You know, the thing they said they weren't gonna do after all. Is happening. And is pretty much a HIPAA nightmare and a Nazi first step. - ThreadSky

effies.bsky.social • 2 days ago

You know, the thing they said they weren't gonna do after all. Is happening. And is pretty much a HIPAA nightmare and a Nazi first step.

Reposted from NPR

The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans with autism, using insurance claims, medical records and smartwatch data.

Comments

pollik.bsky.social•1 day ago

It won't be the last Nazi step.

Seriously, we are living Germany 90 years ago.

genderqueeries.ca•2 days ago

When this is all over, one thing that is necessary is a militant, uncompromising movement to replace HIPAA with something that actually protects privacy.

gerzel.bsky.social•2 days ago

Smart watch data?

cripwriter.bsky.social•2 days ago

i assume they're referring to emergency info users can input, which can include relevant medical conditions. autistic people often struggle with communication in a crisis.

coexistential.bsky.social•2 days ago

We're well beyond "first step".

mariahaskins.com•2 days ago

What a freaking nightmare. I'm so sorry you have to deal with this bs.

effies.bsky.social•2 days ago

I mean, I don't personally yet, but I'm deeply horrified. Plus this is usually a first step in "databases of undesirables" and I'm sure I'll wind up in a subsequent one.

mariahaskins.com•2 days ago

If RFKJ gets to run the show it will def only get worse. What a cartoonishly terrible person.

effies.bsky.social•2 days ago

Right? Nobody would believe you if you wrote a villain like him, it would be "too over the top"

effies.bsky.social•2 days ago

My grandmother was a Holocaust survivor (she was hidden in Poland, the rest of her family were not so lucky) so I'm particularly prickly about databases of "undesirables".

mariahaskins.com•2 days ago

It's such a terrible precedent for everything. Can we just punt this horrid man into the sun?

catlance.bsky.social•2 days ago

Wait, and smartwatch data???

lubottom.bsky.social•7 hours ago

I cannot think of a single non-terrifying reason anyone would need this data. I’m guessing RFK doesn’t feel the same about Long Covid in unvaccinated patients

shampoochan13.bsky.social•2 days ago

I didn’t hold my breath. They just waited until people took the win and moved on.

craigshackleton.com•2 days ago

This fucking sucks.

horriblehorse.bsky.social•1 day ago

This shit is eugenics, 100%

thegoonkills.bsky.social•1 day ago

The wrong Kennedy got shot

snepliz.bsky.social•1 day ago

For real. There's a car seat out there with more Kennedy brains in it than this guy.

prairiegirl.bsky.social•2 days ago

Oh for fuck's sake. Nothing is sacred. Going forward no one will get themselves or their kids diagnosed.

handtotheneedle.bsky.social•2 days ago

Great, great - so basically techbro Mengele but without even being a doctor, if a sadistic and shitty doctor

effies.bsky.social•2 days ago

UPDATE: It is a privacy nightmare, not a HIPAA nightmare, because apparently HIPAA lets the government do this.

stinapag.bsky.social•2 days ago

Yep. https://bsky.app/profile/stinapag.bsky.social/post/3lnh3h7gb222d

allbreadedup.bsky.social•1 day ago

Wasn't HIPAA's original intent to make it harder for people to find out which old men were taking the little blue pills?

effies.bsky.social•2 days ago

Gonna mute this now, too many notifications

monarchlou.bsky.social•2 days ago

He legit said that he was going to send every autistic person, adult or child to what he calls a "wellness farm"- so forced labor/concentration camps.

monarchlou.bsky.social•2 days ago

https://www.yahoo.com/news/fact-check-yes-rfk-jr-030000179.html

joekanoaus.bsky.social•1 day ago

...and smartwatch data. Huh. Well Samsung and Apple here's your chance to step up and get some hero status guys. You should be on the front lines fighting this.