 0 comments

Looking forward to being a part of this roundtable with the Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25

submitted 17 days ago • 1 comment

💡 Are you a patient struggling with appointments, financial concerns, or knowing your rights? Our new resources cover what support may be available to you and how you can ask for what you need: https://buff.ly/412CDM4

submitted 28 days ago • 0 comments

Did you miss the live webinar with @drrageshri.bsky.social and our CEO @rachel-p.bsky.social on the importance of listening to patients and its place in the future of healthcare? You can now watch it on demand: https://buff.ly/40NusSj

submitted 29 days ago • 0 comments

Our recent report highlights practical steps to improve cancer care for underserved communities, including locate more screening, diagnostic, and treatment services in deprived neighbourhoods #WorldCancerDay www.patients-association.org.uk/blog/improvi...

submitted 32 days ago • 0 comments

Want to know how to get a second opinion or what you should consider? Check out our article which explains the new rules and your rights to request a second opinion about your NHS healthcare. www.healthwatch.co.uk/advice-and-i... #MarthasRule #SecondOpinion #NHS

submitted 33 days ago • 0 comments

A relatively short piece of guidance, a huge work programme ahead for the health and care system to put the Neighbourhood into the NHS (the Neighbourhood Health Service, that is). @nigel-edwards.bsky.social & I assess the scale of the challenge for @pplthinks.bsky.social ppl.org.uk/neighbourhoo...

submitted 33 days ago • 1 comment

[email protected] launched resources to help patients make most of healthcare appointments.Our animation&guide takes you through 👨🏽‍⚕️ how to prepare before 🏥 what to do during appointment 💉 steps to take after to ensure you get the best care www.patients-association.org.uk/getting-the-...

submitted 36 days ago • 0 comments

🆕 Would you like to make the most of your upcoming healthcare appointment? Our latest guide walks you through: ✔️ how to prepare before your visit ✔️ what to do during your appointment ✔️ steps to take afterward to ensure you get the best care www.patients-association.org.uk/getting-the-...

submitted 36 days ago • 1 comment

Harming children with major delays for treatment. www.theguardian.com/society/2025... #RightToRehab

submitted 36 days ago • 0 comments

📣 New publication: Designing inclusive & trusted digital health services with people Why: -Darzi report:dire state of NHS partly due to not listening to patients -people excluded from digital health because of poor design -greater opportunity to better know patients & improve services with digital

submitted 37 days ago • 1 comment

NHS constitution makes clear that patients have a right to complain & obliges the service to learn from them. But there is little evidence complaints are being systematically used to improve care. NHS does not consistently welcome, handle, respond or learn from complaints in a patient-centred manner

submitted 40 days ago • 0 comments

An effective complaints system should be an essential part of improving health services and restoring public satisfaction with the NHS. We need a change in the NHS complaints system. Read our recommendations www.healthwatch.co.uk/news/2025-01...

submitted 40 days ago • 0 comments

Has the Times sacked its Media Correspondent? Scrolling through its news list and it’s missed a huge story involving the monarchy, journalist ethics and a billion pound cover up at a hugely powerful media organisation. Surely more important than whether dogs suffer from January blues?

submitted 44 days ago • 32 comments

☎️ Our free helpline provides specialist information and guidance across all four UK nations to help you make sense of the world of health and social care. Call 0800 345 7115 or email [email protected] to speak to one of our friendly team! https://buff.ly/4gID1UW

submitted 46 days ago • 0 comments

We're excited to be part of this group as it aligns with our commitment to true patient partnership! Find out more from @thekingsfund.bsky.social 👇https://www.kingsfund.org.uk/insight-and-analysis/projects/do-with

submitted 47 days ago • 0 comments

Six key steps in tackling ethnic inequalities in genomics and precision medicine - NHS Race and Health Observatory:

submitted 48 days ago • 0 comments

“she highlighted a failure to listen to patients” Not listening to patients is a huge safety issue. Why does it happen and why is it so widespread? This what I explore in my book #Unheard and try to give solutions at multiple levels. www.bbc.com/news/article...

submitted 50 days ago • 0 comments

To give the NHS a chance of planning to meet any targets from April, govt should get on with publishing what they actually are, £ allocations, & payment rules.... ...all now nearly a month later than normal; & 3 months after what would actually be useful www.ft.com/content/ab35...

submitted 50 days ago • 1 comment

Patients should be able to expect timely, dignified treatment in appropriate settings. The @rcn.org.uk's report into corridor care lays out the shocking reality, as told by nurses across the UK. www.theguardian.com/society/2025...

submitted 51 days ago • 0 comments

This harrowing report paints a grim picture of the NHS stretched beyond breaking point with patients and staff bearing the brunt. Accounts of patients miscarrying, suffering cardiac arrests or their final moments in undignified conditions should shock everyone into action. We can’t wait any longer

submitted 51 days ago • 0 comments

✨LIVE WEBINAR✨ A real honour to discuss themes from #Unheard with the Chair of the @patientsassoc.bsky.social, @rachel-p.bsky.social next Thursday 23rd January at 7pm. You can sign up via this link 👇🏽 www.patients-association.org.uk/event/import...

