A friend drove two hours today for her breast cancer chemotherapy only to learn it was canceled due to NIH cuts. Clinical trial ended midstream. No treatment, no restart, no plan, no information. Her bro-in-law's chemo was also canceled.
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All I can do from Germany is send prayers for your friend, could she eventually start a fundraiser to get the money together for her chemo treatment??? I couldn´t donate from #SocialSecurity, but maybe others could.
Oh noooooo, I´m really sorry for your friend.
Here in Germany the mandatory health insurances pay for chemo if you have cancer, and also for the most necessary (prescribed) medications, medical treatments or things like walkers, wheelchairs or crutches. I need/have a walker myself, as disabled.
As a cancer researcher and clinician I would very much like to see that happening. We can’t do it alone anymore. This will only get worse. So many folks already looking for jobs abroad. Want to be treated here now, in the future or at all? Engage.
I have a survivor in my family who is a Republican. I encouraged them to ask their doctors at a prestigious university cancer center how they have been affected by the cuts. I wonder if their doctors will even still be employed there in a year.
Hopefully making it personal will get through to them.
She has no idea what Jesus would think or feel about anything. Like most American GOP "Christians" it's all for show. Church is a place to gather, gossip abt neighbors, share hatred & bigotry & pretend to ask for forgiveness for the sins they continuously commit.
Except that cuts like this will NEVER affect them. Their millions and billions can buy them the best care in the world. Why would they stand in line for a study?
I’m participating in a study right now & I won’t be shocked if it suddenly ends. Fortunately it’s not for cancer.
Well it will affect them if they got sick but the cure they might have had never got completed. So much waste & death they are causing for nothing but the cruelty of it.
May I explain….NIH treats patients where normal/accepted therapies fail; NIH then utilizes cutting edge therapies and off-label treatments. What NIH does is to be the Last Chance….thus any cancellation of treatments at NIH are the ‘Hail
Mary’ or the last chance.
I worked @ NIH from 2004 to 2017.
I don't know that there is a hell -- as an atheist, it's not my thing. But this makes me hope there is one, and that those responsible for this level of barbaric cruelty end up in the absolute worst rings of it and suffer an eternity of their worst nightmare. I'm so sorry for your friend & her BIL
This is a completely incorrect understanding of karma. Dwelling or not dwelling on one’s actions has no impact on the positivity or negativity of the action itself. Of course, eventually in this lifetime and then likely in another, and another, and more, they will reap what they are sowing.
The DMT dump the brain floods us with before death is sometimes assumed to be why people can "see the afterlife" and also see their "life flash before their eyes".
They’re not pro-life they’re not Christian then they were never any of those things. Everything they do and say is a lie absolutely everything. When they pray to God, it’s a lie. They don’t even know what the truth is anymore.
I can't even imagine, and I have cancer. Having and treating cancer exacts a tremendous toll on its own without crap like cancelling trials to add to the misery. And of course, cancelling the trial helps cancer win and could cost your friend her life.
SO sorry. I have cancer and this is exactly what terrifies me. The cruelty is unspeakable. Hoping for her and ALL of us that Kennedy's NIH list of topic restrictions and funding does a 180 FAST.
I’m in the middle of treatment but not in a trial. So I’m lucky. I can imagine how devastating it would be for them. My hope and heart goes to them both.
This administration doesn’t give a damn about us average Americans.
It's called AktionT4 and it is a direct carry over from Nazi Germany. The Nuremberg Code and Declaration of Geneva are derived from the US v Brandt case:
True, and the fact that dems failed to jump up and down screaming about this instead of fretting about optics is as disgusting as the election theft. I love Biden/Harris and am SO disappointed there was ZERO pushback at that time. Dems understood the danger of 45 and warned what would happen. FAFO
OMG I’m so sorry to hear your friend got cut off from treatment. I hope they find an alternative and come back strong. F@*k cancer and the big orange turd & his minions who stopped funding to NIH programs.
I see that there are many budget cuts, etc., all for the purpose of saving money...but what do they want to do with the money saved if people are deprived of many services and benefits? Where will this money be directed? Every American will receive a one-time payment of about $1,000? Then what?
Nobody is getting a one-time payment of anything. You'd have to be a moron to believe that. What do they plan to do with the money? They plan to keep it, in the form of 2 trillion dollars or more in tax cuts for the 1%.
You love that it's being posted so people can be informed and right back. That's what the reaction is for.
Which is also why FB algo is busted for a lot of people: angry reacts suppress articles, and a lot of people use it as a "I didn't like what's being shared" but the algo doesn't
Mushmouth said he hasn’t hurt anyone… effing liar! What he & the sloth (sorry sloths) squatting in our White House have done to people worldwide is indefensible. How many kids have starved to death that our farmers used to feed? How many died from immediate loss of medicine? Murderers! 😡🤬
We might need to be more specific than that. Which deranged monster? (All of them, of course. It's just heartbreaking that there are so many to choose from.)
Im terribly sorry that anyone has to endure this level of cruelty. Trump suffers from Caligula Syndrome. He is a nasty vile criminal who will kill us all if allowed.
BUT...Musk has "never done anything to hurt anyone".... Many Families hurt by him will never forget or Forgive. The MuskRats and Musk future will be rocky.
Omfg. I am so very sorry. This is devastating. Also please ask me, if interested, how I healed bc. There are other options. No pressure. So sorry for your friends.
Sorry for your friend. My hubby never qualified for trials with his cancer. I hope she will find a way forward. People need to hear this story and I am sure there are millions more
They want us to die if we get sick. When sick people and post-work elderly die, the remaining population is statistically healthier. It literally the strategy for “MAHA.”
If it's tied to one of the research grants they put a freeze on, yes, they have done that. Or if it's a new medication the doc orders, already approved by the FDA, they have done the same.
The oncologist didn't do the math to change her chemo regimen? I was on clinical trials and had to stop near the end of chemo because I could not take the mouth sores that had caused my tongue to swell & I could not talk. He calculated how much "regular" chemo I could do and I did one more full hit.
They probably walked into an unexpected situation and were not prepared.
Depending on insurance, she may have also needed a prior authorization which you normally can’t obtain right away. Stat auths can be 24-72 hours. If you are in a clinical trial, the trial pays for some or all of the drugs.
It’s premeditated murder. Sending prayers for your friend. Wish I could do more. There was so much amazing progress happening with cancer, it is beyond disgraceful what is happening now.
Man, I have about as low an opinion of these guys as possible, but that seems far fetched even to me. They’re evil enough, I just don’t know if they’re that strategic. Subtlety isn’t their bag. They don’t make you connect a lot of dots.
💯 % all about fragile egos, fear of having anyone but a male cauc running everything. Especially because more babies of color were born in 2010 than euro-Americans. Xenophobia, racism and avarice is their stock and trade and will stop at nothing to enrich, and screw people, environment animals 4/$
MAGA people do not care about other people. They are fueled by revenge and hatred. The point for them was never to make Americans better. Just saying. Sad.
They do. America is more racist and sexist than it was before the child predator took office. And that's what they care about. Just look at the polls. No matter what he does, they remain at 45-47%. Racism and sexism were the point.
...describes an unnatural death caused by social, political, or economic oppression rather than direct violence, where those in power are aware of the conditions leading to death but fail to act.
Cancelling clinical trials after their funding was approved and after they began is the epitome of fraud and waste. A contract is a contract. Stopping it is fraud. Canceling in the middle means all the money spent before that was wasted.
And we have the greatest healthcare system in the world???? This is one more evil and cynical example of Felony Orange and Ketamine Dazed finding ways to get the 4.7 trillion tax break for the oligarchs
Yes. Less old people taking up space to them. They don't care abouth the white ones, either now that they don't need any votes anymore. Not useful to them. I feel nauseous when I wonder which segment of the population they want to get rid of first, like back in the 1930s
And when you tell a MAGAT these things, you can tell by the look in their eyes you're right & they hate you for almost making them feel shame. Almost. It'd be nice if they could find that shred of humanity the vast majority used to have.