submitted 52 days ago • 2 comments

🚨 Patients deserve safe, dignified care—not treatment in corridors. We're proud to join @rcn.org.uk and others in urging the UK Government to commit to transparency and action on this unacceptable practice #CorridorCare #NHS #PatientSafety

submitted 54 days ago • 0 comments

Thousands navigate cross-border GP and hospital care each year. If you’ve accessed healthcare across the England-Wales border, your feedback can help make improvements. Take our survey today:

submitted 56 days ago • 0 comments

"Streeting can still speed up the social care review. Why on earth isn’t Casey reporting back this summer, with final recommendations ready in a year?" The Sunday Times editorial today: www.thetimes.com/comment/the-...

submitted 55 days ago • 4 comments

New article from @patientsassoc.bsky.social: As #NHS leaders navigate mounting pressures, from staff shortages to service demands, tackling health inequities must be at forefront of any strategy to improve patient outcomes. Without bold action, gaps in health outcomes will widen.

submitted 58 days ago • 0 comments

Upcoming @patientsassoc.bsky.social event featured on the hub today: ▶️The importance of listening in medical care - a fireside chat with @drrageshri.bsky.social 🗓️Thursday 23rd January 2025 ⏰Begins at 7pm More details below⬇️ www.pslhub.org/events/event...

submitted 58 days ago • 0 comments

We’re excited to be event supporters of @thekingsfund.bsky.social's two-day virtual event Health and care explained! Join us to hear expert perspectives on productivity, inequalities, and workforce challenges 👉 www.patients-association.org.uk/Event/health...

submitted 60 days ago • 0 comments

Time is running out to vote for us in Slater and Gordon's #Charity of the Year programme! Voting is open until tomorrow, and your vote will help us secure funding to further improve #healthcare experiences. Thank you! buff.ly/401I11k

submitted 60 days ago • 0 comments

Great to be at the announcement of the Government's elective reform plan earlier today. @sarahtilsed.bsky.social, our Head of Partnerships and Involvement, was joined by Curie, a patient representative.

submitted 61 days ago • 1 comment

This morning, along with a wonderful patient involved in the @patientsassoc.bsky.social work, I met the Prime Minister who spoke about the Elective Reform Plan, published today. This includes greater patient choice over follow-up care & reducing #NHS waiting times before the end of Parliament.

submitted 61 days ago • 0 comments

⌛ Time is running out to vote for us in Slater and Gordon's Charity of the Year programme! Voting is open until 8th January, and your vote will help us secure funding to further improve healthcare experiences. Thank you! https://buff.ly/401I11k

submitted 64 days ago • 0 comments

I’m excited for this online conversation with @rachel-p.bsky.social! Thank you @patientsassoc.bsky.social for the invite. Sign up below ⬇️ #Unheard

submitted 77 days ago • 0 comments

I am so excited for this webinar - do sign up to the link below to hear more [email protected] as we discuss truly listening to patients

submitted 78 days ago • 0 comments

I am so excited for this webinar - do sign up to the link below to hear more [email protected] as we discuss truly listening to patients

submitted 78 days ago • 0 comments

Great session yesterday with Health Innovation on tackling #HealthInequalities through innovation. Lots of discussion about the importance of partnerships! #NHS #Community @patientsassoc.bsky.social

submitted 78 days ago • 0 comments

The Patients Association is a finalist for the Slater and Gordon Charity of the Year Award and we need your vote to win! Winning this award will help us make an even bigger impact for patients. Cast your vote here: www.slatergordon.co.uk/charity-of-t... #COTY24

submitted 78 days ago • 0 comments

🧵📢 Today at the Health and Social Care Committee, @rthonwesstreeting.bsky.social highlighted key issues like diagnostics, funding, and community engagement that feature in our recent report on improving health equity for cancer and blood disorder patients

submitted 80 days ago • 1 comment

I’m delighted that we are in the final shortlist for this and would really appreciate your vote so we can continue our work to make an even greater impact for patients

submitted 80 days ago • 1 comment

Heartening to hear @meropemills.bsky.social talk about the positive impact of Martha’s Rule in trial trusts. Thanks for all your amazing work in Martha’s name Merope. #patientsafety

submitted 81 days ago • 0 comments

Patients have been moved to intensive care or received potentially life-saving treatment such as oxygen as a direct result of hospitals adopting Martha’s rule, NHS data shows.

submitted 81 days ago • 0 comments

“The success of these early numbers shows exactly why Martha’s rule needs to be rolled out across the entire NHS – because when we listen to patients and families and act on their concerns, lives can be saved.” @rachel-p.bsky.social www.theguardian.com/society/2024...

submitted 81 days ago • 0 comments