I think their definition of who should be killed is a lot broader than that. They've already made official statements and moves to threaten the lives of women, queer and trans people, poor children, poor seniors (really anyone poor, this is a capitalist fascism), veterans...
There was that chilling line from Schindler’s List, where people in the labor camp were trying to convince themselves that the death camps weren’t real because they didn’t make economic sense.
Mid-century German Nazis were less stupid than this round, but still plenty stupid.
Yep, you watch when they start sending buses to nursing homes and load up all the elderly and they disappear never to be heard from again. They've been annihilated just because 🟠🤡 and muskrat consider them dredges on society because they contribute nothing to society.
So, so wrong! Very sorry to hear this.
Fly to Houston and rent an apartment close to the medical center. Something tells me MD Anderson or Methodist Cancer Care can help.
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I know that you--of course--cannot disclose identities. However the name of the treatment centers that are carrying out these cuts would be helpful for people to contact those who might be in a position to intervene.
Of course, I am fully aware of that. However, advocacy from the public could put pressure on those who are cutting the funding. Without some details about where this is happening , there is no way to know what congress person or other official to lobby on their behalf.
This is horrible. I am so sorry. I am doing what I can to stop this takeover for people just like these and those of us who may someday be in the same position.
We need more emojis to react to messages here on BlueSky. There is NO WAY I'm going to push ❤️. Rather I am 😡 about this. Clinical trials are often the only way someone can afford the treatment they need.
The old slashdot system had that, and i really liked it. But not everyone got voting rights there. Every user beyond a certain karma got a tiny amount of moderation points each day. I haven't seen such a system in a long time anywhere.
I sincerely hope, with all due respect, that you are also calling, protesting, etc along with hitting the emoji button. This war (and that is what it is) will not be won on social media. It must be won on the concerted action of our citizens.
Without hesitation, I was able to "jump into" into an anti-Trump protest with a significant number of seniors from a residence that my in-law lives in last weekend. It was invigorating and I look forward to doing more.
I make calls, I have the 5 calls app, I have done postcards and made donations I can’t afford. I went to an Indivisible meeting but then I just missed the first meeting for a new group closer to me. No one around me even thinks there’s a problem. A lot of protests are happening while I’m at work.
That’s 100% correct. I’m putting on my volunteer/activist hat this weekend. We’ve got 3 important elections in FL coming up so getting out my stack of postcards and joining my favorite phone banks again as tired as I am. It could be futile but it might not be either. I have to at least try 💙🙁
I have some serious concerns that any of these elections will be “fair and impartial” with Elon having his dirty hands in everything. They know how important it is to keep control of congress. They will cheat.
Yes they will absolutely cheat.No doubt about it. They bragged about it after the last election.But I still believe in getting out the vote and having the numbers on record as evidence, if nothing else.And if enough people get off the couch the numbers could hurt their efforts to cheat
This is horrifying!! Where are the Republican Senators and Representatives that would protest the waste of government dollars that has resulted because of this abrupt cancellation of previously approved and paid for cancer research?
I am so sorry for both of them! I don’t understand how the Dem politicians are not on the media 24/7 making people like your friends the story. And when will they be front page of the nytimes? When they find some Trump voters who had their treatment canceled?
I’m sorry for your friend. My son’s doctor has recommended a treatment for his pancreatic cancer. He can’t get it for the same reasons. It’s life & death for real people and no one seems to care in DC.
I’m so sorry - and just when the medical community was discovering that certain vaccines could help extend the lives of people with pancreatic cancer. This is just heartbreaking. Stealing hope from cancer patients is absolutely evil.
For people who already support USAID, this does nothing. MAGA doesn't give two shits about the lives of non-Americans. They'd need to show how it directly affects their selfish asses.
This is unforgivable. As a cancer survivor, it is still anxiety-provoking to continue w/ all the visits & tests required after chemo/radiation, but those two take a whole other level of commitment & organization to achieve w/o uncertainty of delivery 😢 You don't know "tired" until you've had cancer.
We must HOUND the following:
Steve Scalise (R) who himself has blood cancer;
Members of the Congressional Cancer Caucus - Brian Fitzpatrick (R), Mike Kelly (R), Debbie Dingell (D), Debbie Wasserman-Schultz (D).
Scalise is undergoing treatment. Why should he be able to if others can’t?
Thanks for the information! Since I’m retired now, I can devote some time to something other than cooking/cleaning/Candy Crush. I will hound these folks.
Comments
FALSE.
Here in Germany the mandatory health insurances pay for chemo if you have cancer, and also for the most necessary (prescribed) medications, medical treatments or things like walkers, wheelchairs or crutches. I need/have a walker myself, as disabled.
Hopefully making it personal will get through to them.
I’m participating in a study right now & I won’t be shocked if it suddenly ends. Fortunately it’s not for cancer.
Mary’ or the last chance.
I worked @ NIH from 2004 to 2017.
It's only the thoughts and feelings that recirculate.
Maybe feeding them LSD on their deathbed could provoke an agony of remorse...
This administration doesn’t give a damn about us average Americans.
That kind of willful ignorance and lack of curiosity is exactly how the U.S. ended up in this mess.
This could be any one of us 😔
Deniable killing.
Death once removed.
https://en.wikipedia.org/wiki/Aktion_T4?wprov=sfla1
https://en.wikipedia.org/wiki/Karl_Brandt?wprov=sfla1
https://en.wikipedia.org/wiki/Doctors%27_Trial?wprov=sfla1
Which is also why FB algo is busted for a lot of people: angry reacts suppress articles, and a lot of people use it as a "I didn't like what's being shared" but the algo doesn't
Like a F@*#! Emoticon
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That is shocking :-(
That's awful - I hope they can get treatment elsewhere!
Try Redox Signaling Molecules. Repair your cells with something non toxic, native to your body that has zero side effects.
Pardons will not save them.
The faux law will not protect them either.
Their insatiable greed is, one by one, creating an army hell bent on retribution.
Cruelty at the highest level!
I hope voters have better
memories next time they get to choose their representatives.
Depending on insurance, she may have also needed a prior authorization which you normally can’t obtain right away. Stat auths can be 24-72 hours. If you are in a clinical trial, the trial pays for some or all of the drugs.
Sorry
https://bsky.app/profile/drobertsimg.bsky.social/post/3lkqy3jvktc2a
They will not wise up when the checks stop coming.
That’s how cults work - never the fault of the leader 👍
...describes an unnatural death caused by social, political, or economic oppression rather than direct violence, where those in power are aware of the conditions leading to death but fail to act.
🤔
Mid-century German Nazis were less stupid than this round, but still plenty stupid.
Just like covid.
Fly to Houston and rent an apartment close to the medical center. Something tells me MD Anderson or Methodist Cancer Care can help.
Lawsuits!
You take my breath away✨️
Remember:
Contact
Call
Text
Fax
Show up
Post, repost, share
Register to vote
Protest & march, peacefully
https://www.congress.gov/contact-us
https://constitution.congress.gov/browse Click on 1st Amendment
We are stronger when we march together 🦋✌️
WaPo botched (among other things) their comment system by creating categories like "clarifying" and "thoughtful" to replace thumbs up and thumbs down.
This is directed to all of us!!!!
@5calls.org is an excellent app that helps you make frequent calls to your electeds.
Sorry this is happening to your friend and her family
Trump is responsible for everything Elon is doing as well as having a head start of all he killed through his non-response to COVID
Elon needs to be called out for the death and diseases he’s causing
The stupidity of the DOGE cuts however are Elon’s
Need to destroy both!
Steve Scalise (R) who himself has blood cancer;
Members of the Congressional Cancer Caucus - Brian Fitzpatrick (R), Mike Kelly (R), Debbie Dingell (D), Debbie Wasserman-Schultz (D).
Scalise is undergoing treatment. Why should he be able to if others can’t?
❤️🫂❤️🫂
We can do this!
Thanks.
I didn't think about iOS this. I apologize!
They should also have it. I would think.